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surgery date scheduled for Thursday morning

candoredo
Posts: 44
Joined: May 2011

Well I just got the date for my surgery. It will be next Thursday the 9th of June. I will be glad to get it over with but do not look forward to the recovery time. I will be having open style surgery. I have been told that the cut can be from 6 to 14 inces long. that is a big cut of an old man. I have seen the support from this site help me so much and will do what I can to pass on good thoughts to all who are looking at the same thing I am.
thanks for the support.

Jess

icemantoo's picture
icemantoo
Posts: 1658
Joined: Jan 2010

Jess,

Best wishes on your surgery. The scars are like a fish story. They grow every year.
,

Icemantoo

candoredo
Posts: 44
Joined: May 2011

Icemantoo
That is so true,,, It may not be anyway near that large, but you havent seen my surgeons hands HA HA I am really in hopes that it will be as small as possible. but I am not going to worry about it, it will heal. Thanks for you thoughts

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

I had my right kidney removed in April and the wait before surgery was driving me crazy all the what ifs. I be thinking and praying for you if its alright. Hang in there and good luck keep us posted.

Darryl

candoredo
Posts: 44
Joined: May 2011

Thanks Darryl I have been re reading your posts about your surgery, so i know you went thru the same thing I am now. The waiting is the worse part of it I think. This will be my second go at RCC, the first one was a piece of cake. it was done with cryoablation on a small tumor about 2 cm, then this one showed up as the other one died off. This one is about the same size but the doctor wants to do this one by open surgery. I guess so he can eyeball the kidney to check for more or something. It will be a partial I hope but he will have to make that determination when he gets in there. He has been a good urologist sergeon and talks to me about what to expect.
I want to tell you everyone on the board how much help and encouragement you have been to me. A place like this helps us all express our concerns to others that have had the same experiences, and helps relieve some of the flustrations we have. Thanks again and I will keep posting as soon as I can after the surgery.

ejneary's picture
ejneary
Posts: 64
Joined: Mar 2010

Surgery is no walk in the part but the amazing thing these days is that anesthesia is so powerful and targeted that they make you very comfortable. Between epidurals, general and post operative doses, you should have no to minimal pain. Once you are released, you will be on a cocktail that should work very well for you.

Of course, there will be some pain and discomfort but that will fade with time. My most irritating complaint is the tightness in my incision even aft 1.5 years. Coughing and sneezing always make it worse.

Good luck with your surgery and remember to keep up the fight!

John

candoredo
Posts: 44
Joined: May 2011

Thanks John I know that the pain meds are great at taking care of the pain levels. I am sorry that you are still having some pain from your surgery after 1.5 years along. I hope you get that resolved soon. MY concern is because I am also a diabetic and know that healing takes longer with that. The relief that this cancer will be gone soon is my main concern. So I am looking forward to having it over with I can endure the pain for a while to know I dont have that monster inside me any longer. Thanks for all the encouragment. Good luck with your pain levels.

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

good luck with the surgery. I know what you mean about just getting it over with so that the healing can begin. I, too, am a slow healer because of one of the meds I have to take for something else. It sucks, but we do eventually heal.

I hope you stock-piled some comfort foods at home for when you leave the hospital. Might as well enjoy your recovery!

candoredo
Posts: 44
Joined: May 2011

Thank you Jamie, I go today to stock pile the goodies, This will be the last thing I do before I go to the hospital. I have my room set up and ready for me too. I am planning on making myself as comfortable as possible. Getting up and down is my main concern for home but I will figure that out real fast, I dont like pain, "IT HURTS ME" Thanks for the good wishes .

jona187's picture
jona187
Posts: 74
Joined: Apr 2011

Good luck and speedy recovery

Try to walk after the surgery, it's important :) but don't over do it

suzika's picture
suzika
Posts: 12
Joined: Jun 2011

Good luck today! It will be a pain to heal, but, it gets better. Also, remember the line "Chicks dig scars!"

candoredo
Posts: 44
Joined: May 2011

I am just now ready to leave for the hospital. Thank you each and everyone for you thoughts. I will be home by saturday I hope, so as soon as I can I will give you a report on the events of today. Each of You enjoy your day, and again thanks for your support.

Jess

icemantoo's picture
icemantoo
Posts: 1658
Joined: Jan 2010

Jess,

That wasn't so bad, was it? Wait a few days before you answer that question. Welcome to the club. Best wishes for a full and complete recovery.

Icemantoo

candoredo
Posts: 44
Joined: May 2011

Icemantoo a webcam might be a good idea. The doctor said if i didnt slow down he would order chains.LOL but a webcam would be easier.
Thanks
Jess

candoredo
Posts: 44
Joined: May 2011

Icemantoo a webcam might be a good idea. The doctor said if i didnt slow down he would order chains.LOL but a webcam would be easier.
Thanks
Jess

candoredo
Posts: 44
Joined: May 2011

I just arrived back home from the hospital, surgery went well was hollering to go home from the time they took me off the OR Table until they sent me home today. I was no picnic there and I am sure it is not going to be much of one at home either. but I have made up my mind to follow the doctros orders. I was making laps around the nurses station by yesterday morning, a regular speed demon step ouch step ouch. Not really so bad. incission was 11 inches long. and lots of staples. but the pain levels were well controlled after surgery. I had a pain pump which I didnt use too much afer recovery rooom. The nurses tried to encourage me to use it more. but if I didnt need it I would not use it. sorry for the gorey details. I kept the nurses laughing at me most of the time singing all the moon songs I could think of . Even told them to go get their boyfriends and have a romantic enening with the moon bing full tonighht. HA HA HA HA I hope that anyone who goes thru this can feel certain that if you do what you are told you will heal KEEP your chin up and stay positive. I hope that eveyone has as good a result as I did.
Thanks for you support.

ejneary's picture
ejneary
Posts: 64
Joined: Mar 2010

I woke up in recovery so happy to be "Waking up" that I started singing the Folger's song "The best part of waking up, is Folger's in your cup". Then I asked them to wheel me across the street to the hamburger joint because I was SO hungry!

Wait and see how things go at home. You will be in some amount of pain for a while. Make sure to rest when your body says rest. Stay on top of the pain with meds. DO NOT wait until you need them or it is too late. Take them as directed for at least 3 - 4 weeks then see if you can start to pull back on them. Withdrawl wasn't too bad for me from the pain meds but stabbing pain was when I tried to stop the meds too soon.

Make sure to get into see your oncologist in that period of time. If they haven't referred you yet, insist on it. They are the ones who will be watching you longer term.

Take Care!!!

John

candoredo
Posts: 44
Joined: May 2011

Thanks for the advice. I have found it is easier for me to sleep in my lounge chair and easier for me to get into and out of now. Surgery was Thursday morning and I was released Saturday morning. The residents at the hospital just could not believe I was walking the same day as the surgery and was cracking jokes at the staff by Friday morning. they said most people are in luppy land until the second day. I was put on regular diet by Friday morning. so was not hungry at all. but when I woke up in recovery I was asking for food too. even fussing cause they would not let me have anything but ice. That sure is filling. Had the best nurses in the world which made me so much better on healing so good so fast. And made me have a better attitude, here at home I have to watch I get so impatient, it is the pain meds that make me like that, so I hate to take them. but believe me I am doing everything the doctor has said I sure dont want to go back in. My best advice to anyone who has open incision surgery get a lift chair it works wonders. Thanks for the support
Jess

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Glad that your home and healing and all went well. Sound like you doing the right things I would only add listen to your body rest when you have to. Easy does it. Heal well God bless.

Darryl

candoredo
Posts: 44
Joined: May 2011

Today is day seven after surgery. Pain levels are low, I am still very easily tired. I cant do all I wish to do. The body knows what it will let you do, the brain says you can do anything sometimes, SO LISTEN TO YOUR BODY. With the open incision I had (12 inches long) they spread the 11 and 12 ribs and that is the most pain I have even now. To anyone who is going to have this type surgery I reccomend you get a lounge chair for the first few day home, you will have an easier time of getting up and laying down. I felt very fortunate to have a lift chair for arthritis in the house and it worked great. As of today I can get in and out of bed with little to no pain level increase. I guess each of us find our own way of dealing with the daily ups and downs. I have had a good journey albeit a painful one sometimes. I do not know if anyone else has had the experience of not being hungry, but I did and as a diabetic I had to force myself to eat to maintain my sugar levels. Sometimes it was hard to eat, all I wanted was liquid food.
Please keep strong, hold on to your faith, and keep smiling, these things will pass and you will heal. The support of the people on this site have given me strength and encouragement. They have answered many of my question I had befor surgery and helped me to over come the comming home things too. To each of you I say a big Thank you.

DarrylPe's picture
DarrylPe
Posts: 75
Joined: Mar 2011

Hi. I had the same feeling after my surgery. I couldn't even look at food including my favorites. I did manage soup and bread for the first week and alot of water. my doctor said that it was normal and my hunger would come back gradually so don't worry . Best wishes God bless . Keep posting it's good for your health too.

Darryl

Katielynn
Posts: 61
Joined: Apr 2011

Hi candoredo,
I totally agree with the necessity of a Lazy Boy type chair. I couldn't dream of lying flat that first week....it was a lifesaver ;-) I too am experiencing some rib pain that I hadn't noticed until about 2 days ago...Had my surgery on June 2nd.....all the swelling is down....hope this is a normal thing...It's mot a constant pain buy a twingey kind of pain every now and then.......Otherwise today I'm feeling even better than yesterday...Keep us up to date on your recovery, it's good for new people to read that there are good endings to these stories....We are both lucky individuals....You're right, keep positive and keep holding on to your faith..Have a great day

candoredo
Posts: 44
Joined: May 2011

Katielynn. Yes posting here has helped me a lot, others stories have given me the ability to undergo this surgery with little worry. I still have some swelling too and yes the ribs still hurt some. I am sure it will be gone soon with some, it takes a bit longer but this too shall pass. my upper back seems to hurt more than the incision site ever did. I had a good surgeon and feel that I am blessed to have had him do the surgery. He even cant believe that I am up and about as much as I am. yes I am very lucky to have had the recovery that I have had so far. Keep strong.
Jess

candoredo
Posts: 44
Joined: May 2011

Well Happy Father's day to all Fathers. It has been 10 days since my surgery. I have little pain but mostly discomfort. I was wondering if anyone had probelms with the staples they used instead of stitches? They seem to be loose and irritating, has anyone else had that problem? I am still wearing the binder to lay down makes it easier to get up and down from the bed. they seem to be pulled by the movement of the binder. ifyou have a solution let me know.
everything else is on schedule I think. still not eating much at a time and food doesnt even smell good to me. Being diabetic I have to eat or my sugar will get too low, so I am eating mostly fruit and liquids. So far the worse part of the ordeal has been the not knowing before the surgery, and waiting for the surgery. Good luck to all who have to go thru this family support is very important.
Thanks to all for your support and good thoughts.

candoredo
Posts: 44
Joined: May 2011

well I got the staples out today all 40 + of them. only had about 6 that were grown in and hurt, when they were out I felt so good. got the path report today too all was good tumor was totally encapsulated and was removed. I was told that I would be able to drive again in a week, so no more sneaking off to have a hot fudge sundae. being able to drive again will be like setting a caged bird free. my desire for food is still low and am really having to watch my Blood Glucose levels they have fallen to bad lows over the last few weeks. I am hopeing that everyone has as quick and easy time with recovery as I have had so far. this site has given me strength that has helped me get to this point, without your support and good thoughts i am sure it would of been much worse.
Thank you all so much

Jess

ejneary's picture
ejneary
Posts: 64
Joined: Mar 2010

They used adhesive and steri strips but it was uncomfortable all the same. The wound site will constantly remind you that it is there and the combination of pins and needles as well as referred pain in your back and stomach will cause you to jump when you lay on it wrong or when your clothing hits it wrong at times... This is truly the gift that keeps on giving for years. It gets a LOT better over the months but even now a year and half later, when my oncologist probes my abdomen near the wound, I jump! I have to remind her to be gentle...

I hear you regarding driving!!!! Since my oncologist was worried about pulmonary embolism, she asked that I drive to treatment. I live in the SF bay area and the treatment was given at Kaiser in Riverside CA (7 hour drive). Now, I love road trips and drive the entire way down but they would not let me drive home and I went nearly stir crazy on the way back!!! I also believe that there is a component to kidney cancer in particular that causes a reaction to lack of driving!!! Almost a secondary effect....

Congrats on the staple removal and enjoy that Sundae!!!

John

candoredo
Posts: 44
Joined: May 2011

John Staples are better then stitches in my opinion, but again what do I know. when they remover the staples they applied the steri strips so I have had or do have both now. At least the steri strips dont pull and stick like a stich or staple but I still know it is there. I know the worries of pulminary embobisms and I walk as much as I can to help prevent that from happening. sitting for hours in a cramped airplane is the worse thing you can do and has been known to cause them. driving is a way of life here in the country if you want anything you have to drive to get it, it sure is too far to walk. So just 3 more days and I will be able to drive anywhere I want to or feel like I can. I hope all is going well with your surgery and recovery.

candoredo
Posts: 44
Joined: May 2011

I just returned from lovely downtown Dallas, what a nightmare, saw the surgeon and got some good news. All is healing well, inspite of my not taking as good a care not to do the things I was not suppose to do, I still have some restrictions, but most are minor and I think I can live with them. I have had one set back from overdoing things. I learned a very valuable lesson with that one. DONT DO WHAT THEY TELL YOU NOT TO DO or you will have pain. I spent 2 days in bed nursing the pain. The swelling and hardness is all gone now. I wear the belt when I ride in a car and do long walks, the rest of the time I go with out it and do well. I hope everyone is healing fast and doing good. Keep the good thoughts and stay happy and healthy.
Jess

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

Wow, Jess, I didn't know you were in Dallas. I think we missed each other in the hospital by 2 days! Were you in Baylor? I was. 12th floor.

I stopped wearing the binder pretty early, as it was bothering both my staples and my hernia.

Right at 6 weeks post-op, just when I expected to be feeling much better, I had a set-back, too. It feels like I broke my ribs. Horrible pain, but above the incision. I would expect rib pain right under the incision, but this feels like a couple ribs up from there. I go back to the urologist on Monday to see if they're broken.

I too have been pretty active, which is likely what got me in trouble. -- Going into work part-time since 3 weeks post-op, cleaning the house, driving everywhere, watering the plants, walking in the pool....

Driving is uncomfortable, but a must for me, unfortunately.

candoredo
Posts: 44
Joined: May 2011

Yes Jamie I was at Baylor on the twelveth floor room was 1203 I think. Surgery was June 9
I left the hospital on the 11th. my pain was in the back above the ribs they spreaded out too. My Doctor (Schoenvogel) said yesterday that things were just resetteling in place. Of course tending to my mini horses doesnt help much at my age. but I have been careful not to get too close to them yet,and the fall I took 6 days after surgery didnt help much either. Oh by the way if you were there when I was I was the one walking around the nurses station singing all the moon songs I could think of. I still wear the binder when I drive, the vibration makes me hurt, and that is about all I wear it now. I hope you are doing well and healing fast. Do you get tired easy? I do even now. The doctor told me that I take the prize for fast healing he hasnt had a patient that went thru this to heal this fast. I dont know what that means but he was supprised might be my age too who knows. you take care of yourself.

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

I went into Baylor, room 1238, on Monday June 13 and left on Thursday. Two days after you left! I too did many laps around the nursing station, but sans the singing. : )

It's good to hear that you're having similar pain. I was wondering if it was "normal." They have said all along that my healing has been fast, but with this recent pain coming back, I'm not so sure.

I just want to feel better faster!

candoredo
Posts: 44
Joined: May 2011

well when I got home i think I just refused to accept the fact that I had major surgery. I over did and suffered the pain. The rib pain I blamed on the fall and then overdoing too. but from what the surgeon said to me that it was normal as the organs repositioned themselves to have this pain. I have pain meds on hand but i havent been taking any unless I am really in pain. I have a very high tolerance for pain so I can do with out them. I feel for you having so much pain and hope that you have made an appointment to get it checked. We are stronger than this condition, and we will win. stay positive and keep the good thought. I wish you the best.
Jess

candoredo
Posts: 44
Joined: May 2011

I had my 12 week CT scan for post surgery, I was more anxious about this test than the surgery. Now after getting the results form this CT Scan I am very relieved, no sign of cancer left in or around the kidney. I breathed a big sigh of relief. now I will have to have these ct scans for the next few years. But I am very happy with this one.
Thank you all for listening to me and giving me support. This was a tring time for me, I was helping my wife thru her cancer treatments and then to find out about mine. So I thank each of you for listening to my rambelings.

Katielynn
Posts: 61
Joined: Apr 2011

I am sooo happy for you. Never think that you are rambling....this site has been a lifeboat for all of us. We understand each other better than anyone else possibly could. Enjoy your good news, again I'm so happy for you :-)

candoredo
Posts: 44
Joined: May 2011

I

Another1bites back
Posts: 14
Joined: Oct 2011

How did everything turn out?

candoredo
Posts: 44
Joined: May 2011

surgery is now nearly 5 months behind me now and I had a CT Scan in Sept that showed nothing left behind, and the surgeon tells me that I am healing better than he has seen from anyone who had this same surgery. So I am happy and able to do anything I feel like I can do. I hope that anyone who goes thru this same surgery has a good luck as I have had so far.

Minnesota Girl's picture
Minnesota Girl
Posts: 115
Joined: Jul 2011

Congrats on the clear scans - that's great to hear. I'll have my first one next month.

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