Confused

Marcha Louise
Marcha Louise Member Posts: 36
in Breast Cancer #1
Well I got a call from my ONC's office today and they want me to come in on Monday the 20th. They have my oncotype back. The Dr. had said that if it was low he would let me know and then just phone in a prescrip for the med he wanted me on and then would see me 30 days after I stared the med. I asked the nurse if she could tell me what the score was and she told me no. So I am assuming the worst, or the Dr. did not communicate what he had told me. Who knows. The anxiety is getting old. If I take Chemo and end up not being able to work, there goes my insurance. I will hope for the best on all fronts.

Comments

  • ldpettit
    ldpettit Member Posts: 128
    #2
    Dr
    I would call the doctors office today and ask the doctor to give you a call back. It may be the info didn't get relayed to the nurse. Either way, maybe speaking with the dr will ease your mind for the weekend. Just a thought

    Lisa
  • aysemari
    aysemari Member Posts: 1,596 Member
    #3
    I am with Lisa on this one
    Alleviate any stress possible. I am sure he can spare a few minutes
    to clear things up for you. It may be something very minuscule, so
    try not to stress but take action. It's easier to deal with the facts, I
    don't know about you my imagination ALWYA out trumps the reality.

    LOVE,
    Ayse
  • roseann4
    roseann4 Member Posts: 992 Member
    #4
    aysemari said:

    I am with Lisa on this one
    Alleviate any stress possible. I am sure he can spare a few minutes
    to clear things up for you. It may be something very minuscule, so
    try not to stress but take action. It's easier to deal with the facts, I
    don't know about you my imagination ALWYA out trumps the reality.

    LOVE,
    Ayse

    It could be intermediate.
    Try not to think the worst. A high score doesn't mean a death sentence just different treatment. Mine was 18 which is intermediate. They met with me to go over my options because they don't know for sure how helpful chemo is for medium numbers. I opted not to have chemo but it is not the same for everyone. It would have made a 3 percent improvement in my odds. I was 58 at the time and was concerned that I would suffer more neg effects than positive at my age. Hugs.

    Roseann
  • jendrey
    jendrey Member Posts: 377
    #5
    roseann4 said:

    It could be intermediate.
    Try not to think the worst. A high score doesn't mean a death sentence just different treatment. Mine was 18 which is intermediate. They met with me to go over my options because they don't know for sure how helpful chemo is for medium numbers. I opted not to have chemo but it is not the same for everyone. It would have made a 3 percent improvement in my odds. I was 58 at the time and was concerned that I would suffer more neg effects than positive at my age. Hugs.

    Roseann

    ...
    I think you can take up to 12 weeks under FMLA, the Family Leave Medical Act without worrying about losing your job/benefits.

    See: http://www.dol.gov/dol/topic/benefits-leave/fmla.htm
  • sbmly53
    sbmly53 Member Posts: 1,522
    #6
    I'm hoping for the best
    right along with you. Stressing out seems to be a big part of this whole journey and it's easy to say try not to be anxious. I hope it's just stupid office protocol and that all will be well.

    Sue
  • Marcha Louise
    Marcha Louise Member Posts: 36
    #7
    jendrey said:

    ...
    I think you can take up to 12 weeks under FMLA, the Family Leave Medical Act without worrying about losing your job/benefits.

    See: http://www.dol.gov/dol/topic/benefits-leave/fmla.htm

    Family Leave Act.
    I work for a State University Part time. I have to pay half of my insurance. HR told me if I work 1/2 day a month that the state will pay their part and I will have to pay the rest. I have already filled out the forms for the family leave act. Its hell to have cancer and have to have so much red tape.
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #8
    sbmly53 said:

    I'm hoping for the best
    right along with you. Stressing out seems to be a big part of this whole journey and it's easy to say try not to be anxious. I hope it's just stupid office protocol and that all will be well.

    Sue

    I am hoping that your Oncologist ... wants you to
    come in and go over all the details of the test, as well as giving you information regarding the pill you may be taking. Then again, he may want to allow you to select which option of chemo or radiation would be best for your 'CASE' of breast cancer. Ask for clinical trial information, if available. Also, please ask Oncologist if there is another patient of his that recently completed this same treatment plan .. perhaps you can speak with her ... get some information regarding side efforts, fatigue or sleep pattern disruptions.

    Anxious and Stress often plague our thoughts once we have been told that we have breast cancer .. Grab a notebook and write down everything that is stressing you... take a look at your list tomorrow, and see which items you can control, and which you can not. If you are stressing about treatment, write down questions and concerns -- this may help with some of your anxiety.

    Strength, Courage and Peace.

    Vicki Sam

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