I also am looking for survivors of this disease. My husband of 36 years passed away in March. He was 62 and very healthy. The doctors thought he had pneumonia, therefore, he was not diagnosed until he was stage 4. He was in remission on his way to a stem cell transplant and they kept him in the hospital. He died 8 days later. The cancer was back in his spleen and skeletal area, his liver was not functioning properly. They say this cancer doesn't typically go to the liver, but his did and didn't show up on the Scan. He was diagnosed last May and almost made it. it is very difficult to find information on this disease.
Joined: Jun 2011
I also am looking for survivors of this disease. My husband of 36 years passed away in March. He was 62 and very healthy. The doctors thought he had pneumonia, therefore, he was not diagnosed until he was stage 4. He was in remission on his way to a stem cell transplant and they kept him in the hospital. He died 8 days later. The cancer was back in his spleen and skeletal area, his liver was not functioning properly. They say this cancer doesn't typically go to the liver, but his did and didn't show up on the Scan. He was diagnosed last May and almost made it. it is very difficult to find information on this disease.
Joined: Jun 2011
Have you found anyone? I am looking also.