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stage 4 throat cancer survivor (squamous cell carcinoma)

Tony Rocco on my deck in Gulf Shores, Al.

15 year survivor and experiencing problems from mostly radiation therapies (7000 rads)
40 hyperbaric treatments so far for teeth extractions.
Loss of jaw bone due to infection presently. (5 months of antibiotics w/ no clearing of infection at this time...
Will have surgery removing parts of jawbone (madible left and right side) on April 26th, 2011. Was informed that it may or may not heal due to lack of blood flow presently post radiation therapy. Keeping a positive attitude and prayers coming from family and friends...

Comments

Problem with the Jaw

Tony,

I hope all goes well with the upcoming surgery. I may be in a similar boat at some time in the future. However, my Osteonecrosis of the Jaw (ONJ) is due to a drug that I have had for over 11 years to help control my metastisized breast cancer. Maybe you have heard about it in the news - "Bisphosphonate-Related Osteonecrosis of the Jaw". Even though the cause is different it seems that the result is the same. Due to lack of blood supply - the bone dies with the resultant open sores on the gums, eventual loss of bone and teeth. I also had radiation to the base of my skull due to mets that were pressing on the 12th cranial nerve.

I really wish you the best possible success in the surgery. If you would be willing to let me know how the problem progressed over time and what the impact of it is on eating, appearance, anything else, I would greatly appreciate your sharing. I don't know what to expect.

Again, best wishes and my thoughts and prayers are with you.

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