May 15, 2011 - 8:50 pm
Short story 31/f married to 64/m with Parkinson's Disease and Cancer of unknown primary. Both are being treated by the dept. of Veterans Affairs Medical Center. I am so damn sick of the run-around the VA gives that I want a second, independent opinion....problem...no insurance outside the VA, and the VA won't give us a fee-based consult with MD Anderson, instead, they just want to keep trying MORE meds, even though, by their own admission they have "never seen this before" and are not sure what it is. So far, we have done CHOP Chemo, Radiation, and now have started Tamoxil. (Last thursday), So yesterday night, my husband became delusional....off to local ER...no known cause for that either...so now I get to deal with THIS insanity on top of his physical illnesses. I am scared tyo death he is dying, because all I can find online about delusional states and Cancer indicates it as an end of life symptom...his family lives 16+ hours away, and they do not have a positive relationship, so I don't expect any help there, just demands for money/possessions. I have no family, so no help there either. My Husband does not want any outsiders (hospice/visiting nurse) at our home, and now he can not be left alone for even 10 minutes....I am IN HELL! Seriously...I almost wish I were dying just so my life could be someone elses' problem...oh, and btw...I am the legal guardian of my MIL who is 85 and has alzheimers...see what I meant about no family support?