May 13, 2011 - 4:50 pm
Hi there: I'm a thirty-year-old who is caregiving for my mom. She was diagnosed with Stage IV Lung Cancer, with Brain Mets, in July 2010. It was very unexpected. She went through emergency brain tumor removal surgery and treatment that was so aggressive (whole head radiation, followed by simultaneous chest radiation plus weekly chemo), she was incapacitated. She went to rehab after treatment and picked up a C. Diff. infection. She has been in hospice house since the first week of march, and has made a huge turn-around. This is wonderful, but I don't know where to go from here.
She needs full-time care. She cannot return to her two-story home. She cannot live with me, as there is no room for medical equipment. She doesn't qualify for medicare (too young) or medicaid (makes over 2K/month in disability). 2K a month does not come close to covering private care for her.
I am her sole caregiver. I've lost my job and am greatly in debt due to caring for her. My husband's income can't support us. I'm just at a loss. Does anyone know of any resources that can help us? I've looked online, and have had no luck. We're really between a rock and a hard place.