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Proton Beam Therapy?

lizziek's picture
lizziek
Posts: 27
Joined: Feb 2011

I've been doing some research on radiation treatment and found a couple of references to proton beam therapy. Only a few places in the country but lots more planned.

Anyone been treated with Proton Beam Therapy instead of IMRT? Would like to hear how it went (side effects).

Lizzie

Hondo's picture
Hondo
Posts: 5742
Joined: Apr 2009

I did not use it becuase I did not know about it when I did my first treatment.

If you can do Proton Therapy I suggest you do it as it is a little eraser on the body then regular radiation treatment. Talk it over with your oncal doc to see what he thinks.

Hope It works for you
Hondo

J9nadeau@gmail.com
Posts: 1
Joined: Mar 2011

I completed Proton Beam at the Florida Proton Therapy Institute in Jacksonville Florida. I would say get Proton if you can. It allows docs to focus the radiation much more than photon radiation. Insurance only covers Proton for certain types of cancers like mine which was near my brain, which is why my docs suggested it.

NPCPaul
Posts: 8
Joined: Mar 2011

Hi Lizzie,

I was treated with Proton Bean therapy WITH IMRT Photons. I had NPC that spread to my lymph nodes around my neck area.

I got proton beam therapy and then on the same day went over to get IMRT for my neck area.

I would definitely do Proton. Not many facilities in the world has it available.

The radiation dosage is the same as photons, so it's effectiveness is the same, however, proton beam radiation is very targeted. The beams are more focused, it will penetrate your body to a pre-determined distance and stop, vs photons, it will continue to go past the intended area of focus. The net effect to it is that you will have less radiation damage to areas that you don't want damaged.

It has been a year since I finished treatment for my stage IV NPC. The only side affect i have is that I need a bit of water to accompany my food when eating. I contribute some of that to the proton therapy.

Paul

Hondo's picture
Hondo
Posts: 5742
Joined: Apr 2009

Welcome to CSN I too am NPC, hope you stay and become a part of the Family.

Hondo

NPCPaul
Posts: 8
Joined: Mar 2011

Thanks Hondo. I've lurked for a few days in the forums when I was first diagnosed with NPC back in 2009. However, I decided that I needed to step away from reading about anything and everything that can happen to me.

I'm in a better state of mind now, and hopefully I can contribute and share my experiences with anyone who needs the support.

Paul

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