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PET scan on Tuesday

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Sorry I haven't posted much lately, I've been on a bit of an emotional rollercoaster lately and didn't feel I could really be of much help to anyone so I've been staying away from the boards.

A brief background since there are so many new members here. In May of '09 I was diagnosed with NSCLC in left lung and 2 weeks later, after a PET scan,I was also diagnosed with SCC Laryngeal cancer. Went through chemo and rads and have been in remission since. When I was first diagnosed my oncologist said there was a small "spot" in my right lung but he didn't feel it was anything but they would keep an eye on it. I was having a CT scan every three months to monitor my lungs and they were all coming back good - no change. I had finally graduated to only needing the scan every 6 months and I was so excited!!!

In February I went back for my first scan in 6 months and the radiologist said there were "subtle changes" in my left lung and put me back on a 3 month schedule for my scans. I had another scan in May and he told me the tumor was "more distinguishable". When I asked him if this meant it had grown all he would say was it was "more distinguishable". He sent the scans to the Cancer Review board for their recommendation and they said to order another PET scan. It seems that not only is the tumor in my left lung "more distinguishable", the "spot" in my right lung has grown also. I go Tuesday the 14th for the PET but won't hear from my radiologist until the 20th because he will be on vacation. The delay in getting the results isn't really bothering me, I think it's because I'm really expecting to hear bad news and I'm in no hurry for that. Like I told my sisters, I'm praying for the best but preparing for the worst :)

I hope everyone here is doing well,
Glenna

lekkerone
Posts: 199
Joined: Jan 2011

I am so sorry you got such news. The waiting, as you know is one of the most difficult things they ask us to do. You are in my prayers for sure. Diane

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you for keeping me in your prayers, I really take comfort in knowing that others are praying for me.

I'm getting used to the waiting now and don't let it bother me as much as it used to. I would prefer to have answers quicker but know it's not possible so I have learned to keep myself busy so I don't worry needlessly. I save all my worrying for the day I get my results, that's when I really get nervous - LOL

Glenna

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

You are in my thoughts, my friend. As you know, the scan is not the thing to worry about. It's the results that can be a problem :).

Hope and humor, Glenna!

Take care,

Joe

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

The scan doesn't bother me...too much :) I'm gonna be a big girl this time and do it without the Ativan...hahaha The technicians may hate me afterwards but I don't care, it's not like I have to see them everyday.

I will be fine until the morning of the 20th when I get the results, then I'll start the worrying process, til then I have too much to do and enjoy.

I have the hope and I'm looking to you, my sweet friend, for the humor. You have always been able to make me laugh. It's funny, I just realized I am smiling as I write this to you. See, you're having a great effect on me already!!

As always,
Glenna

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

I will be praying and rooting for you Glenna. This is one group who KNOWS how hard it is to wait. Keep us posted dear friend.

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you so much for your thoughts and prayers, I knew I could count on you to be there for me.

I will post on the 20th after I hear from the radiologist, and I'm praying that I will be able to post great news so everyone can celebrate with me.

Stay well my friend,
Glenna

Dan620
Posts: 213
Joined: Dec 2009

Glenna have read all your posts over the last couple years, you are a most loving and caring person and want you to know will be sending prayers your way for a clean pet-scan. Wishing you nothing but the best....... Dan

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you Dan for your kind words and prayers. Each day I am feeling a little more confident that all will be well.

Stay well,
Glenna

catcon49's picture
catcon49
Posts: 388
Joined: Aug 2008

More positive wishes and prays.

c

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you!!!

My best,
Glenna

sleepless in jersey
Posts: 185
Joined: Feb 2011

He is being Bombarded with Lots of Prayers for you!!
Keep your head up and stay positive.
Lots of positive energy your way.

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you for such an inspiring note, how can I not think positive thoughts when so many are praying for me.

Stay well,
Glenna

medi_2's picture
medi_2
Posts: 506
Joined: Aug 2009

I am rooting for you girl! Just think of us as your safety net! ;)
XOXOXOX
Medi

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you, I like that...safety net :)

Big hugs!!!
Glenna

mom_of_2
Posts: 30
Joined: Nov 2010

Hi Glenna,

I'm sorry to hear this news. I will continue to keep you and your family in my thoughts and prayers.

Chrissy

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I hope you and your family are doing well, I think of you quite often.

Thank you for the prayers, I really appreciate them.

Stay strong,
Glenna

angelyn's picture
angelyn
Posts: 51
Joined: Jan 2011

Wishing you the best of luck on the 20th. Hope everything goes very well.
Angie

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you for the words of encouragement, they help a lot!!

Glenna

grannylove
Posts: 183
Joined: Apr 2011

Glenna, Lifting you up in prayers! We are here for you and praying for the best results on the PET. Sometimes we all have to take a break from "C". We know you still love us:-)
We're family so we are in your corner! HUGS
Cheryl

z's picture
z
Posts: 1251
Joined: May 2009

Glenna, I will have you in my thoughts and prayers for good scan results for you on the 20th. I know that the waiting is the hardest part for me. When I have a scan I see the oncologist the next day, I told him its the worst part for me, just the wondering. I am only sending healing thoughts to you. I know that when I first had my lung nodule discovered the standard follow up scan was scheduled for 3 months later, and the oncologist said hopefully it will just be gone. Well it wasn't so I had the lower right lobe removed after the biopsy via vats and the divinci robot. Now since you have already been in remisson once, if there is an issue you could go back into remission again. But I would rather everything be cleared up again. Lori

lynntaylor
Posts: 39
Joined: Mar 2011

Glenna,
When I came here lost and confused over my father's diagnosis several months ago you were the first to post a reply. I want you to know how much that helped me... and how very much it was appreciated. Thank you for all you do for others. I am so sorry you are going through another scary time. I will definitly keep you in my thoughts, and we will be praying for you!!
LT

jejohn
Posts: 48
Joined: Nov 2010

Hope scans go well. I had 3 today; brain mri, lung ct, and pet. I find out results tomorrow. In a way, I wish I didn't find out until later. I feel so good and am doing so well, I don't want to end the happiness if that is the case! Sending prayers your way!!

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you all for your thoughts and prayers. You will all be proud of me...I made it through the PET without an Ativan...Woo Hoo!!! I think it helped that the technologist explained that this is one time that being short is an advantage as your height is one thing that determines how long you are in the tube. I'm only 5 feet and 105 pounds so I only had to stay in for 20 minutes :)

jejohn - I'm praying for good results from all 3 of your scans!!!

Again, thank you all for being there for me.

Stay strong,
Glenna

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

I'm so sorry you're going through this, wishing I'd been around more!
:(

z's picture
z
Posts: 1251
Joined: May 2009

I am happy to see you post, as I think about you and how you're healing. I wish you well. Lori

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Never apologize for not visiting the boards more often, I understand :) It is nice to see you post once in a while so we all get a chance to say Hi!!!

I'm doing pretty good and hanging in there, not going to let it consume my thoughts...until Monday - lol. I know me and on Monday I will probably sit by the phone watching it and willing it to ring. Unfortunately, as we all know, this does not work :)

Hope everything is going well for you and each day you are seeing improvement.

Stay strong,
Glenna

jejohn
Posts: 48
Joined: Nov 2010

Thanks for the prayers. I received mixed results. Mets to spine and pelvis are gone. PTL!! Primary tumor is continuing to shrink, but small mets in lung have multiplied and grown a little. Also, new brain mets have surfaced. I start 15 treatments of WBR tomorrow, and then I will go on Tarceva when I am finished. So, could have been worse, could have been better. But, I still feel great and have no aches or pains! For that I am thankful!!! Sounds like you did great during your PET. Hoping and praying your results will be favorable. Keep the faith!!!

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