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kim mom of three
Posts: 26
Joined: Apr 2011

After numerous testing, blood work, CT scans, MRI, Ultra sounds, PET scan, 2 surgerys...I was finally diagnosed CUP...at this time Oncologist wants to continue testing..
blood work every 6 weeks and CT scan every 12 weeks and just wait and see. Being that diagnosis is unknown primary mets to liver its hard to determine what course of treatment to take...I had liver resection Jan 2011 and were hoping cancer was removed and won't come back...PET scan showed no other cancer areas....I should feel blessed but I don't. I feel like I'm living life on the edge, just waiting for bad news...NOT knowing is very scary and sometimes its hard to remain positive

Posts: 15
Joined: Nov 2010

Kim - There's nothing easy about a cancer diagnosis. I'm sure not knowing where the primary is doesn't help at all. Not that I haven't had my moments of fear and misgiving, but I took my diagnosis and decided that if I didn't know whether I had a year or 20 years remaining, I was going to try to make the most of what I DO have. I left a very stressful life behind and pursued my dream...an opportunity to spend more time doing what I wanted with my family. Don't get me wrong - I still wonder when I'll have the next round of bad news and undergo yet another surgery, but I had 4 years of some pretty good times between my initial diagnosis and the news of my liver mets. Hang in there and have faith in God.

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