Feel remarkably well - day after first Cytoxan/Taxotere chemo - others felt well too? when does it h
I read about some of you here experiencing extreme fatigue and joint pain after your first round of Cytoxan and Taxotere. Did you feel pretty much great until it just suddenly "hit you"? Im 24 hours out and still feel well. Have a very slight headache, and feel like my the tip of my tongue is burnt like I drank a hot beverage prematurely. But that is pretty much it. I have been hydrating like crazy and eating text book "chemo phase foods". Have a fluid IV appointment with my MO-clinic this afternoon, but the nurse told me I could call it off if I feel well. Think I will do that.
Anyone has an idea of when I will start to feel bad? I almost feel guilty for feeling so good! (might have to eat those words)
Eva
Comments
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We are each so different
You may not feel bad at all.
It hit me 24 hours after the neulasta shot which would have been day 4. I got treatment on Friday morning, had the shot on Sunday morning--would go to sleep about 4 hours later and would wake up on Monday aching. By Tuesday I would have trouble walking and then on Friday I usually felt ok. Taking tylenol helped a lot, but my onc would not let me take it after Tuesday so that I could monitor my temperature, so I would take Oxycotin at night. I worked everyday (as a bookkeeper) except treatment day and then either the following Monday or Tuesday when I would just stay in bed.
That was only my experience, others didn't react the same way.
Good luck,
JoAnn0 -
Thanks for the reply, JoAnn!joannstar said:We are each so different
You may not feel bad at all.
It hit me 24 hours after the neulasta shot which would have been day 4. I got treatment on Friday morning, had the shot on Sunday morning--would go to sleep about 4 hours later and would wake up on Monday aching. By Tuesday I would have trouble walking and then on Friday I usually felt ok. Taking tylenol helped a lot, but my onc would not let me take it after Tuesday so that I could monitor my temperature, so I would take Oxycotin at night. I worked everyday (as a bookkeeper) except treatment day and then either the following Monday or Tuesday when I would just stay in bed.
That was only my experience, others didn't react the same way.
Good luck,
JoAnn
Thanks for the reply, JoAnn! This is very interesting. Im not getting the neulasta shot unless it is determined next week that I need it. Because I am so young (28), my white blood count should not drop too low and hopefully I will not need it. So this is what makes people tired then, and not the chemo itself? I had no idea about this. Many thanks for this info!
Eva0 -
48 hrs..Same chemo cocktailjoannstar said:We are each so different
You may not feel bad at all.
It hit me 24 hours after the neulasta shot which would have been day 4. I got treatment on Friday morning, had the shot on Sunday morning--would go to sleep about 4 hours later and would wake up on Monday aching. By Tuesday I would have trouble walking and then on Friday I usually felt ok. Taking tylenol helped a lot, but my onc would not let me take it after Tuesday so that I could monitor my temperature, so I would take Oxycotin at night. I worked everyday (as a bookkeeper) except treatment day and then either the following Monday or Tuesday when I would just stay in bed.
That was only my experience, others didn't react the same way.
Good luck,
JoAnn
I started having some discomfort in my knees and thighs 48 hrs after first chemo which was 24 hrs after the Neulasta injection....had my treatments on Mondays..started with diarrhea on Thursday...have some extra strength Immodium on hand, just in case...on Saturday night, late, I had severe muscle contractions in my chest and back...called the on call onc on Sunday morning for advice...this never happened again with the remaining infusions...I would lose my taste buds for about 6-7 days following each infusion...food didn't taste bad, it simply had no taste...I can honestly say, I never felt really bad after the first treatment...just tired...rested and napped when I needed to...
My hair, which I had had buzzed, started falling out EXACTLY on day 14...shaved it off the next morning...
Remember everyone is different!0 -
Thanks MAJW!MAJW said:48 hrs..Same chemo cocktail
I started having some discomfort in my knees and thighs 48 hrs after first chemo which was 24 hrs after the Neulasta injection....had my treatments on Mondays..started with diarrhea on Thursday...have some extra strength Immodium on hand, just in case...on Saturday night, late, I had severe muscle contractions in my chest and back...called the on call onc on Sunday morning for advice...this never happened again with the remaining infusions...I would lose my taste buds for about 6-7 days following each infusion...food didn't taste bad, it simply had no taste...I can honestly say, I never felt really bad after the first treatment...just tired...rested and napped when I needed to...
My hair, which I had had buzzed, started falling out EXACTLY on day 14...shaved it off the next morning...
Remember everyone is different!
I made a
Thanks MAJW!
I made a preemptive haircut myself, from 15 inches to 1 inch.
Thanks for sharing.
Eva0 -
Same cocktail
I, too, had 4 cycles of T/C. I felt pretty good after the first cycle. Had them on Friday and felt good until Sunday (steroids and anti-nausea drugs they give). Tired and achey the first week then OK. BUT, and again, not everyone is the same, the side effects got worse with each one. I was first told either 4 or 6 treatments. When I went in for my fourth and she told me this was the last one, I bawled like a baby! I don't think I could have done anymore.
I did not have to have the Neulesta shot for which I'm grateful after reading how difficult it is on everyone.
Oh yeah, like others said...lost the sense of taste; had diarrhea (Immodium did nothing for me...had to get Lomotil (prescription), hair loss.......
Hang in there, Kiddo!!0 -
Had A/C not T/C
I didn't have T/C I had A/C and it wasn't bad at all. I felt great for the most part through it. Was tired for 2 days starting 2 days out but it wasn't the all consuming EXHAUSTION that Taxol did. I could rest and feel better. Never had any pain or nausea. The only reaction to Neulasta was I went to sleep 2 hours (almost to the minute) after injection for 2 hours - that was it.
We are alklk so different that there is no way anyone can tell you how you will react - we can only say how our bodies reacted.
Susan0 -
Hang in there - we are all different
So I started my cocktail - the same as yours - on May 2 and by May 5 and 6 I was achy all through my joints. I drank a tonne of water and walked a lot as well as resting and by Monday May 9 was back to myself. I was amazed at how "regular" I was and recommend you get a good prep H cream to help out down there!
I am at Day 11 right now from my first chemo and feel fabulous. My blood results came back really good yesterday but the whites were down. I still have my hair but Day 14 is getting close.... :-) I still have my hair - I have not cut it off - don't want to - but the wig is ready to go.
Hang in there, drink lots of water - be positive and it will be over soon (that is my mantra!)
Margz0 -
Thanks for all the helpfulmargz35 said:Hang in there - we are all different
So I started my cocktail - the same as yours - on May 2 and by May 5 and 6 I was achy all through my joints. I drank a tonne of water and walked a lot as well as resting and by Monday May 9 was back to myself. I was amazed at how "regular" I was and recommend you get a good prep H cream to help out down there!
I am at Day 11 right now from my first chemo and feel fabulous. My blood results came back really good yesterday but the whites were down. I still have my hair but Day 14 is getting close.... :-) I still have my hair - I have not cut it off - don't want to - but the wig is ready to go.
Hang in there, drink lots of water - be positive and it will be over soon (that is my mantra!)
Margz
Thanks for all the helpful replies! I realize we are all different, but it just feels good to get a range of reactions, even if they are not statistics
So if I do well or bad, I can relate to one of you. That makes me feel better - and I am grateful for your sharing.
Interesting, so the steroids is "keeping me up" right now? And then I will crash? Taking my last steroid tonight. Did reduce the water retention as promised. I just drink and pee, drink and pee. Was even told not to come in for fluid IV as planned as I am doing so well.
Eva0 -
Again - we're each uniqueender said:Thanks for all the helpful
Thanks for all the helpful replies! I realize we are all different, but it just feels good to get a range of reactions, even if they are not statistics So if I do well or bad, I can relate to one of you. That makes me feel better - and I am grateful for your sharing.
Interesting, so the steroids is "keeping me up" right now? And then I will crash? Taking my last steroid tonight. Did reduce the water retention as promised. I just drink and pee, drink and pee. Was even told not to come in for fluid IV as planned as I am doing so well.
Eva
Steroids do keep some up - but not all. I had no sleep issues when on A/C but did on Taxol (had to use Ambien) - was on Dex (steroid) with both. I was on Dex for 2 weeks for head pain long after last Chemo and it didn't keep me from sleeping then either.
Steroids do make some want to eat everything they can find - but not all. I didn't.0 -
my experience
herceptin, carboplatin, taxotere were the drugs I took for my chemo and it knocked me on my behind. After about 5 days I woke with vomitting, fever, diarrhea, ache, pains. After calling the doctor I was admitted to the hospital 4 out of 6 times. I had no reaction to neulasta, which I took the day after chemo. please hydrate and pee, hydrate and pee it is so important, it was hard for me to do because i threw up all the time. but the doctor said it would make me feel better if i could just keep it down.
I am doing radiation now and hope that my skin doesn't burn, but I have a feeling that I will have a time of it.
good luck
marilyn0 -
Eva it's good to hear youwndringmnd said:my experience
herceptin, carboplatin, taxotere were the drugs I took for my chemo and it knocked me on my behind. After about 5 days I woke with vomitting, fever, diarrhea, ache, pains. After calling the doctor I was admitted to the hospital 4 out of 6 times. I had no reaction to neulasta, which I took the day after chemo. please hydrate and pee, hydrate and pee it is so important, it was hard for me to do because i threw up all the time. but the doctor said it would make me feel better if i could just keep it down.
I am doing radiation now and hope that my skin doesn't burn, but I have a feeling that I will have a time of it.
good luck
marilyn
Eva it's good to hear you are doing so well. My first chemo session went well too, I thought "oh boy this is going to be a piece of cake". Second treatment I felt more sluggish then the first, but treatments 3 & 4 made up for every thing. More nausea and fatigue, I was one of the lucky ones that avoided the "joint pain". Maybe all my years of walking helped me in that sense. Wishing you continued wellness in your remaining sessions.
Hugs,
Lorrie0 -
Thanks for sharing guys, Ibutterflylvr said:Eva it's good to hear you
Eva it's good to hear you are doing so well. My first chemo session went well too, I thought "oh boy this is going to be a piece of cake". Second treatment I felt more sluggish then the first, but treatments 3 & 4 made up for every thing. More nausea and fatigue, I was one of the lucky ones that avoided the "joint pain". Maybe all my years of walking helped me in that sense. Wishing you continued wellness in your remaining sessions.
Hugs,
Lorrie
Thanks for sharing guys, I really appreciate it!
My best to all of you too!
Eva0 -
Are you still feeling well?ender said:Thanks for sharing guys, I
Thanks for sharing guys, I really appreciate it!
My best to all of you too!
Eva
Are you still feeling well? I am having the same cocktail as you. I had treatment on Friday and felt good that day and all day Saturday. On Sunday morning I was exhausted. DH took me for the Neulasta and on the way home I couldn't wait to crawl into bed (so I am sure it was the chemo and not the Neulasta yet). I had an all consuming exhaustion which is almost impossible to describe. I felt better by noon on Monday and on Thursday the pain from Neulasta began. However I was able to control that with Tylenol and Motrin about every 3 to 4 hours. It only lasted until Friday morning. All week I couldn't handle the smell of food cooking and didn't have an appetite, but on Saturday, day 8, I was ready to make up for that lack of appetite for sure! I hope you are still doing well and never experience that exhausted feeling.
Nancy0 -
Thanks Nancy!BioAdoptMom said:Are you still feeling well?
Are you still feeling well? I am having the same cocktail as you. I had treatment on Friday and felt good that day and all day Saturday. On Sunday morning I was exhausted. DH took me for the Neulasta and on the way home I couldn't wait to crawl into bed (so I am sure it was the chemo and not the Neulasta yet). I had an all consuming exhaustion which is almost impossible to describe. I felt better by noon on Monday and on Thursday the pain from Neulasta began. However I was able to control that with Tylenol and Motrin about every 3 to 4 hours. It only lasted until Friday morning. All week I couldn't handle the smell of food cooking and didn't have an appetite, but on Saturday, day 8, I was ready to make up for that lack of appetite for sure! I hope you are still doing well and never experience that exhausted feeling.
Nancy
I felt tired
Thanks Nancy!
I felt tired today (my day 3) and slept a lot, but not as tired as you seem to have been. It seems from others posts that the neulasta shot hits people pretty fast. I will find out on Tuesday if I need the neulasta shot or not. Because I am young, I am expected to perhaps not need it. My scalp tingles when I sleep and food just tastes less. Husband made Kale for dinner and I think it tasted much more bitter than it is due to my messed up taste buds. Hey, overall I have absolutely nothing to complain about so far. I am so glad your appetite has returned! Stay strong and I will try to follow your lead
Eva0 -
Hi Eva,
When I had my first
Hi Eva,
When I had my first chemo (although it was cytoxan and andriamycin) - i was surprised how well i felt. I even went to a wedding the day after. About 3 days after chemo, though, it hit me, and I got tired & achy, on & off nauseous, and smells really affected me. The fatigue was the most prominent side effect that i had, though. It was also cumulative, so the farther i got into treatments the crappier i felt. I hope you continue to feel well!
*hugs*
heather0 -
Hi, I had 4 AC treatmentsHeatherbelle said:Hi Eva,
When I had my first
Hi Eva,
When I had my first chemo (although it was cytoxan and andriamycin) - i was surprised how well i felt. I even went to a wedding the day after. About 3 days after chemo, though, it hit me, and I got tired & achy, on & off nauseous, and smells really affected me. The fatigue was the most prominent side effect that i had, though. It was also cumulative, so the farther i got into treatments the crappier i felt. I hope you continue to feel well!
*hugs*
heather
Hi, I had 4 AC treatments and getting ready to have number 3 of 4 taxotere treatments. The first four I was more nauseous and couldn't tolerate certain smells, like hand soap, pop, weird things. Mine usually hit on day 3 and lasted 3-4 days. I was in my recliner alot those days. Since taking the taxotere & neulasta shots every day after. I've had a few side effects. red rash on hands, some blistering. The first taxotere treatment so far was the worst, but tolerable. Diarrhea was worst the first time as well. On my second treatment I had really itchy palms and inner arms, but benedryl worked right away, cream & pills. I've been active every day, I get tired in the evenings, but don't nap...just get a good nights sleep. I hope my last two go as well.0 -
Thanks for sharing girls!renee616 said:Hi, I had 4 AC treatments
Hi, I had 4 AC treatments and getting ready to have number 3 of 4 taxotere treatments. The first four I was more nauseous and couldn't tolerate certain smells, like hand soap, pop, weird things. Mine usually hit on day 3 and lasted 3-4 days. I was in my recliner alot those days. Since taking the taxotere & neulasta shots every day after. I've had a few side effects. red rash on hands, some blistering. The first taxotere treatment so far was the worst, but tolerable. Diarrhea was worst the first time as well. On my second treatment I had really itchy palms and inner arms, but benedryl worked right away, cream & pills. I've been active every day, I get tired in the evenings, but don't nap...just get a good nights sleep. I hope my last two go as well.
Thanks for sharing girls! The tiredness did hit me yesterday, and I slept most of the day. Today I am back to a 4 on my own "how I feel on chemo from 1-5 scale". Hm, so its the taxotere that gives people diarrhea? Thats a treat yet to come for me I guess. Someone said on day 5, that would be tomorrow.
Eva0 -
You know with me eachpoplolly said:EN-
My tongue did feel large
EN-
My tongue did feel large and I did have a few sores on it. Not too bad, though, but otherwise I felt pretty well the entire time.
You know with me each treatment brought on a different set of side effects My first brought diarrhea, the second brought bloating and the third and fourth brought nausea. My taste buds were shot and any liquid I drank tasted like I was drinking something thick like gravy. I am sure it was because my taste buds were shot and my tongue felt like it was swollen. I didn't have mouth sores but my tongues taste buds were inflamed. I gargled with salt water from the day of my chemo treatment though the first week of healing and that seemed to help me immensely.
For me, during that first week all that tasted good to drink was water and believe it or not chocolate milk. Anything sweet tasted yucky...
Lorrie0 -
taxatore
that is great you dont feel bad I actually started to get achey by the third day, my joint pain got bad on my fourth dose of it. I get tired and legs get weak. But everyone is different it seems, sometimes you get rashes, sometimes taste buds, you can of just see how your body goes. You hang in there.0
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