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Herceptin

pbrndm5
Posts: 83
Joined: Dec 2010

I've been told that I may need to go on Herceptin since bc was HER2+. I know this has probably been discussed many times on the board, but I was wondering how my sisters out there faired taking it. Oncologist said that I would be on it for a year-once every 3 weeks. Asked if I needed a port-he said it was my preference--that he usually doesn't do a port for herceptin-but it can be done.

Any advice????

CR1954's picture
CR1954
Posts: 1392
Joined: Jul 2008

I had a Herceptin infusion every three weeks for a year. I did not suffer any side effects from it and it was actually one of the "easier" cancer treatments that I had. It does not effect hair or any other fast growing cells like A/C chemo does.
And, the year goes by quickly.

It is a very good drug and if you are HER2+, it is one of the best things you can do for yourself, in my opinion.

Nothing to fear.

Hugs,
CR

Bella Luna's picture
Bella Luna
Posts: 1571
Joined: Aug 2009

I tested HER2 positive as well. I went to the clinic every 3 weeks for a year and had a port installed. I would HIGHLY recommend that you get one too. The port makes it so much easier in the long run.

I didn't have any side effects, that was just me. I was seen by a cardiologist on a quarterly basis and underwent EEG's for one year. The drug is known to cause heart issues in some patients. My heart was fine, no problems.

I did exercise during my treatment( chemo, rads, Herceptin) because I wanted to be as STRONG as possible.

Best of luck to you. I got through it and so will you!
BL

tgf's picture
tgf
Posts: 955
Joined: Mar 2009

I too was on herceptin for a year ... and don't think I could have done chemo ... or herceptin without my port. I hate needles ... and the thought of having them poke and prod for a vein that often gave me the willies.

I had zero side effects from herceptin and I love my port!

You'll do just fine.

hugs.
teena

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

I am HER 2-, so, I am not on it, but, want to wish you good luck.

Hugs, Megan

joyyee1
Posts: 31
Joined: Aug 2010

I started Herceptin last April along with 2 chemo drugs. When the chemo was finishd in august 2010, I continued having just Herceptin treatments. In January 2011, I had an echo cardiogram which showed that my EF (ejection fraction) number had dropped to 42. At MD Anderson Cancer Center in Houston, my cardiologist suggested that I go off Herceptin for awhile to let the EF number go back up.

I skipped 2 treatments,and fortunately, my EF went back up to 53~ so now I will resume the Herceptin treatments on March 29th. I only have 4 more to go!

I've had a port since last April and I'd advise you to have one put in if your treatments are going to be for one year. The port isn't a problem and it saves your veins from getting poked every 3 weeks!

I"m 63 yrs. old- maybe older patients have EF problems with Herceptin- but it's good for them to check with an echo cardiogram to keep an eye on your heart during the Herceptin treatment.

Aside from the heart issue-I've had no side effects from the Herceptin.

Good Luck!

Mitzi333's picture
Mitzi333
Posts: 511
Joined: Feb 2011

I'm also taking Herceptin along with 2 chemo drugs. So far, so good. I have 5 more infusions to go and have to take Herceptin for a year. I also have a port and would not have it any other way. The port eliminates my fear of the consistent poking with the needles. I highly recommend the "port". Wishing You all the BEST!!! ;0)

sea60's picture
sea60
Posts: 2601
Joined: May 2010

I already had my port in from Chemo so I just left it in for the Herceptin treatment. I didn't have any side effects from this one at all.

Hugs,

Sylvia

chriskaput's picture
chriskaput
Posts: 109
Joined: Jul 2010

I have been on herceptin since July 09. I have the infusion every 3 weeks also. I do not have a port and have experienced absolutely no side effects from it. Do not worry, it is a breeze especially if you have already been through chemo!

Kat11's picture
Kat11
Posts: 1931
Joined: May 2009

I also did herceptin last year for a year and had no problems with it. I Kept my port in. I was told that it is a very good drug.
Kathy ~

fals24
Posts: 2
Joined: Mar 2011

I had herceptin along with 2 other drugs. Herceptin was fine as were the taxol and other drug. Worked through them all but radiation was another story it was draining and so exhausting

pbrndm5
Posts: 83
Joined: Dec 2010

Thank you to everyone! You have really made me feel much better about taking Herceptin..I see my oncologist in May to discuss everything further... I'll talk to him about inserting a port etc. Again thanks to all for all of your input. This sight is awesome---too bad we have to have it because of breast cancer!! Hugs to all!!!

BMS's picture
BMS
Posts: 127
Joined: Feb 2011

I am taking Herceptin along with the chemo drugs...first I had it with the TCH and now every three weeks with Taxol. The taxol ends in 3 weeks but the Herceptin will continue until September. The port was definitely the best idea for me. I have really deep veins and finding one for blood work each week and chemo days would have been a nightmare. I am looking forward to getting it out in September.

Mothercrone's picture
Mothercrone
Posts: 28
Joined: Mar 2011

I just discovered this website today and it is such a relief to hear from positive her2 patients! Thank you, thank you!!

I've just had my 5th round of chemo (every three weeks) plus I do Herceptin every week and then, after chemo treatments, I will be doing Herceptin every 3rd week for at least 6 months.

I had a port installed and I've never been sorry. It was an easy procedure done under local anethesia. Fast recovery time. Home the same day. I call it my "flip top cap."

I am going to keep my port installed for as long as I can; as long as I get it flushed every 6 weeks there will be no problem. I've made this decision because of a very negative breast doctor who, well, let's just say that her bedside manner made it extremely difficult for me to remain positive. Having said that, I turned away from her negativity and focused on my oncologist, chemo nurses, friends and most importantly, the Lord.

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