Results..not so good...sprialing downhill
I will enter a clinical trial taking the oral chemo TESETAXEL a sister of Taxotere....it is an oral chemo...that's a blessing in itself! I could start the drug as early as tomorrow..only remaining test to be done is an EKG... If anyone is interested in this drug and clinical trial, google it...it is in phase II..Getting ready to go phase III... It is being investigated for bc and other cancers that original therapy obviously didn't work....I'm praying hard it keeps it at bay....
Now off to my PC physician for my BP..... gee you'd think the obvious conclusion would be ...."well, hell yeah my BP is up!". Whose wouldn't?!
I'm trying so hard to stay positive....not sure I can keep the "happy face" this time.....when actually I want to scream, rant and cry my eyes out! Not so much for myself but for my husband, kids and grands....
Time to head out for my appointment...
Hugs to all,
Nancy
Comments
-
Nancy, I am at a loss for
Nancy, I am at a loss for words. I feel so helpless, all I can do is pump up the prayers. I pray this new chemo drug is effective for you my friend. You are so brave and so strong...
Hugs,
Lorrie0 -
Bad Biopsy Results
I am so sorry to hear that your biopsy result was not so good, Nancy. I too have TNBC and news of this sort from one of the sisters always upsets me. If you want to scream, rant and cry your eyes out for a while I don't think anyone will fault you for that. Do it and get back up on that horse and fight the battle again. You have too much to live for to just take it lying down. Please know that you are in my thoughts as this journey begins once again for you.
IRENE0 -
Hugs to you, Nancy. Of
Hugs to you, Nancy. Of course you want to scream, rant and cry your eyes out; that's the healthy thing to do. And then remember to take some deep calming breaths as you put your cancer fighting kick butt gloves on. It's good to hear that there is a new weapon in the chemo arsenal and I am praying that it zaps anything and everything that threatens your health. xoxoxoxo Lynn0 -
Whoa -- scary newsNJMom10 said:A woman in my niece's church has stage IV- 20 yr survivor
She's still here, going to church every Sunday. Keep positive. You are strong and you will get through this. Barb
All I know is you have every right to be terrified and a myriad of other feelings. BUT the other thing I know is your fingers, at least, are reaching for positivity -- every post you write with those fingers is filled with hope and energy and humor along with the scary reality of your current situation. There's a lot of fight left in you -- it vibrates off the computer. Take that fight and use it to save your life. Sure, easy for me to say, but honestly, your posts radiate strength.
xoxo
Victoria0 -
Nancy,
I am happy ( though
Nancy,
I am happy ( though that is not the right word, of course) that you wrote you are now Stage IV "only" because you are doing battle with the Beast again... I too am in the middle of the war again, and I was so shocked and scared to find out I am now classified as a 4! We who have "been there, done that" need a better number!!! I think about RE and Carkris, and many of the Kindreds who have found themselves in a similar situation ( RE has been through this 3 times already!)...obviously, Stage IV is NOT putting a period at the end of our sentences!! We have many, many more sentences to write!!!!!
I send you love, courage, strength and everything you need from us to get you through this!!! It has been said that at this point we are not "curable" ( well, who is???) but nothing, nothing, nothing says that we are not treatable! The quality of our lives will be just fine, with innumerable family experiences to be had.
I was just thinking of one of my best friends from CSN chat~ we met in 2003. Two summers ago I flew to Wisconsin to spend a week with her and her family. When I met her online in 2003, she had already been dx for the third time ( with BC). She is still with us! She is married, works full time and has a son. She has been Stage4 for 8 years and counting...
I know you aren't giving up, I know you are scared, just know you are loved!
Hugs,
Chen♥0 -
Geez ...Nancyaisling8 said:Whoa -- scary news
All I know is you have every right to be terrified and a myriad of other feelings. BUT the other thing I know is your fingers, at least, are reaching for positivity -- every post you write with those fingers is filled with hope and energy and humor along with the scary reality of your current situation. There's a lot of fight left in you -- it vibrates off the computer. Take that fight and use it to save your life. Sure, easy for me to say, but honestly, your posts radiate strength.
xoxo
Victoria
So sorry to hear this news. However, the power of prayer is GREATER than the beast. I'll keep you in prayers for Victory over this bump in the road.
Big Hugs~
Mitzi0 -
This really, really, really, really, really, REALLY sucks!aisling8 said:Whoa -- scary news
All I know is you have every right to be terrified and a myriad of other feelings. BUT the other thing I know is your fingers, at least, are reaching for positivity -- every post you write with those fingers is filled with hope and energy and humor along with the scary reality of your current situation. There's a lot of fight left in you -- it vibrates off the computer. Take that fight and use it to save your life. Sure, easy for me to say, but honestly, your posts radiate strength.
xoxo
Victoria
But I think Victoria said it beautifully when she said how much hope and energy and humor we can all see and feel in you -- even at those dark times when you may not see it in yourself.
Now about that blood pressure -- for heaven's sakes, Nancy, if ANY medical professional today questions you -- gee, your blood pressure seems high, hmmm, I wonder why that would be? -- I want you to send to send me his/her name and address, and I will personally fly to their office and smack them upside the head!
Traci0 -
Nancy there are so manychenheart said:Nancy,
I am happy ( though
Nancy,
I am happy ( though that is not the right word, of course) that you wrote you are now Stage IV "only" because you are doing battle with the Beast again... I too am in the middle of the war again, and I was so shocked and scared to find out I am now classified as a 4! We who have "been there, done that" need a better number!!! I think about RE and Carkris, and many of the Kindreds who have found themselves in a similar situation ( RE has been through this 3 times already!)...obviously, Stage IV is NOT putting a period at the end of our sentences!! We have many, many more sentences to write!!!!!
I send you love, courage, strength and everything you need from us to get you through this!!! It has been said that at this point we are not "curable" ( well, who is???) but nothing, nothing, nothing says that we are not treatable! The quality of our lives will be just fine, with innumerable family experiences to be had.
I was just thinking of one of my best friends from CSN chat~ we met in 2003. Two summers ago I flew to Wisconsin to spend a week with her and her family. When I met her online in 2003, she had already been dx for the third time ( with BC). She is still with us! She is married, works full time and has a son. She has been Stage4 for 8 years and counting...
I know you aren't giving up, I know you are scared, just know you are loved!
Hugs,
Chen♥
Nancy there are so many words of wisdom already spoken here, so just want you to know I care, I'm praying for you, and also expect you to be here supporting all these newbies for a long time to come just like Chen, Re, Carkris and the other Stage 4 sisters. I know you are scared, but darn you still have a wonderful, fighting attitude.0 -
Thinking of younatly15 said:Nancy there are so many
Nancy there are so many words of wisdom already spoken here, so just want you to know I care, I'm praying for you, and also expect you to be here supporting all these newbies for a long time to come just like Chen, Re, Carkris and the other Stage 4 sisters. I know you are scared, but darn you still have a wonderful, fighting attitude.
Thinking of you and hope this treatment works.Sounds better than the chemo treatments.
You have every right to be upset but I know the doctors will keep up with you and make sure you get the best treatment. I agree that cancer patienes are living longer lives.Just a couple days ago I read the count keeps going up with survivors.
You and your family are in my thoughts and prayers.
Lynn Smith0 -
Dear Nancy,Lynn Smith said:Thinking of you
Thinking of you and hope this treatment works.Sounds better than the chemo treatments.
You have every right to be upset but I know the doctors will keep up with you and make sure you get the best treatment. I agree that cancer patienes are living longer lives.Just a couple days ago I read the count keeps going up with survivors.
You and your family are in my thoughts and prayers.
Lynn Smith
Thinking of you
Dear Nancy,
Thinking of you and sending love. Chen and Victoria said it so beautifully that I just wanted you to know that.
Keep up the fight my friend.
Hugs,
Wanda0 -
GeeLighthouse_7 said:Dear Nancy,
Thinking of you
Dear Nancy,
Thinking of you and sending love. Chen and Victoria said it so beautifully that I just wanted you to know that.
Keep up the fight my friend.
Hugs,
Wanda
Have my glasses on now and see my mistake. Now I wonder about other posts.
Just like to add that Stage 4 is not like it used to be.My friend/classmate was a stage 4 and she lived 12 years. Then she fought with it for a year in her bones but the treatment to a toll on her immune system.If she went in remission and could receive bone marrow from her twin I know she would have had many more years.
Lynn Smith0 -
PrayersLynn Smith said:Gee
Have my glasses on now and see my mistake. Now I wonder about other posts.
Just like to add that Stage 4 is not like it used to be.My friend/classmate was a stage 4 and she lived 12 years. Then she fought with it for a year in her bones but the treatment to a toll on her immune system.If she went in remission and could receive bone marrow from her twin I know she would have had many more years.
Lynn Smith
Prayers are going out to you,you fight the same way you did the first time with all you got we're here for you if you need us,you'll beat this too! sending HUGS To YOU MOLLYZ0 -
Wishing...
Wishing we all lived close to each other so we can run to each other's homes when we need a huge hug (yes, I am the type to just show up). I know we get a lot of love and support here, but right now I want to give you a hug and tell you, to your face, Nancy....you are going to be OK. Please have faith.
I pray that you overcome this too, and you will. Believe you will, Nancy. Just BELIEVE.
We are here for you.
Hugs.0 -
I'm sorry!LoveBabyJesus said:Wishing...
Wishing we all lived close to each other so we can run to each other's homes when we need a huge hug (yes, I am the type to just show up). I know we get a lot of love and support here, but right now I want to give you a hug and tell you, to your face, Nancy....you are going to be OK. Please have faith.
I pray that you overcome this too, and you will. Believe you will, Nancy. Just BELIEVE.
We are here for you.
Hugs.
I'm sorry you have to go through this! I think screaming & kicking and crying needs to be done & then you will reach deep within your self & find the strength to take the new chemo & do whatever you need to do for yourself & your family! I know easier said than done, But from reading your posts, I know you can do it! I'm cheering you on!
Mega Hugs & prayers!!!!!!!!
Renee0 -
Nancy, my heart and prayers
Nancy, my heart and prayers go out to you. I do sincerely hope that Tesetaxol is successful for you. And don't worry about the happy face...we understand.
hugs
jan0 -
Oh, this just sucks!phoenixrising said:Nancy, my heart and prayers
Nancy, my heart and prayers go out to you. I do sincerely hope that Tesetaxol is successful for you. And don't worry about the happy face...we understand.
hugs
jan
Nancy, I'm so sorry about your recurrence. The words "Stage IV" must be so difficult to hear, even though you know from this board many women who continue to survive for many many many years. I hope the Tesetaxol kicks those cells back into oblivion!
Sending hugs and prayers,
Suzanne0 -
Oh Nancy I'm so sorry to
Oh Nancy I'm so sorry to hear about this biopsy. You go right ahead and scream yell rant and rave. We will all do it right along with you. Our arms are around you darlin. And the prayers will never stop. There is power in prayer. And mine are going up at this moment just for you. Kay0 -
Nancy .... Wowsmalldoggroomer said:Oh Nancy I'm so sorry to
Oh Nancy I'm so sorry to hear about this biopsy. You go right ahead and scream yell rant and rave. We will all do it right along with you. Our arms are around you darlin. And the prayers will never stop. There is power in prayer. And mine are going up at this moment just for you. Kay
I can't imagine what you are going thru.. All I have to offer you, are prayers, positive thoughts and gentle hugs.
You are a strong WARRIOR, and have a wonderful disposition as well as a positive attitude -- you are plenty strong ..get your boxing gloves on .. and steel toed shoes .. we WARRIORS will be there in your corner, day after day, offering words of wisdom, hope and prayers.
Damn cancer -- !!!!
Strength, Courage, and Hope.
Vicki Sam0 -
NancyVickiSam said:Nancy .... Wow
I can't imagine what you are going thru.. All I have to offer you, are prayers, positive thoughts and gentle hugs.
You are a strong WARRIOR, and have a wonderful disposition as well as a positive attitude -- you are plenty strong ..get your boxing gloves on .. and steel toed shoes .. we WARRIORS will be there in your corner, day after day, offering words of wisdom, hope and prayers.
Damn cancer -- !!!!
Strength, Courage, and Hope.
Vicki Sam
So very sorry to hear that you've joined the "Stage IV Club". It does put things in a different perspective. I do however, see something positive in your report - though the lymph nodes are now involved, cancer has not been found in any other organs. That really IS good news. Try to build your strength on that fact. That "inner strength" I always refer to will rise up and help you through! I hope the clinical trial will be the "magic bullet" to fight your cancer. Stay positive! God bless. Marsha0
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