Jun 15, 2011 - 12:01 am
It breaks my heart to hear so many people going through similar situations with their loved ones as I am going through with my noldest son. My handsome, strong boy has had a brain tumor in the center of his brain since he was 9 yrs old. At that time that they discovered he had it, he just needed a third ventricular shunt placed in his little head because he had alot of fluid build up. We took him back every 3-6 months for follow ups & MRI scans. His tumor was then thought to be non cancerous as it would only grow about 1 mm every 6 or so months. This past late September he started vomiting again and we new it was due to his tumor. Little did we know it had grown a substantial amount. He had an actual shunt placed in his head to help with the extra fluid. His small shunt had been blocked by the growth of the tumor. He had another MRI scheduled for December, and we took him. After the MRI he was to go see his neurologist. He started feeling funny and felt numbness in his head. He had a seizure in the waiting room. It was such a terrifying experience for me and my husband. They rushed him to the ER. Upon looking at his new scan they now said his tumor was a stage 3. We lost it at the hospital, and thought our life was crumbling down. We stood at the hospital with him, hurting for our other 3 beautiful children who had to stay at our families home. Few days later the Oncologist called us in for a private talk with him. He showed us the MRI scan, and showed us how the tumor had spread to the majority of my babies little brain and even down his spine. He told us there wasnt really anything we could do for him. We should just take him home, make him comfortable and let the disease take its course. We both lost it!! I couldnt eat or sleep for several days after that.. We did not agree with the Dr. We chose to fight for our sons life and do all we can to have him with us longer. He underwent 30 sessions of the strongest radiation they can give anyone and has been taking Kepra twice a day, Tarceva every day and Temador once a month for 5 days. Thank God he feels no pain and has no nausea. He is doing pretty good considering how advance and severe his cancer is. We pray every day and thank God for every day we have him with us. We have another MRI scheduled for this Thursday 6/16/11. And I pray theres only good news!!!! He has a few problems here and there and we really have to watch him as if he was a very small child. But its worth having him with us. I have been so scared to read stories online about similar stories, but i have found some that have given me more hope. It hurts so bad because my son has an adult cancer, there are only about 6% children who get this type of cancer.. Any wonderful news would be great.