May 16, 2011 - 9:17 am
I traveled to SC, 320 miles to go to my endocrinologist for my five year scan. My previous scans have all been clear, but I was doing the atkins diet which I just found out may have given me false scan results. I did a low iodine diet against my Dr.'s orders to see if this one would be any different. My follow up appointment was scheduled with her PA without my knowledge. I have been asking questions about my labs (to the nurses since I am unable to get through to her by phone) and they have not been able to tell me what my TSH levels were in the past. Since joining these discussion boards I have alot of questions for my endocinologist. I have a rare form of thyroid cancer, hurthle cell. I really want to see my Dr. not her PA. I am sure the PA is good, although I saw her once and really wasn't happy with her, but I feel that if this is my final scan for five years, I want to hear it from my Dr. that I have seen in the past. I want her to answer my questions. Now to find out it will be a month and a half before she can see me. I have alot of issues going on and cannot wait that long for answers. I have requested a phone conference, or for someone to tell me my results and make the changes in Synthroid that I know they are going to make, then also give me a complete copy of my records and I will go to a Dr. in Florida. I have found one person who lives near me in FL that has hurthle cell cancer and I feel that if we see the same DR. maybe it will help them learn more about Hurthle Cell cancer. I am so frustrated right now. I am sitting on pins and needles awaiting another call from the nurse about my request. Although I have had the two nurses in that office tell me different things, like one telling me to stop the synthroid before my scan and the other telling me not to stop it...I am so confused and am beginning to think that they are confused as well.