Jun 02, 2011 - 11:13 am
Had TT in Sept 2010 along with 3.75 parathyroids removed. Had papillary cancer in both lobes of thyroid, but was not outside them, stage I. Had RAI in October 2010 with no "hot spots" detected on body scan. Was on 125mcg of Synthroid after surgery; last testing of TSH in March was at 0.040. Then Endo changed my Synthroid to 100mcg (I'm still currently taking). Although the Endo says my TSH is not suppressed, don't the numbers indicate it is?
My leg muscles tend to get extremely tight feeling and stiff. I'm wondering if it's due to the low Synthroid dosage. After reading many forums, it seems like my low dosage is not the norm. Now I'm thinking this low dosage is causing my muscle tightness, low energy levels, and fatigue. I've been told it takes a long time to feel "normal" again and maybe my patience is wearing thin since it's been nine months since surgery.
My endo says he prefers another RAI follow-up one year later. I believe I'm in the low risk category and having doubts about getting the second RAI.
Would like to hear from others on the subject of low dosage Synthroid and/or suppression.