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When discouraged, .....

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Hi Ladies,

As we deal with all that is sent our way, it's hard not to panic sometimes and think all is lost. I just received this email from a good friend. It resonates with me and I couldn't resist sharing. I've been there and it give some good food for thought". Blessings to all who are depressed that their hut has burned down..... Please read...
Mary Ann

The only survivor of a shipwreck was washed up on a small, uninhabited island. He prayed feverishly for God to rescue him. Every day he scanned the horizon for help, but none seemed forthcoming.
Exhausted, he eventually managed to build a little hut out of driftwood to protect himself from the elements, and to store his few possessions. One day, after scavenging for food, he arrived home to find his little hut in flames, with smoke rolling up to the sky. He felt the worst had happened, and everything was lost. He was stunned with disbelief, grief, and anger. He cried out, 'God! How could you do this to me?'
Early the next day, he was awakened by the sound of a ship approaching the island! It had come to rescue him! 'How did you know I was here?' asked the weary man of his rescuers. 'We saw your smoke signal,' they replied.
The Moral of This Story: It's easy to get discouraged when things are going bad, but we shouldn't lose heart, because God is at work in our lives, even in the midst of our pain and suffering.
Remember that the next time your little hut seems to be burning to the ground. It just may be a smoke signal that summons the Grace of God.

P.S. You may want to consider passing this on, because you never know who feels as if their hut is on fire today..

Ro10's picture
Ro10
Posts: 1356
Joined: Jan 2009

Thanks for sharing. It is inspirational. Hope you are having a good day, too.

kathybd
Posts: 126
Joined: Jul 2009

Just checking in with my support system. Husband passed away in Jan and been through alot. Now planning on moving forward with life and keeping myself free from this disease.

Blessings to both of you!
Kathy

norma2's picture
norma2
Posts: 486
Joined: Aug 2009

I have had my hut burn a couple of times. Each time, when things were their lowest I wondered what in the world was going on!!! Looking back everything happens for a reason, even what is perceived as disasterous at the time, has a reason. God is in control all the time. Again thanks for the story. I need to be reminded of this fact occasionally.

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Thanks Mary Ann!! As many others, my hut has burned a few times, but my mind tells me to pick myself up and keep on moving. God has a plan for me, but hoping it's to live a long life. We can only hope....

I live with an entrepreneur, and you know they are some of the most optimistic humans around, therefore, I'm always told to be positive as it will all work out.

Jan

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Thanks Mary Ann!! As many others, my hut has burned a few times, but my mind tells me to pick myself up and keep on moving. God has a plan for me, but hoping it's to live a long life. We can only hope....

I live with an entrepreneur, and you know they are some of the most optimistic humans around, therefore, I'm always told to be positive as it will all work out.

Jan

Kaleena's picture
Kaleena
Posts: 1011
Joined: Nov 2009

Mary Ann:

Thank you for the very uplifting story. I shall definitely share it!

Kathy

Sunny777
Posts: 7
Joined: Jan 2011

My hut has been burning the past few weeks. This made me smile. Can't wait for the ship to come!!!

hopeful girl 1
Posts: 454
Joined: May 2010

Thank you for the inspriration. Love it!

My hospital has in their various buildings fountains and the words "Only Say The Word and I Shall Be Healed."

I love that as well.

Cindy

HellieC
Posts: 425
Joined: Nov 2010

I am fortunte in that my hut isn't burning at present, but knowing the sneakiness of this darned disease, I have saved it in a save place in case there's a next time!

Helen

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

rescuers for me today. My hut is smoldering - I can't bear to say it's burning down with the more serious things people are dealing with here. But I needed your encouragement as I deal with another disaster with my new health insurance plan...

I am having a great deal of trouble with finding a place to get my port flushed that will not charge me over a hundred dollars. Blue Cross and Blue Shield referred me and set up a service that was supposed to cost me $35 but I was billed $110.00 and BC/BS is lying about what they told me. I think this is despicable (the lying).

So I am appealing it - and hope I can get it down to $35.00. I will have to drive an hour or more to get this done somewhere. I'm sure it will all work out but these things are stressful.

Thanks for listening to me.... I will pull myself together and do battle tomorrow :)

Love, Mary Ann

Ro10's picture
Ro10
Posts: 1356
Joined: Jan 2009

How frustrating for you. It really should not be so expensive to have a port flushed, but it does take special supplies and a specially trained person to access the port and flush it. I hope you can get it done for the $35.

I asked if my husband could be trained, and was told absolutely not. I know lots of nurses who flush ports, but getting the supplies could be a problem. So I have gone to medical facilities every time it needs flushed. Actually there is only one time in the years I have had my port that all they did was access it and flush it, otherwise I always had lab, chemo, or CAT scans done.

I do plan on keeping my port as long as it works, as I know it will be needed in the future. I don't relish those sticks in the arms. I am anxious to see how my new medicare insurance covers my two days of treatment, as opposed to the one day.

Hoping your smoldering hut goes out soon. In peace and caring.

Kaleena's picture
Kaleena
Posts: 1011
Joined: Nov 2009

Mary Ann:

I still have a port and I have had it for 5 1/2 years. My problem now is that my doctor is in Ohio and I live in Pennsylvania. Although I was done with chemo in 2006, I have always dutifully got it flushed monthly..... until February when I was told that the local hospital where I live would not be able to flush it since my doctor is now in Ohio. I said I have a script for it but would not take it. I tried several other hospitals and unless my phsician is associated with that hospital, I can't get it flushed. I guess they want me to drive 3 hours for a five minute procedure! I haven't had it flushed for three months now and it probably won't work now if ever I need it.

I also had BC/BS and was billed about $79 a flush (just a flush) before my deductible set in.

I know the frustration you must be dealing with. Hang in there! At least we are complaining about getting it flushed!

Kathy

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

I am so sorry to hear about your battle with the insurance company. It is bad enough having to deal with all of the issues one encounters trying to deal with the cancer itself, and then to have to spend precious energy battling with the insureance company is simply overwhelming!

You are such a calm, collected person that I have no doubt that you will present your case elegantly and you will WIN! This is going to be YOUR day!

Sending lots of positive energy your way!

Hugs, Karen

sleem
Posts: 92
Joined: Feb 2010

My hut didn't go all the way down; yet, the fire was almost there and didn't come. Thank you for this story! I truly enjoyed it.

susafina
Posts: 134
Joined: May 2010

Hi Mary Ann,
Thanks for that uplifting thought. Right now it seems everytime I rebuild that hut it burns down again. To say I am frustrated is an understatement. I just hope for all of us that we can build a whole village of huts that we can join together and party till dawn. Rest and party again!!!
SUE

Sara Zipora's picture
Sara Zipora
Posts: 227
Joined: Sep 2010

Through your Church could you find a nurse practioner or ER service who would flush your port for $35?

Just wondering.
Sara

california_artist
Posts: 850
Joined: Jan 2009

Thanks, and i will always love you and your kind ways.

Claudia

I replies before I noticed the port flushing frustration. Can't help at all on that measure, but do refer to the first part of the note, as it's always good to know someone loves you, even when your port is smelly. : ' (

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

Dear Mary Ann--

I know that today is the day you planned to do battle with your insurance company. My fervent hope is that everything is now resolved.

You have many people here who care about you and wish they could give you some serenity.

In caring,

Jill

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Thank you again, all for your support and caring. I did appeal with insurance but also took chance and called the only other Cancer group in town AGAIN and connected with the office manager, explained my bind AGAIN, and asked for their help AGAIN. This time I did not get a brush-off. The office manager consulted with one of the docs who agreed to see me and oversee the port flush and future chemo if needed. I will keep my gyn-onc from the other practice. This new doc and the office manager are true gems in my book. I have appointment on the 27th for consult with new doc and port flush!!!

Moral of this story I think is - If at first you don't succeed, try, try again!!!

Kaleena, would this type of thing work for you too??

Blessings to all of you. Mary Ann

Ro10's picture
Ro10
Posts: 1356
Joined: Jan 2009

Great work. Your persistance paid off for you. You are a trooper. So your appeal got the results you needed. Now I hope you hut stops smoldering and you can enjoy NED, for a very long time. In peace and caring.

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

Mary Ann--

I have always admired you for so many reasons. Now I must applaud your latest victory over the insurance companies, which are sometimes so lacking in basic humanity.

As I stated in a different thread, WE have to be our own advocates. We have to push--and sometimes keep pushing--to be heard; and often we need to fight so that the medical community realizes that there are actual people who are suffering because of their policies.

CONGRATULATIONS! Now get back to all of your relaxation practices; and I hope that being proud of yourself will help you feel healthier in all ways.

An abundance of blessings to you,

Jill

Kaleena's picture
Kaleena
Posts: 1011
Joined: Nov 2009

I will have to try that, Mary Ann. I have my checkup on June 6 with my gyn/onc. There might be a way, too, wherein my local PCP can sign off on it, but originally it would have to have been in a hospital wherein she was associated with and the one she is with is really not the kind that deals with cancers like others in the area.

I will let you know!

Kathy

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

Does it take special talent to flush a port? Can't someone at the hospital with which your PCP is affiliated take care of this for you? I don't know anything about this sort of issue, but I certainly wish you an easy resolution.

Jill

Kaleena's picture
Kaleena
Posts: 1011
Joined: Nov 2009

Jill:

It was my understanding that only personnel that was trained on port flushing was allowed to do that. That is what they told me at the infusion center. My PCP was even going to give me a scrip but they wouldn't take that either since she wasn't associated with that hospital, even though most of the hospitals in the area are "owned" by one company.

My only other alternative is to have it taken out. I needed a clean scan (which I actually had two since my surgery in February of 2010). (Also, I have had a clean scan since October of 2005) Now I just need to find someone to take it out. The doctor has to be a vascular doctor. I could get one where I live. I just don't know how to go about it.

It is kinda hard when you have to travel 3 hours for appointments, treatments, etc. Not that I am complaining, but it is the little stuff that can be bothersome.

Anyway, I have my check-up on June 6th. I will find out then. I had been trying to get a PET Scan, but the Physician's Assistant seems I don't need one even though the Dr said at my last appointment to get one in 6 months. I wanted to schedule it the same day as my appointment so I didn't have to make two trips, but.....

Why sweat the small stuff? My son is going to the prom and then graduating from high school. That's enough to keep me busy right now, plus painting our new home!

Thanks for your input.

Kathy

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