I have read many of the stories throughout the discussion board and it seems everyone I have read states that people had between 2 weeks to 6 weeks radiation treatment. Did any of you have 12 weeks of treatment? I started my treatments towards the end of March and those treatments continued to the end of June. 5 days a week, 4 sides(front, back, and both left and right) each time. I had what was considered to be a new chemo treatment through this also. I don't remember how many times I had the chemo. I just remember the put the port in and left it in until I was done with all the treatments(chemo and radiation). Let's just say, the radiation doctor and his nurse gave me a certificate when I completed treatment because they said they rarely give someone as much radiation treatments as I had.
It all just makes me curious as to how much radiation everyone had because here I am 3 years out from when I began my treatments with medical difficulties still and I am only 44 years old. I know my doctors told me I was the worst they had ever seen of someone with cancer and still up and moving on my own, and they were going to use my tumor to help teach others, etc. (my tumor was approximately 14" long and varied between 1" and 3" around).
Anyhow, I still have bleeding issues, pelvic pain problems, and digestion issues. Among other things. They told me I have radiation proctitus and that it takes 10 years to clear out of the body, and sometimes never does.
The doctors and I were able to figure out that the reason I lost most of my hair was because of a drop in vitamin B. (the chemo treatment I had was supposed to let me keep my hair). It is just now after all this time starting to come in as thick as it used to be, but it is still not quite as thick).
The main reason I am asking this of everyone is because I still have problems getting around...Standing is so difficult still and walking for more than a short distance is out of the question also. I hate that we have to look for the closest spot to drop me off now so I can get to where I need to be. When I go somewhere I am not only scoping out for the locations of the bathrooms because of the problems I still have but for closest places for me to sit down if need be(which usually is not too long off). I do dishes, sweep the floor, etc, all from a sitting position or in sections if I have to stand. (that way I can clean an area, sit down and give my body a break before I go back and do it again). The pain can be so intense at times, and my doctor just tells me to take an aspirin now, cause he doesn't want me to rely on pain meds. (even though I weened myself off of pain meds within 5 weeks after all my treatments stopped). How much pain meds did the doctors have me on? 260 mg of oxycodone once a day, 60 mg of oxycodone every 4-6 hours, 20 mg, of flexeril twice a day, 30 mg oxycotin twice a day....I think that is all of them...there were so many and it has been a while.
Yes, I have taken PT also. Many times...it has helped, but it doesn't resolve all the problems.