Liquid Lomotil

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idlehunters
idlehunters Member Posts: 1,787 Member
in Colorectal Cancer #1
Did I spell that right?..... Phil and John....I know what you both are thinking....and I KNOW i spelled Liquid right!!! LOL

Anyway....... I just had my second treatment of CPT-11...only... and man did it ever hit the bowels....oh yeah....sheeeeet DEFINATELY hit the fan and anything else within a few feet!!!! Wowie Zowie.... I ain't never had diarrhea like that. I kept thinking...surely this is the last time...surely THIS is the last time..nooooooo. I started going bout 9am Friday and by 9am today I had gone thru 46 Immodium and had 52 BM's.....My rear was bleeding and I had sharp pains shooting in my right cheek...whoa...when I started crying and noticed very few tears I thought "ought ohhh" Dehydration setting in.... Called Onc..who wanted me to go to ER...I declined. He called me in a script for Lomotil. I have taken that once before but it didn't work any better for me than the Immodium.

My Sister called and said she had the Liquid Lomotil. I wanted to try that as liquid seems to absorb WAY faster than pills. I was shocked. I took 2 teaspoons...had a BM 20 min later and then took 2 more teaspoons. I have not went since. That was over 5 hours ago. That stuff is awesome and I am going to use that from now on. If you have a poopoo problem...and have not tried this.....just sayin....... good sheeet....literlly!

Take care!!!
Jennie

Comments

  • marqimark
    marqimark Member Posts: 242 Member
    #2
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    Glad you are better
    Sounds like you had a very crappy experience.

    Lucky for me my bouts of loose stools were only the first days of the treatments.
    Nausea was a different story :(
    Cost me 55 lbs Nausea did.
    Had to go on LOA from work because I was losing so much strength.
    Put forty lbs back on since the Chemo ended :)


    Good deal for you that you found something to help.
    I will ask my co-worker if he has tried it.
    He was telling me about ihis crappy experience a couple of days ago.
    Five of us have been fighting different forms of cancer at my work over the last year.

    Stay strong

    Mark
  • thingy45
    thingy45 Member Posts: 632 Member
    #3
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    I tried Lomotil last year
    I tried Lomotil last year when I had a crappy problem while on a trip with an autoclub. It really works fast and good. I never leave home without it.
  • John23
    John23 Member Posts: 2,122 Member
    #4
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    UGH

    Low-mow-till = Lomotil

    Yuppers, it's an opiate and addictive. It's addictive in the sense,
    that when you try to cut back, or stop, or just use less..... the withdrawal
    symptoms are rapid transit of the digestive system. To relieve it, you
    take the Lomotil.

    So how do you know when you're cured of the fast dumping syndrome?
    You don't. It's insanity at it's best, and all western medicine.

    I take 2 four times a day, or maybe 5 or 6 times a day. It does work,
    but not always. But hey.... I'm an exception, since I don't have the colon
    connected, I have an Ileostomy, and I now have about 1/2 of my small
    intestines left. All that, equates to very rapid transit, and very frequent
    filling of the ostomy pouch.

    Take it by holding the small, tiny pills under your tongue until they dissolve.

    Isn't life grand? Wanna' touch my stoma?

    I didn't think so.

    Anyway, be aware that the addictive nature of it may cause you to
    have to take it forever. Oh...... and that it can cause liver failure if
    taken too long.... did I say die? Haha... yes, I think I did.

    In my case, I may die of cancer, but more likely, of the "complications
    of cancer".

    Imagine that? NED since 2006; no chemo, rads or anything except
    herbs.... and here I am still a stage four, and no intestines left to live.

    Oh yeah, and Low-Mow-Till the day I die.

    Just sayin'.....

    Best wishes for better health to all!!

    John
  • Unknown
    Unknown
    #5
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    John23 said:

    UGH

    Low-mow-till = Lomotil

    Yuppers, it's an opiate and addictive. It's addictive in the sense,
    that when you try to cut back, or stop, or just use less..... the withdrawal
    symptoms are rapid transit of the digestive system. To relieve it, you
    take the Lomotil.

    So how do you know when you're cured of the fast dumping syndrome?
    You don't. It's insanity at it's best, and all western medicine.

    I take 2 four times a day, or maybe 5 or 6 times a day. It does work,
    but not always. But hey.... I'm an exception, since I don't have the colon
    connected, I have an Ileostomy, and I now have about 1/2 of my small
    intestines left. All that, equates to very rapid transit, and very frequent
    filling of the ostomy pouch.

    Take it by holding the small, tiny pills under your tongue until they dissolve.

    Isn't life grand? Wanna' touch my stoma?

    I didn't think so.

    Anyway, be aware that the addictive nature of it may cause you to
    have to take it forever. Oh...... and that it can cause liver failure if
    taken too long.... did I say die? Haha... yes, I think I did.

    In my case, I may die of cancer, but more likely, of the "complications
    of cancer".

    Imagine that? NED since 2006; no chemo, rads or anything except
    herbs.... and here I am still a stage four, and no intestines left to live.

    Oh yeah, and Low-Mow-Till the day I die.

    Just sayin'.....

    Best wishes for better health to all!!

    John

    This comment has been removed by the Moderator
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #6
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    you got a way with words
    jennie dear,
    glad to hear no fear for your rear.
    lots of bm's, that cute. me too, or me two hundred haha
    the blood, the tears well we got that in common regretably.
    when you 've had enough pain remember the local numbing gel. its worth its wait in gold.
    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #7
    Options
    John23 said:

    UGH

    Low-mow-till = Lomotil

    Yuppers, it's an opiate and addictive. It's addictive in the sense,
    that when you try to cut back, or stop, or just use less..... the withdrawal
    symptoms are rapid transit of the digestive system. To relieve it, you
    take the Lomotil.

    So how do you know when you're cured of the fast dumping syndrome?
    You don't. It's insanity at it's best, and all western medicine.

    I take 2 four times a day, or maybe 5 or 6 times a day. It does work,
    but not always. But hey.... I'm an exception, since I don't have the colon
    connected, I have an Ileostomy, and I now have about 1/2 of my small
    intestines left. All that, equates to very rapid transit, and very frequent
    filling of the ostomy pouch.

    Take it by holding the small, tiny pills under your tongue until they dissolve.

    Isn't life grand? Wanna' touch my stoma?

    I didn't think so.

    Anyway, be aware that the addictive nature of it may cause you to
    have to take it forever. Oh...... and that it can cause liver failure if
    taken too long.... did I say die? Haha... yes, I think I did.

    In my case, I may die of cancer, but more likely, of the "complications
    of cancer".

    Imagine that? NED since 2006; no chemo, rads or anything except
    herbs.... and here I am still a stage four, and no intestines left to live.

    Oh yeah, and Low-Mow-Till the day I die.

    Just sayin'.....

    Best wishes for better health to all!!

    John

    you maybe light on the guts but you got heaps of balls

    hi john,
    does this mean your a junkie ?
    if it works and it keeps you here my dear then i guess thats the way its got a be.
    i know if there was anyway way around it, you would have found it.

    havings an arse that works 200 times a day with blood and pain. well i'll still prefer my lot than yours. at least i can fart.

    i am thinking of doing a phd on toilets. i was going to start photographing every loo i go too. this reconnection is really screwwing with my brain.

    i am getting a little better and micro managing the poos and the loos

    are you taking milk thistle to help the liver or any herbs ?

    hugs,
    pete
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #8
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    interesting
    Wow- glad to hear about the liquid lomotil- I will ask my onc's nurse about that & see if I can get a prescription. My worst time for ---- hitting the fan is in the morning. Just as I'm about to drive kids to school, I have to run back to the bathroom & kids often end up late to school because I can't get myself off the toilet in time. I take lomotil, but it does take a bit of time to kick in.

    Thanks!

    Lisa

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