May 27, 2011 - 3:27 pm
I was just diagnosed with level IV glioblastoma this week. It has taken the hospital six months to get this diagnosis; it scares me that the whole time they were testing me this thing has been growing in my head. It is too deep down within the motor strip to be operated on and we have been searching for alternate treatments for months now.
It is now the tail end of May, 2011, and they have been doing tests on me since December! Finally last week they did a biopsy and the dismal results are certainly not were hoping for.
I'm drinking herbal tea concoction prescribed for me by a Grand Master in ancient Chinese medicine. It tastes and smells very foul, but I'm assured it is designed to break up the mass in my brain and flush it through the bloodstream by using an increased blood flow to the brain. I had been drinking this tea for two weeks, and no new symptoms have occurred- nor have any of my old symptoms gotten worse.
Of course nobody knows where this will take us. For right now, I can still walk although I need to use a quad cane. My left hand is paralyzed and my left arm will barely move. I wish I had started drinking this Chinese tea months ago, when they were still trying to figure out what was wrong with me.
My first appointment with oncology is next week. Can somebody please tell me what to expect from radiation and chemo? I am sure every case is different but nobody in my family has ever had this type of treatment and I would like to know what I can expect.