Life is caotic!!!!

jo jo
jo jo Member Posts: 1,175
in Breast Cancer #1
Hi peeps...finaly just checkin in to update everyone on my all my caos!
Well after 2 months or better, ive been to a few different specailist and im still at square one...ive stumped them all...no one has a glue whats wrong with me. I keep telling them im an odd one...maybe now they believe me...hehe! Thankfully its all visible side effects or they might think im crazy and lock me away!
I have so many side effects thats its to much to list but some of the main ones are dark brown honeycomb pattern lines all over my legs...they want to biopsy them taking chunks out of my legs to saying they want to just bleach my legs. When i ask what is causing this they say it could be an autoimmune disease to the iron in my body staining my legs...i just have to laugh about it all anymore.
Then another one is this abnormal sever cramping in my legs and feet. Ive been going thru this since chemo and told my doctors about it and now they think my muscles are deteroriating cuz its been going on for so long...so now im going to therapy for that and my frozen shoulder....wait this gets better.....
I seen my PS and she is in the process of scheduling me for surgery to redo my implant surgery cuz one fell and its causing me to much pain...life is good...hehe!
Well this is just a small version of whats been going on in the last couple months but i just wanted to keep it simple and to say hi to everyone and let them know im still around...so hi everyone...miss you all!

Comments

  • kim mom of three
    kim mom of three Member Posts: 26
    #2
    WOW! This must be very
    WOW! This must be very frustuating, but sounds like you have a great sense of humor. Im a firm believer that humor is the best medicine. I hope a diagnosis can be made so you can move forward in a positive fashion. Not knowing is the worst. It makes the mind think all sorts of crazy things.Take care! Wishing you the best! Kim
  • Hippiechick58
    Hippiechick58 Member Posts: 320
    #3
    kim mom of three said:

    WOW! This must be very
    WOW! This must be very frustuating, but sounds like you have a great sense of humor. Im a firm believer that humor is the best medicine. I hope a diagnosis can be made so you can move forward in a positive fashion. Not knowing is the worst. It makes the mind think all sorts of crazy things.Take care! Wishing you the best! Kim

    Hi Jo Jo, good to hear from
    Hi Jo Jo, good to hear from you! I'm sorry you are experiencing such horrid side effects. My mom has those brown patches on her legs. She's had them for years and they still don't know what caused them. Talk about frustrating! I love your sense of humor. I guess when you go through what we have to go through anything else pales in comparison! I hope you get a dx soon! Hang in there, sister!

    Be Well,
    Dianne
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #4
    good to hear from
    good to hear from you...

    Denise
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #5
    Thanks for checking in.
    Thanks for checking in. It's good to know that with everything going on you're still holding on to your sense of humor. Let us know when your surgery is scheduled...we all want to be there for you.

    Hugs,

    Linda
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #6
    Gabe N Abby Mom said:

    Thanks for checking in.
    Thanks for checking in. It's good to know that with everything going on you're still holding on to your sense of humor. Let us know when your surgery is scheduled...we all want to be there for you.

    Hugs,

    Linda

    Misty Jo .. So happy that you've checked in with us!
    Sounds like a frustrating time for you, health wise. When I had the opportunity to meet you in person last August, a frozen shoulder seemed to be the only obstacle between you and getting back to your pre-cancer life. I am so sorry, my friend.

    Having many setbacks, and obstacles myself .. I share your frustration by our medical professionals -- some, not 'ALL' seem to think we make up half of our side efforts symptoms just to get sympathy or that we are looking for some attention.

    I applaud you on your quest for finding out what's wrong you, and never giving up!

    Keep us posted on your progress :-)

    Strength and Courage,

    Vicki Sam
  • lynn1950
    lynn1950 Member Posts: 2,570
    #7
    Hello, Jo Jo. It's good to
    Hello, Jo Jo. It's good to hear from you, even though your news is not so happy. It is really hard for things to be wrong and hurt and not know what is causing the pain. And of course, even when we know what the problem is and how to fix it, it takes energy and courage to see things through. I'll be praying for continuing "spunk" for you. xoxoxox Lynn
  • roseann4
    roseann4 Member Posts: 992 Member
    #8
    lynn1950 said:

    Hello, Jo Jo. It's good to
    Hello, Jo Jo. It's good to hear from you, even though your news is not so happy. It is really hard for things to be wrong and hurt and not know what is causing the pain. And of course, even when we know what the problem is and how to fix it, it takes energy and courage to see things through. I'll be praying for continuing "spunk" for you. xoxoxox Lynn

    So sorry.
    Great to hear from you but I'm sorry you are dealing with so many side effects. Keep the faith! You are such an upbeat person but I'm surevit has been difficult keeping your chin up.

    Roseann
  • ms.sunshine
    ms.sunshine Member Posts: 707 Member
    #9
    roseann4 said:

    So sorry.
    Great to hear from you but I'm sorry you are dealing with so many side effects. Keep the faith! You are such an upbeat person but I'm surevit has been difficult keeping your chin up.

    Roseann

    You need a time out
    and fast. I bet you feel like "ok I've had enough let me off this ride already." Sorry to hear you are still experiencing all kinds of side effects, some the docs haven't seen or heard of. When you have the surgery anything they can do about the frozen shoulder.

    Keep fighting JoJo. You are still rockin-n-rollin when most would have thrown their hands up and called it a day. Praying, hoping, and wishing that your health will come back, and soon. Until then keep on rockin, chin up, laugh often, and cry when you need too.

    Love ya girl, take care

    Jennifer
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    #10
    ms.sunshine said:

    You need a time out
    and fast. I bet you feel like "ok I've had enough let me off this ride already." Sorry to hear you are still experiencing all kinds of side effects, some the docs haven't seen or heard of. When you have the surgery anything they can do about the frozen shoulder.

    Keep fighting JoJo. You are still rockin-n-rollin when most would have thrown their hands up and called it a day. Praying, hoping, and wishing that your health will come back, and soon. Until then keep on rockin, chin up, laugh often, and cry when you need too.

    Love ya girl, take care

    Jennifer

    Good to hear from you JoJo!
    Good to hear from you JoJo! Hang in there girlfriend.....gosh I don't know what else to say!!
    HUGS,
    Wanda
  • Lynn Smith
    Lynn Smith Member Posts: 1,264 Member
    #11
    ms.sunshine said:

    You need a time out
    and fast. I bet you feel like "ok I've had enough let me off this ride already." Sorry to hear you are still experiencing all kinds of side effects, some the docs haven't seen or heard of. When you have the surgery anything they can do about the frozen shoulder.

    Keep fighting JoJo. You are still rockin-n-rollin when most would have thrown their hands up and called it a day. Praying, hoping, and wishing that your health will come back, and soon. Until then keep on rockin, chin up, laugh often, and cry when you need too.

    Love ya girl, take care

    Jennifer

    Nice to hear from you
    Nice to hear from you but sorry about the side effects.Good no cancer were found.Hope things will get better soon.

    I know the pain of a frozen shoulder.TERRIBLE.I broke down and started therapy.My first therapist would stop as soon as I had severe pain. Then came this real young therapist.WOW was I in trouble.She didn't care how much pain it took to move my arm she ws getting that in control.I had decided this was my last therapy since the new girl told me the other one went to another location.Well Thankfully something was done and that was my last treatment. because I was NEVER going back. I heard crunching(thought she broke my arm)LOL etc while she was doing it but it worked.

    Check in with us on your therapy and other things they find.Wish you the best very soon.Hope your physcial therapist is a good one.I REALLY DO.

    Lynn Smith
  • jendrey
    jendrey Member Posts: 377
    #12
    Lynn Smith said:

    Nice to hear from you
    Nice to hear from you but sorry about the side effects.Good no cancer were found.Hope things will get better soon.

    I know the pain of a frozen shoulder.TERRIBLE.I broke down and started therapy.My first therapist would stop as soon as I had severe pain. Then came this real young therapist.WOW was I in trouble.She didn't care how much pain it took to move my arm she ws getting that in control.I had decided this was my last therapy since the new girl told me the other one went to another location.Well Thankfully something was done and that was my last treatment. because I was NEVER going back. I heard crunching(thought she broke my arm)LOL etc while she was doing it but it worked.

    Check in with us on your therapy and other things they find.Wish you the best very soon.Hope your physcial therapist is a good one.I REALLY DO.

    Lynn Smith

    ...
    Wow - hope they find some answers for you soon. Guess they've ruled out idiopathic livedo reticularis...

    Wishing you well soon with better tomorrows!
  • missrenee
    missrenee Member Posts: 2,136 Member
    #13
    jendrey said:

    ...
    Wow - hope they find some answers for you soon. Guess they've ruled out idiopathic livedo reticularis...

    Wishing you well soon with better tomorrows!

    Jo Jo, good to hear from you, but
    not good to hear about all the issues you've been having. My heart goes out to you--enough already-right?!

    I'm hoping you'll get to a place soon, where you can exhale. One thing that surely still comes through--is your great sense of humor and optimism. Keep on keeping on.

    Hugs, Renee
  • jo jo
    jo jo Member Posts: 1,175
    #14
    Aww i sure do miss all you
    Aww i sure do miss all you ladies...its great to know no matter how long im gone that im always welcomed back with familiar faces just as loving as when i left...your all awesome!
  • New Flower
    New Flower Member Posts: 4,294
    #15
    jo jo said:

    Aww i sure do miss all you
    Aww i sure do miss all you ladies...its great to know no matter how long im gone that im always welcomed back with familiar faces just as loving as when i left...your all awesome!

    Hi Jo Jo
    Hi Jo Jo.
    Sorry for your side effects and no clue among doctors. Thanks for checking-in. Lately, I am having a long list too. Just look at my expression page.
    Wishing your medical mystery will be solved soon and you feel well again.
    Hugs
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    #16
    Glad you checked in
    So sad to hear about the medical run around and pain. Keep on keekping on.
  • ladyg
    ladyg Member Posts: 1,577
    #17
    Hi Jo Jo
    It's good to know you are still around. So are we. I am sorry you are having sooo many problems. Hang in there and keep your sense of humor it has to get better.

    Hugs,
    Georgia

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