Apr 05, 2011 - 9:31 pm
My hubby, whose GBM was only in the optic chiasm and thus caused blindness, now has two new areas of GBM tumors - corpus callosum and near the basal ganglia. He had Temodar in '09/'10 for the three inoperable AA tumors, which still mind you look great. His Duke doctor is trying him on CCNU, but she's advised the prognosis is poor and this is "salvage" chemotherapy. We do love her and hope to prove her wrong with her expectation of months, but wondered if anyone had been on this CCNU before.
He had been on Etoposide for one cycle and these two new areas of GBM presented themselves, so that nor the Temodar seems to want to stop these darn tumors.
Going back to a local rad onc and neurosurgeon tomorrow to see if the gamma knife is still an option. Duke still says no, since he's had WBR and stereotactic, and I suspect with the spread of this disease it will no longer be recommended.
It's too surreal to think he's endured three malignant types of brain cancer. A cure can't come too soon.