May 14, 2011 - 11:56 am
My 47 year old husband had a suspicious blockage of his small intestines three and a half years ago that ended up being a small acorn-sized clear cell sarcoma. It was removed, and he was watched for almost two years and then another fist-sized one showed up in its place. Went to IU (Indy) and met with specialist who recommended 5-6 rounds of two different types of chemo. Tumor (amazingly) shrank and it was removed, along with two and a half feet of small intestines, at IU in December of 2010. Complications from surgery, inability to gain weight, went in for another bowel resection in March of 2011, and unfortunately, scans showed that sarcoma was back in liver and on the outside walls of small intestines. Getting ready for second round of chemo next week. Just beside ourselves. Anyone out there that we can communicate with? I am a heart patient myself and have had lots of others to talk to, but he has no one. We really need to hear from others. Thanks to all of you who respond.