Apr 08, 2011 - 6:07 am
I am 25, I was diagnosed with a large synovial sarcoma in the pleura of my right lung in December. I had to give birth to my first child the next day so I could start treatment. Unfortunately due to a past operation on my lung the cancer is inoperable and due to the size of the tumour it's unlikely chemotherapy would get rid of it. After four of six cycles of chemo it is about 50% smaller but still around 15cm in length. I do not know what is next whether it'll be more chemo, radiotherapy or just a case of no more treatment and hoping it'll stay in remission for a while.
I have never heard of anyone having an inoperable synovial sarcoma before, most people have an operation or amputation. Can anyone relate to this? I am wondering about what will happen after chemo, if it is likely to stay smaller for a while or if it will just start aggressively growing again.
Also can anyone tell me if they had radiotherapy on a synovial sarcoma tumour and how effective it was? I know most people have radiotherapy post op but has anyone had it pre op?
Thank you for your time. Any information will be greatly appreciated.