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post radiation salty mouth

robinleigh's picture
robinleigh
Posts: 297
Joined: Mar 2011

My husband is 1 week post radiation and his mouth now feels like a salt lick. Does anybody have any suggestions or encouragement?

Skiffin16's picture
Skiffin16
Posts: 8088
Joined: Sep 2009

Hmmm, mine felt like a piece of dried out leather....

Nothing much to offer other than a lot of hydration. Rinses with Hydorgen Peroxide and Baking Soda Mixtures was my prescribed solution.

You might try soda water or ginger ale also....

Unfortunately, there's not a lot that I can think of as for a resolution other than knowing that it'll get better eventually.

Best,
John

robinleigh's picture
robinleigh
Posts: 297
Joined: Mar 2011

We need the part about "knowing that it'll get better". Sometimes it's easy to forget. Thanks for reminding us!

Skiffin16's picture
Skiffin16
Posts: 8088
Joined: Sep 2009

I forgot to mention that was in about 1/4 glass of water..... I don't remember the exact mixtures, but in about 1/4 glass of water, I'd add a few tables spoons of hydrogen peroxide and about a tablespoon of baking soda. Swish around and spit the mixture....

JG

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

It's gonna feel and taste (what taste there is) strange for awhile to come now. The L-Glutamine helped me. Sip it throughout the day. It will get better. Gonna be a couple more weeks though. Stay strong. Be patient.

Bob

robinleigh's picture
robinleigh
Posts: 297
Joined: Mar 2011

Gonna check out L-Glutamine. We have a product called Juven that has glutamine, arginine, and HMB but we're putting it through the tube. Soooo.....it's pleasant on the mouth?

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

John and Bob have excellent suggestions. And, as far as it getting better- it definitely will. Just takes awhile. By the 4th month after my last rad I took a liking to mustard and onions and relish on brats, and that was unimaginable two months earlier when I was struggling with buttered pancakes drenched in maple syrup, to go with the Ensure. You will get there.

kcass

Hondo's picture
Hondo
Posts: 5812
Joined: Apr 2009

Same here as John & Bob, it is all I knew to do. I also use at night a stuff called Stoppers 4 for dry mouth.

All the best
Hondo

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

It is pleasant on the mouth. Online is cheapest but any vitamin store would have it. Hope it helps.

Bob

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

My mouth was like that when I could finally start trying to eat. My sweet taste came back first. Anything that was savory tasted like pure salt and burned. I really wish I knew about and used the l-Glutamine sooner. I really believe it helps.

Ron49's picture
Ron49
Posts: 91
Joined: Dec 2010

We just purchased the l glutamine today for Ron he is 3 weeks out of treatment I will let u know how it goes. Many here have recommended it and I trust them immensely wishing the very best

robinleigh's picture
robinleigh
Posts: 297
Joined: Mar 2011

It's gotta get better. Went to see the nurse about this salty taste deal and she said "most people complain of a metallic taste from cisplatin". Well, hubby has absolutely identified his taste as SALTY. So salty that it just gags him and makes it hard to keep things down. UGH!!! So far, plain water seems to work the best but I may be presenting too many choices. It's hard for the caregiver because we want to fix the problem. I have more varieties of drinks on the frig shelf...enought to make anyone gag...haha. We'll just keep trying and I'll report any successes. Meanwhile, this too shall pass. Thanks for the suggestions everyone!

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

And again, I have to say that I didn't have chemo, but I had severe saltiness and still do have issues with savory stuff tasting salty. :) Hate it!

robinleigh's picture
robinleigh
Posts: 297
Joined: Mar 2011

Robyn - We're at about the same stage so I always look for your posts. I hope that Ron going back to work will be as easy a transition as possible. Andy can't be far from a water bottle, spitoon bucket, or box of kleenex. Other than that, his lunch box won't be hard to pack! Best wishes!

Sweetblood - Your thread has been a complete G-dsend! I just about refer to it daily! Thank you for creating it!!! My best to you and your continued health!

Skiffin16's picture
Skiffin16
Posts: 8088
Joined: Sep 2009

One thing that seemed to remain a constant with me was the DelMonte Light Syrup Sweetend SLiced Peaches.

I would always eat a few of these even during my roughest times with pain. I didn't have the PEG and wanted to make sure I get the muscles and reflexes working for swallowing. The peaches did provide just a hint od taste and flavor (better than the unsweetened which I could taste the difference).

They slid down fairly unassisted and didn't cause much pain with my technique of layed out magic solution, water,Ensure Plus and ground percocet in a little wate as a chaser after the few peach slices.

Also as for the mettalic taste,( I know you said you didn't have that), but some people find relief by usinf plastic utensils.

It will all work out eventually....

Just remember as a caregiver, patient or MD...you can't fix everything, somethings just take time....but the trying process is always a good thing and just everyonce in awhile, you'll notice some improvement.

Best,
John

robinleigh's picture
robinleigh
Posts: 297
Joined: Mar 2011

John,

Yes, the caregiver is out of ideas. At this point my hubby is gagging on this salty tasting "build up" in his throat about every 3 hours. In between that, he's fairly settled but still suffering with just the salty taste. I'm wondering if it's the cisplatin which he had last Monday. The nurses tell me that most experience a metallic taste but Andy's describing it as salty...

Thanks for the encouragement. I know it will get better. There have been so many different stages that have passed so I know this one will also!! Patience and hope (I'm reminding myself!)

LeftyS7
Posts: 1
Joined: Sep 2013

I am one year out of chemo and radiation treatment for base of the tongue cancer. I still have an awful taste of salt in my mouth at all times. It's like my rear molars are salt blocks that are constantly dissolving. If anything it has gotten worse. It makes almost everything taste terrible. Together with dry mouth, saliva has also not come back to any significant extent, it makes eating solid foods almost impossible. I'm living on daily shakes made of Boost VHC and Scandishake which give me over one thousand calories per meal. My radiation Doc told me that everyone is different as far as recovering taste and saliva and my ENT has told me that there is nothing I can do to improve either other than the pilocarpine that I take which has given me enough saliva to, occasionally, lick my lips and lick an envelope. I'm the kind of person who likes to be told the worst case scenario so that I don't get my hopes up but my understanding is that the Docs don't like to give that as they think that if people are hopeful then they are more likely to improve. For me, it has just made me depressed at the prospect of these two things never improving. The good news is that I have no appetite so I don't really miss food.

KTeacher
Posts: 940
Joined: Jan 2011

This is an older post.  You might want to start a new discussion.  Welcome to our little corner of cyberland.  We are a great group of people that you can talk to about anything.  My drymouth didn't last as long as yours.  I still need liquid to get my food down.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Thank you very much. I am very glad to hear that it has been of help to you. :)

I still use plastic utensils. All I taste is metal when I eat with silverware.

debbiejeanne's picture
debbiejeanne
Posts: 2454
Joined: Jan 2010

welcome back, sweetblood22!!!!!!!!!!!!!!!!!!!!!!!!!  i hope u r feeling well.  great to c u.  take care.

dj

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