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remission

jejohn
Posts: 48
Joined: Nov 2010

Just wondering if anyone out there is in remission or know of someone who is. Love to hear success stories!

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I'm 18 months post treatment for SCC Supraglottic Laryngeal cancer and NSCLC Adenocarcinoma in left lung. Received chemo (cisplatin) and rads only as both cancers were inoperable.

I'm still here and still fighting!!!

My best to you,
Glenna

jejohn
Posts: 48
Joined: Nov 2010

Sounds great! Keep up the fight! Did it spread to any other places?

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Neither cancer has spread, my last CT scan in February showed a new lesion in my lung but the doctor said it looks different than the tumor I had with the NSCLC. Waiting for another scan in May to see if there are any changes in the size of the tumor. Still hoping it turns out to be nothing, I keep telling myself that just because they found something it doesn't mean it's cancer.

jejohn
Posts: 48
Joined: Nov 2010

That is true. Hope it is not, and that your scan is good. Every ache or even if I just feel different in some way, I think it is something to do with cancer. I know that I cant be that way, and that it is not, but that doubt creeps in anyway. Praying positive thoughts and attitudes for all of us!
What kind of chemo did you take?

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Been there, done that...actually I think all of us were like that and still are occasionally. The fear eases more the further you get from finishing treatment but I still worry occasionally especially if I have any ear pain as this was one of the first symptoms I experienced pre diagnosis.

I received cisplatin twice a week in 3 week cycles. According to my oncologist it is "the big gun" in chemo.

Stay strong,
Glenna

Dan620
Posts: 213
Joined: Dec 2009

Great reading your success in fighting this Devil, and to let you know i also had ct-scan that showed something and next scan was clear. Onco DR said could have been infection.. inflamation??? gave me lots of anxiety. Will keep you in my prayers all will be well. I know the worry never ends with this devil.... Dan

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Unfortunately there is another tumor in my lung, my scan was sent before the cancer review board for recommendation. The tumor definitely is different from the original tumor so now it is the dreaded "watch and wait" to see if it grows. I'm assuming it is still quite small as they aren't able to do a biopsy yet. I'm trying to keep my mind on more pleasant thoughts but when the occasional fear slips in I remind myself that it's not cancer until they biopsy says it is. Could be something completely harmless and that's what I'm praying for.

Thank you for your prayers, I've been doing a lot of praying for the past 2 years.

Stay well,
Glenna

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

Add my prayers to yours Glenna. I do hope that whatever they see in there is harmless. How long do you have to wait?? I am scheduled for my CT on Monday to see what the "subtle change" is. So we are both in the same boat it appears.

lekkerone
Posts: 199
Joined: Jan 2011

I pray for good results for you both. Lets hope those subtle changes are little infections or scar tissue.

jejohn
Posts: 48
Joined: Nov 2010

Hey everyone! Hope yall have a great day! I go for my second treatment with taxotere today. Praying it will work. Monday, I have a brain MRI, which I have every 2 months. Got the all clear last time, but so scared about this one. Trying to put it out of my mind and focus on the wonderful Easter holiday on Sunday.Praying for good scans for all and always for a cure.
Any more remission stories out there or any that have been on chemo a long time? And how many different chemos??

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Praying for a clean MRI on Monday and I always pray each day for everyone who has cancer.

Have a wonderful Easter,
Glenna

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

First time I've done a double post in quite a while - LOL

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you for your prayers, they mean a lot to me. I have a fairly large group of family and friends praying for me which brings me great comfort.

Stay well,
Glenna

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you for the prayers and please know that I will be praying for a clean scan for you on Monday. I had my last scan on February 10th so my next one should be within the first two weeks of May. They don't schedule the scans that far in advance so my rad onco's nurse will make the appointment and then call me to let me know when it is. I should be hearing from her within the next week or two with a date.

Did they send your scan results to the Cancer Review Board?? My doctor told me in February that there were "subtle changes" and that he was sending the scan to the review board for their recommendation. Ten days later he called me and told me there was a lesion in my lung and then he said TUMOR, once he said that dreaded word my brain stopped functioning. I couldn't think of anything else to say or any questions to ask him, my mind kept repeating that awful word. Everyone keeps asking me why they don't do a biopsy, I'm guessing it may be small enough that they don't feel they could get a good sample. I keep telling myself that it is nothing to worry about and I've managed to keep myself reasonably calm but the past few weeks I have been getting ear aches so I'm nervous. Ear pain was one of the symptoms I had before my first diagnosis. I had my ENT appointment for the laryngeal cancer on Feb 8th and he checked my ears and said there were no problems.

Hope you don't have to wait long for your results, I usually have to wait a week, which as you know will be the longest week of my life. We should be used to the waiting by now but unfortunately it doesn't get any easier.

Keeping you in my prayers,
Glenna

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

I had my CT this morning and suspect that it will be several days before I hear anything. This was a tough morning for me, I could not keep the tears from rolling down my cheeks as I was having my scan. Then I sat in the car and cried for a while. Just nerves I guess. I am back a work now, and things seem a little brighter when my mind is occupied by something else. Although as you can see, I had to check into the "group" for a bit.

lekkerone
Posts: 199
Joined: Jan 2011

I guess that is what will happen to us every time we get a pain, we will be afraid it's cancer. As for scans, x-rays etc. they scare me and I have only had on x-ray which was good so June is my next x-ray.
I feel for you both, waiting for results and I promise you that you are in my prayers. God bless, Diane

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you for keeping me in your prayers, it really means a lot to me and brings me comfort.

God bless you,
Glenna

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Will be keeping you in my thoughts and prayers while you wait for your results. It frustrates me that we have to wait so long for our results because I know the doctors have them by the next day. I guess they don't realize the anxiety we suffer while we are waiting. I even called to see if I could get the results over the phone once and was told that I had to wait until my appointment.

I just found out that my scan isn't until the beginning of June, still don't have a date yet but that means another month of waiting and wondering.

I'm really sorry that you had such a tough, emotional day but I completely understand how you are feeling.

Stay strong and please let us know the results.

My best,
Glenna

jejohn
Posts: 48
Joined: Nov 2010

It is comforting to know we go through the same feelings. I, too, had a very emotional day yesterday. I attribute it some to the taxotere effects from Thursday, and I havent been sleeping well due to the steroids I take before, during, and after treatment. I pray the entire time I am having the brain MRI. I know the techs pretty well because I have the scan every two months. They are so nice. Yesterday they told me they didnt see anything which brought tears of joy, but also a wave of fear. They are not radiologists, so do they really know??? I see my dr. tomorrow. I now go back and change my appts. so I dont have to wait so long.
Praying for peace of mind for all of us.....

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

Some of those techs are pretty savvy so hopefully you will get great news from the radiologist. I have had a brain MRI twice. The first time they had to haul me out for a bit when I started to panic. The second time the tech was awesome, he put a warm blanket on me and cool cloth over my face then put me in the tube....so much better. I prayed, sang songs in my head, and counted the number of weird sounds I heard. Praying you get GREAT results!

jejohn
Posts: 48
Joined: Nov 2010

Got the all clear from the brain MRI!! Thanks for all the prayers. Hopefully I wont have to worry abt. that again for 2 months!

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

So happy to hear your brain MRI was clean!!!

Relax and enjoy yourself now.
Glenna

jejohn
Posts: 48
Joined: Nov 2010

Thanks!!!!

sissylu1
Posts: 66
Joined: Jan 2011

That is wonderful news...hopefully you can relax and get some well needed rest!

sleepless in jersey
Posts: 185
Joined: Feb 2011

Hi Mamacita~ Im waiting patiently to hear about your scans and haven't seen it posted anywhere. I hope it was a great call you got!!!

My Mom has stage 4 ncslc with mets and she had her 1st call last week and I could only imagine what its like waiting beacause im with Mom everyday and take her for her treatments most of the time so we both were a mess last wk. (her call was from the neurosurgeon head clear, than onc called well, some good some bad. Some shrunk and some grew) New TX now taxotere every wk for 12 wks at 3 wks on 1 wk off than scans in August.

Please let me know how your doing.
Lets of prayers and good thoughts your way...sleepless in jersey

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Finally got my appointments. I go for the CT scan on the 23rd but don't see my rad doctor until the 31st. Not going to let it get me down, I am spending my time telling myself that all will be well :)

Keeping everyone in my prayers.
Glenna

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

My CT scan shows that I have "infiltrative markings resembling a cicatrization of markings as well as an 8mm nodular opacity". In laymen's terms this means I have some scarring but "tumor recurrence cannot be excluded". I have read that scarring from radiation treatments tends to happen at about the 6 month mark after treatment has ended. This would be just about right for me.

I had a bronchoscopy yesterday and the pulmonologist said that she did not see anything unusual but was not able to get as far in as the infiltrative markings and nodule. She did take several snips here and there and a sample of fluid for biopsy. I should hear back in about 3 days.

I know the hardest part for all of us is waiting...

Prayers and best wishes to all of us who are waiting.
Anita

lekkerone
Posts: 199
Joined: Jan 2011

You are both in my prayers. WE all know what the waiting game is like and the crazy thoughts we have. Keep strong and do your best to imagine good results. Diane

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thank you for your prayers. I've been doing good at keeping my mind busy and thinking positive and hopefully will be able to keep it this way til I get my results.

Yes, the waiting game is one game that I'm not real good at but we all have to go through it.

Stay well,
Glenna

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Anita, it sure does seem like we spend a lot of time waiting, which, unfortunately, I am not good at :)

Will keep you in my prayers that the biopsy proves, without a doubt, that it's not cancer.

Stay strong and please post as soon as you get your results.
Glenna

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