Mar 09, 2011 - 11:41 pm
As many of you know I was diagnosed with stage 3 and had my bi-lateral in August 2009. I have had radiation and been on Tamoxifen. I have had pain that seems to be getting worse every week so my onc took me off the Tamox to see if it would help with the pain. I have been off for three weeks and I can't say that I have noticed much of an improvement. My pain started in my back and is now pretty much all over - back, hips, neck, joints. He has me set up to see a rhumatologist next month.
I asked about bone scans and he said that since I had DCIS it would not be a reoccurance and there was no reason to do a bone scan (I've never had one). This doesn't seem right to me and I was wondering how many others out there had been diagnosed with DCIS stage 3 who now have mets.
Any info would be appreciated.