Reconstruction and Radiation

butterflylvr
butterflylvr Member Posts: 944
Hi everyone,

My name is Lorrie and I am new to the board. This past October I was diagnosed with stage three breast cancer. I had a very large (7 c.m.) tumor in my left breast, nothing in my lymph nodes and a healthy right breast. November, December and early January I underwent chemo to shrink my tumor and Feb. 28th I opted to have a bilateral mastectomy followed up with immediate reconstruction. I currently have tissue ex-panders in place and next week I believe will be my last appointment for my inflation of the girls. Next step will be six weeks of radiation, followed up by my implant surgery then onto hormone therapy.

My question to you gals is this... Have any of you ever followed this same journey? From what I am reading radiation and implants don't do well together because of the fear of leakage. Why do they do the tissue ex-panders first before radiation, don't they have the same risk of being punctured (albeit I know it's only saline)? I have an entire cancer team (Oncologist, Radiation Oncologist, Breast Specialist and Plastic Surgeon) that chose this path for me and I guess they should know what's best. So I am putting my faith in their hands...

By the way I really am enjoying this board, it's been very insightful..
Lorrie

Comments

  • wndringmnd
    wndringmnd Member Posts: 44
    implant
    Hi Lorrie, I am also new to the board, my diagnosis is similar to yours but the way its being handled is completely different. I have/had breast cancer in both breasts and in the lymph nodes. I belong to a group of doctors who each have a different specialty; one is an oncologist, one is plastics and reconstruction, one is oncology surgeon and the last is a radiation specialist. My series of treatment went like this...I felt a lump in my breast and went my regular gyno, who referred me to an ultrasound, who refferred me to the oncologist. after receiving a pet scan with dye I started chemotherapy once every 3 weeks for 12 weeks, The next step was another pet scan. It showed a clean bill of health, me oncologist however was not satisfied and told me that if I did not have a mastectomy he almost gaurantees that the cancer will be back within 5 years. so I had a double masectomy. (including the lymph nodes) I am waiting for the drains to come out before starting radiation which will be every day for 7 weeks, then I will rest for a few weeks and go to the plastics and get prepared and go through the expander surgery. He will not put the expanders in until I am done with everything else. They all agree that nothing should interfere with the radiation, or the silicone!
    Good Luck,
    Marilyn
  • Rague
    Rague Member Posts: 3,653 Member
    We're all different
    I was told by all my DRs (Surgeon, Chemo Dr and Rads Dr) that recon could not be thought about for me for at least a year. A year and 1/2 out of surgery and I'm thinking - waiting for an appt. Don't know what I'll do but I want info from a PS. Don't know IF I'll even be a candidate for it as I have fairly bad scaring from Rad burns and big Lymphedema issues - so will see.

    We're all different!

    Susan
  • lmr001
    lmr001 Member Posts: 5
    Expanders in before radiation
    I had surgery first (april 2010)... double mastectomy, with expanders put in place.
    Then I had chemo(through Aug 2010)... then radiation (through Oct 2010).
    I have already been through the expansion and the replacement of the expanders(Jan 2011) with the implants.
    The radiated side is tighter than the unradiated side.
    However, the process went smoothly and I really did not have any problems.
    My next step is nipple reconstruction and hopefully I will be done with this process. I am happy with the results.

    Everyone reacts differently to surgery and radiation with regard to scarring, capsular contraction... etc. I'm sure your doctors took all of these things into consideration when coming up with your plan.
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    Rague said:

    We're all different
    I was told by all my DRs (Surgeon, Chemo Dr and Rads Dr) that recon could not be thought about for me for at least a year. A year and 1/2 out of surgery and I'm thinking - waiting for an appt. Don't know what I'll do but I want info from a PS. Don't know IF I'll even be a candidate for it as I have fairly bad scaring from Rad burns and big Lymphedema issues - so will see.

    We're all different!

    Susan

    Lorrie, I had a lumpectomy
    Lorrie, I had a lumpectomy with rads, but, wanted to wish you good luck.


    Hugs, Debby
  • butterflylvr
    butterflylvr Member Posts: 944
    lmr001 said:

    Expanders in before radiation
    I had surgery first (april 2010)... double mastectomy, with expanders put in place.
    Then I had chemo(through Aug 2010)... then radiation (through Oct 2010).
    I have already been through the expansion and the replacement of the expanders(Jan 2011) with the implants.
    The radiated side is tighter than the unradiated side.
    However, the process went smoothly and I really did not have any problems.
    My next step is nipple reconstruction and hopefully I will be done with this process. I am happy with the results.

    Everyone reacts differently to surgery and radiation with regard to scarring, capsular contraction... etc. I'm sure your doctors took all of these things into consideration when coming up with your plan.

    Thank you everyone for
    Thank you everyone for filling me in on your journey with your cancer. I knew that radiation and implants were not a good combination, so that left me worried as to why my doctors chose to do my tissue expanders first. My radiation treatments when they start next month will consist of the lymph nodes and my entire breast area on my left side. Although I am thankful I was one of the fortunate ones that could do the reconstruction phase immediately after my surgery, it bothered me knowing that all a tissue expander is, is nothing but a slowly inflated implant. Thanks for helping me understand that although what works for one isn't going to be the same for everyone. I have since found out at the cancer institute that I go to there are other women with expanders in as well.

    Thanks everyone,
    Lorrie
  • Kylez
    Kylez Member Posts: 3,761 Member

    Thank you everyone for
    Thank you everyone for filling me in on your journey with your cancer. I knew that radiation and implants were not a good combination, so that left me worried as to why my doctors chose to do my tissue expanders first. My radiation treatments when they start next month will consist of the lymph nodes and my entire breast area on my left side. Although I am thankful I was one of the fortunate ones that could do the reconstruction phase immediately after my surgery, it bothered me knowing that all a tissue expander is, is nothing but a slowly inflated implant. Thanks for helping me understand that although what works for one isn't going to be the same for everyone. I have since found out at the cancer institute that I go to there are other women with expanders in as well.

    Thanks everyone,
    Lorrie

    Lorrie, I had a lumpectomy
    Lorrie, I had a lumpectomy and rads. I know someone on here, I think Kari, had her tissue expanders in first, before rads. I hope she sees your post and replies to you.

    Good luck!
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    lmr001 said:

    Expanders in before radiation
    I had surgery first (april 2010)... double mastectomy, with expanders put in place.
    Then I had chemo(through Aug 2010)... then radiation (through Oct 2010).
    I have already been through the expansion and the replacement of the expanders(Jan 2011) with the implants.
    The radiated side is tighter than the unradiated side.
    However, the process went smoothly and I really did not have any problems.
    My next step is nipple reconstruction and hopefully I will be done with this process. I am happy with the results.

    Everyone reacts differently to surgery and radiation with regard to scarring, capsular contraction... etc. I'm sure your doctors took all of these things into consideration when coming up with your plan.

    Welcome to that site Lorrie!
    Welcome to that site Lorrie! Sorry though you had to come here. You will find lots of help, support and encouragement.


    Good luck to you!


    Jan
  • renee616
    renee616 Member Posts: 181

    Welcome to that site Lorrie!
    Welcome to that site Lorrie! Sorry though you had to come here. You will find lots of help, support and encouragement.


    Good luck to you!


    Jan

    I had a mastectomy and had
    I had a mastectomy and had immediate silicone implant put in. Almost through chemo, 2 of 8 left. Probably 6 weeks of radiation. My Plastic surgeon said he would have preferred to wait if He'd have known there was the possibility of radiation. he said it may cause hardening! I hope not!
  • cahjah75
    cahjah75 Member Posts: 2,631
    Hi Lorrie
    and welcome to the board. I had bilateral mastectomy (6.1 cm lobular in right breast and LCIS in left. No lymph node involvement.) in June 2010. My surgeon did not recommend reconstruction until after I knew if I was to have rads. I ended up having 6 rounds of chemo and 28 rads. I did however talk with a PS before mastectomy to find out my options. Since I'm 62 I have put off any reconstruction at this time. I have prosthesis and am ok with that.
    {{hugs}} Char
  • jendrey
    jendrey Member Posts: 377
    cahjah75 said:

    Hi Lorrie
    and welcome to the board. I had bilateral mastectomy (6.1 cm lobular in right breast and LCIS in left. No lymph node involvement.) in June 2010. My surgeon did not recommend reconstruction until after I knew if I was to have rads. I ended up having 6 rounds of chemo and 28 rads. I did however talk with a PS before mastectomy to find out my options. Since I'm 62 I have put off any reconstruction at this time. I have prosthesis and am ok with that.
    {{hugs}} Char

    ...
    I had a mastectomy and a tissue expander was placed at the same time. Had chemo and radiation therapy, then finally exchange surgery for implant. The radiation caused some skin shrinking and seemed to reduce the size altogether.

    This shrinkage is something I'd suggest you keep an eye on and if it happens be sure to make a big deal out of it with your plastic surgeon because it IS a big deal. As your PS can inflate more if need be after rads as that's what my PS once told me.

    I didn't say much about it as I assumed the doctor would see the obvious and know..I'm not very happy with the results since one breast is noticably smaller than the other. Although, I think the size of the actual implant has more to do with it than anything else. My PS has been on maternity leave since January so I haven't even been able to address my situation with her or anyone else for that matter.

    The implant is much softer and seems more comfortable than the expander and certainly is in a much better position.


    It seems IMO that doctors are reluctant to do any reconstruction after radiation treatment so you are fortunate that at least one of your doctors had this presence of mind regarding timing/placement of your tissue expanders!
  • renee616
    renee616 Member Posts: 181
    jendrey said:

    ...
    I had a mastectomy and a tissue expander was placed at the same time. Had chemo and radiation therapy, then finally exchange surgery for implant. The radiation caused some skin shrinking and seemed to reduce the size altogether.

    This shrinkage is something I'd suggest you keep an eye on and if it happens be sure to make a big deal out of it with your plastic surgeon because it IS a big deal. As your PS can inflate more if need be after rads as that's what my PS once told me.

    I didn't say much about it as I assumed the doctor would see the obvious and know..I'm not very happy with the results since one breast is noticably smaller than the other. Although, I think the size of the actual implant has more to do with it than anything else. My PS has been on maternity leave since January so I haven't even been able to address my situation with her or anyone else for that matter.

    The implant is much softer and seems more comfortable than the expander and certainly is in a much better position.


    It seems IMO that doctors are reluctant to do any reconstruction after radiation treatment so you are fortunate that at least one of your doctors had this presence of mind regarding timing/placement of your tissue expanders!

    I had a skin conserving
    I had a skin conserving mastectomy and immediate silicone implant. The other side has to be tweaked & lifted to match the new one. I guess if it goes bad from radiation, I will have a new implant put in at same time as lift.....needless to say...I like my larger saggy, "real breast" the best! :(
  • LynnKT
    LynnKT Member Posts: 47
    Hi Lorrie, So many good
    Hi Lorrie, So many good responses to your situation! I, too, have had a BL mast. with immediate reconst with tissue expanders. I had the expanders gradually and fully "inflated" before undergoing radiation to my right breast area last summer/fall. I am waiting to have the implants put in. My PS insisted that I wait for a full year post-rad. to have the implant replacement surgery. I expect to have this done in October 2011. Other than some redness and skin tightness during and post rad, I had no problems with radiation with implants. My rad oncologist inferred that there are many women who have this procedure done w/o incident.

    I have a question for you and others who may read this. Do you recommend silicone or saline implants?

    Thanks, Lynn