Mar 19, 2011 - 5:02 pm
Well I had my surgery yesterday which was suppose to take out my supralaryngeal tumor with the transoral robotic surgery at Mt. Sinai with a neck resection for the two suspected nodes. They had to put the breathing tube in while I was still awake, real scary but the anesthesiologist was very good, used a ton of local and quickly got me under. I started to wake up and realized my neck wasn't cut. Next thing the surgeon leans over says squamous cell cancer, I only biopsied the tumor and couldn't remove it and you will need to go for radiation. Real bummer for me and my family. Nurses in PACU were good and let me stay till mid afternoon till I felt I get up.
Since they offered me radiation/chemo only a couple of weeks ago, I guess this isn't that much of a change in plans. I am recovering in Brooklyn at my daughters place and have already set up an appointment at Mt. Sinai on Monday. No use going back to Albany and then turn around in a couple of days to come back here.
The dry mouth I had yesterday from the anesthesia and the mouth sores from the procedure are giving me a preview of coming events. I still can't get much down my sore throat and the recommendations on foods from this site have helped greatly. Just had a great avocado and banana smoothie.
I could have the treatment in Albany or in NYC (they have Hope Lodge for out of towners) so I will check out my local oncology practice when I get home. I also plan to get a consult at Mass General since they have the proton therapy which I hope I might qualify for. Supposedly that therapy delivers the same radiation to the tumor but less to the surrounding tissue. Only about 20 centers in the world.
Any advice on the best places for radiation/chemo that minimize side effects, send them on. My cousin, who took care of both her parents till they died (her father had colon cancer),has volunteered to be my caregiver through treatment wherever I go. That will take a big load off of my husband so he can work.
You'll be hearing more from me now that I officially have head and neck cancer.
Thanks for being here