May 22, 2011 - 5:47 pm
Hi ladies. I started Tamoxifen very reluctantly after lumpectomy and radiation for one spot of DCIS that was grade 3 (aggressive). Oncologist said to try it and stop if I didn't 'like' it. Radiation oncologist said don't bother with it as it would cut recurrence from only 14% to 7% . My new gynecologist took pity on me and prescribed Effexor since I had 2 drenching hot flashes while in her office ( I stuck to the soggy paper cover on the table and shredded it! Embarrassing!). At 75mg it helped but didn't stop them. And there were leg cramps all day long.
But the killer was the endometrial polyps. Will have them removed next week for the second time in less than a year!! So my oncologist agreed with my gynecologist that I should stop the Tamoxifen. "Oh frabjous day, callooh, callay", I chortled in my joy.
In our 'where do I go from here' discussion he indicated that the AIs have their side effects also, of which I feel well informed due to reading these discussion boards. I already have a little arthritis that comes and goes (I live in warm desert) so we both felt AIs were not a good idea.
The trick is, he said, to have mammograms every 6 months of affected breast and 1/year of non-affected breast AND ultrasounds every 6 months in between the mammos because I have dense breasts.
Every one of us has different treatment to suit our needs, the nature of our particular beast, and our personalities. I suppose I could have a hysterectomy but I am willing to keep my organs, then be extra vigilant (costs $$$$) about the imaging instead. Does this sound reasonable to you?
Has anyone regretted stopping the Tamoxifen due to recurrences?
Thanks for sharing. ~~Connie~~