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Adult Wilms Tumor

Janabug
Posts: 2
Joined: Apr 2011

Hi. I am a 29 yr old currently going thru treatment for Wilm's Tumor. Until my diagnosis six months ago I knew nothing about Wilms but have to come to know that this is primarily only found in young children. I was wondering if there was anyone else that has had Wilms as an adult?

JayeRad
Posts: 1
Joined: Aug 2011

Hi. I had Wilms in 2002 at 26 and again last year at 34. Keen to talk or swap stories if you are. Jaye

Janabug
Posts: 2
Joined: Apr 2011

I've only talked to two other people with adult wilms. I am 29 and diagnosed with stage III this past Nov. To complicate matters I was 31 weeks pregnant. The decision was made that surgery to remove left kidney/ and the tumor was needed asap. They waited two weeks for the babies sake and then I had my son, then a week later surgery. A week and a half after surgery I started radiation and chemo. My son spent 6 weeks in the neo natal unit but is perfectly healthy now. My last chemo treatment was June 20 this year- so far everything looks good. For the first year I will have quarterly testing. I would love to hear more about your experience and how your doing now. Sorry to hear yours came back--hopefully all is well.

jona187's picture
jona187
Posts: 74
Joined: Apr 2011

I wish you three best of luck and recovery with your journey :)

luckyone51
Posts: 1
Joined: Jun 2012

Hi there I was dignosis with wilms tumor, that I knew nothing about when I was 33 years old, I was very lucky they said another month and it would of been different, had a bad back ache and went to a very special doc that just got out of mecical school he looked at me and said you you got something wrong with your kidney you are yellow I thought I had a good tan hahah, Doc ran some test that day and found my left kidney the size of a football, and they wanted to take it out the next day I said oh no its my brithday they said if we dont this would be your last, so I went thru the cemo and radition and came out fine , Now its been 27 years and I feel like th luckies person, years later I went to talk to doc after my "cancer walk" he said I was his mircale person cause five went in with kidney problems and I was they only that left, wow, he said I had it as a child, said no one ever cared about me growing up, wow , so you will get better and live a great life I.ve been marries for 40 years and loving my retirement every day it a blessing for me, Willow in tenneesee

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