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anyone with swollen eyes/bridege of nose?

sleepless in jersey
Posts: 185
Joined: Feb 2011

Anyone with swelling around eyes and nose and even water sacs above cheek bones?
Mom's off daily decadron only takes it the day before and the day of treatment.(taxotere) Im afraid this is making her discusted and is not going to want to continue. She's embaressed by the way she looks now.

They said it was from the steroid when she was on it for 4mos now is not on it daily and it was going down and now back up and with a vengence.

Any thoughts would be great...thanks

ButterflyLake's picture
ButterflyLake
Posts: 44
Joined: May 2011

I remember it caused swelling for my mom too. It's a nasty, but effective, little medication.

sleepless in jersey
Posts: 185
Joined: Feb 2011

Thanks for your quick response...

mmt366
Posts: 33
Joined: Apr 2010

Sleepless,
My wife experienced the same swelling, especially while she was on taxotere and taking steroids. She was a bit self concious at first, but realizing it was a necessary evil she accepted the side effect. It did eventually go away though.
Hang in there!

mmt

sleepless in jersey
Posts: 185
Joined: Feb 2011

Thank-you I will share this with her...The nurse practioner keeps blaming it on the steroids and we had a good idea it was the chemo.
My prayers are with you and your wife.

sleepless in jersey
Posts: 185
Joined: Feb 2011

We had seen the Onc. yest. and she was very concerned with the amount of swelling around Mom's eyes, nose and has little water bags under her eyes. Oh also the redness on cheeks (almost a bad sunburn look) her sugg. was to add the Decadron back on the day after chemo. So the day before the day of and the day after and she also will call her Periodontist to get her off Doxycycline b/c that could be effecting the taxotere.
We dont have much hope with the extra day of steroid, but hope to see a change if she's able to get off Doxycyline.

The Onc. cant figure out why no swelling anywhere else ankles and belly are fine.

Did your wife have lose of appetite on this as well? Mom has not much and lost 5 lbs so far.
Thanks for your help and lots of prayers for everybody!

mmt366
Posts: 33
Joined: Apr 2010

Sleepless,
Yes she lost her appetite and she was petite to start with but she was able to maintain a steady but lower weight throughout. My wife couldn't escape the red cheeks while on decadron.

Hang in there Sleepless, we will be praying for you guys.

mmt

mmt366
Posts: 33
Joined: Apr 2010

Sleepless, my beautiful wife passed away on May 31 after a couragous 20 month battle with NSLC. She / we tried everything possible from conventional treatment to radical clinical trials. My wife was able to be home the entire time and my daughter and I have some very, very special memories of our time during hospice. I understand what you are feeling and what you must endure, but please know there is always an exception to the rule. remain strong and play this hand out under your terms..fight this beast! do it for My wife, do it for yourself and all the others.

Continued prayers and good thoughts.
mmt

grannylove
Posts: 183
Joined: Apr 2011

So very sorry for your loss. It is never an easy road to travel. God bless you and your daughter during this difficult time. Hugs and prayers go out to both of you.
Cheryl

sleepless in jersey
Posts: 185
Joined: Feb 2011

Im so sorry mmt...I know she gave the beast one hell of a fight! She's at peace now...
I hope you and your daughter tried to have a good day yesterday for fathers day.
We will continue to fight for your beautiful wife and for herself!!!
God Bless you and your daughter.

mmt366
Posts: 33
Joined: Apr 2010

My daugheter, son-in-law and the grandchildren brought me to a brunch, then back to my home where we shared stories, laughed and smiled. Just what Linda would have wanted and enjoyed herself. it's already been 3 weeks ( tonight) but I still feel her, smell her and even hear her....weird, but true! Anyway, i have gained lots of experience over these past years, so please feel free to ask for advice.

All the luck to you and yours.
mmt

also thank you to the others who have wished me well.

sleepless in jersey
Posts: 185
Joined: Feb 2011

I wish it was a book that I was reading to my husband that made us so teary-eyed while I was reading your last post mmt. I dont know what to say, but I/we are here for you. I hope you continue to have lots of laughs and smiles from all the stories you will be sharing with your grandchildren...
It sounds like you had a nice Fathers Day im happy to here that.
I hope I can ask you for advice as long as its not to hard for you?
Big hugs your way...

mmt366
Posts: 33
Joined: Apr 2010

Sleepless, I have lot's of experience to draw on and i would not mind sharing it with you and others. It almost feels like a fictional story sometimes because it has definately not fully registered yet. There are many success stories on this site and I consider my wifes story one of them. She may have passed away, but she beat cancer! She is not in pain and I need to believe she is in a better place.
Keep up the fight, I look forward to sharing your positive experiences and will be there for the "not so positive" if you wish to share those as well.
Either way, I wish you continued progress agaist this beast.
All the best,
mmt

sleepless in jersey
Posts: 185
Joined: Feb 2011

Just seeing how you are doing?

Im so trying to stay positive around Mom, but I feel like it just gets harder and harder. Especially Dad he holds it all in and doesn't say to much. He wants to take Mom away for her 61st Birthday Aug.2nd just doesn't know if its a good idea...she now is getting sick more frequently, lots more fatigue and now she just showed me her RT. arm (we think is one of the side effects of the taxotere that we were warned about) the darkening of one vein so far where she got her TX last week.
They nolonger give her orally Decadron and last week was the 1st time they reduced her Dec. from 10mg to 4mg so her face didn't swell and the redness was also good as well. Do you think theres a great posability that do to the reduction of dec. she's reacting the way she is? Ok ya know how ya write things down and you see things more clearly, well I think I just answered my own question! Just called Dad and its 6:46am to share my thoughts and he's going to talk to the nurse practitoner before her TX this morning to discuss it.

Hope to talk to you soon...

Hope4Marge's picture
Hope4Marge
Posts: 74
Joined: Jul 2011

I am so sorry for your loss.

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