Has anyone been to MDAnderson?

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hansonp
hansonp Member Posts: 18
edited June 2011 in Colorectal Cancer #1
i'm trying to get Dad into MD. It 's been taking so long. We sent his records and now we wait for the review board to decide to take him or not. I 'm so scared that they will turn him down. He has the two mets to the liver and damage from the chemo or SIRT which has resulted in ascites which is controlled by diauretics. He hasn't been on any chemo since last Oct. He was in remission, but now the beast is back. Waiting for MD is nerve wracking. He's not on any chemo or anything until we get in to see them. His new onc wants to wait to see what they have to say. UCLA says put him on Avastin and Xeloda. Good Sam says do more SIRT or RFA. I understand MD is the best so we're waiting. Has anyone had experience with the review process for them? It's nice to talk with people who know what you are feeling. i love my Dad so much and want him around a lot longer. He is still playing golf and he feels good.

Comments

  • lizdeli
    lizdeli Member Posts: 569 Member
    #2
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    MDA
    I was treated at MDA. When did you or your Dad's doctor reach out to them? It helps to have the doctor do it and it sounds like the records were sent. How long has it been?
    Liz
  • fatmomma
    fatmomma Member Posts: 95
    #3
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    lizdeli said:

    MDA
    I was treated at MDA. When did you or your Dad's doctor reach out to them? It helps to have the doctor do it and it sounds like the records were sent. How long has it been?
    Liz

    md anderson
    We tried to get my mom in there. Had the doctor send all medical reports, but they turned her down because they don't take Arkansas Medicare. She would have to pay everything up front. Hopefully your dad won't have that problem. Good Luck.

    fm
  • hansonp
    hansonp Member Posts: 18
    #4
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    lizdeli said:

    MDA
    I was treated at MDA. When did you or your Dad's doctor reach out to them? It helps to have the doctor do it and it sounds like the records were sent. How long has it been?
    Liz

    Its been about a month
    In the meantime he not getting qny treatment which worries me. Is a month a long time for them to decide?
  • fatmomma
    fatmomma Member Posts: 95
    #5
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    hansonp said:

    Its been about a month
    In the meantime he not getting qny treatment which worries me. Is a month a long time for them to decide?

    md anderson
    I always contacted them by email and usually got a response within 48 hours. I'm sure you have been to their web site but here is a link go contact them with any questions: https://www2.mdanderson.org/sapp/contact/infoline/index.cfm
  • Buckwirth
    Buckwirth Member Posts: 1,258 Member
    #6
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    fatmomma said:

    md anderson
    I always contacted them by email and usually got a response within 48 hours. I'm sure you have been to their web site but here is a link go contact them with any questions: https://www2.mdanderson.org/sapp/contact/infoline/index.cfm

    Clickable link
    MD Anderson Clickable
  • suz_3
    suz_3 Member Posts: 17
    #7
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    Hi! It took me about 4
    Hi! It took me about 4 months from the date I was referred. It was very frustrating, but worth it. I have been 2 times since May and will go back in July. They are very caring and compassionate-you are not just a number. However, I did keep calling them about every 2 weeks and had my doctor call also. Keep calling...it will be worth the wait. Best of luck!
  • fatmomma
    fatmomma Member Posts: 95
    #8
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    suz_3 said:

    Hi! It took me about 4
    Hi! It took me about 4 months from the date I was referred. It was very frustrating, but worth it. I have been 2 times since May and will go back in July. They are very caring and compassionate-you are not just a number. However, I did keep calling them about every 2 weeks and had my doctor call also. Keep calling...it will be worth the wait. Best of luck!

    md
    Thanks Buck....I didn't know how to make a link.
  • hansonp
    hansonp Member Posts: 18
    #9
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    suz_3 said:

    Hi! It took me about 4
    Hi! It took me about 4 months from the date I was referred. It was very frustrating, but worth it. I have been 2 times since May and will go back in July. They are very caring and compassionate-you are not just a number. However, I did keep calling them about every 2 weeks and had my doctor call also. Keep calling...it will be worth the wait. Best of luck!

    md anderson
    Thank you so much, all of you. I will keep calling. And thanks for the link! In the meantime, I'm going to ask his onc to put him on Xeloda and Avastin. I'm also having him do alternative therapies. I figure it can't hurt unless they are incompatable. I just don't want to wait 4 months if I have to without him being on anything.
  • GHF
    GHF Member Posts: 3
    #10
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    MD Anderson
    Sorry you are having trouble getting in. My insurance got me right in. Maybe you should go that route. I will keep you in my prayers.

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