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do you want your state to declare April EC awareness month?

K_ann1015's picture
K_ann1015
Posts: 555
Joined: Aug 2009

I am a daughter of a wonderful guy with EC. He inspires me by what he has pushed himself to do since his surgery 12/09. Unfortunately he is in the hospital right now (Duke) due to complications after having a nodule removed from his lung. the surgeon believes it is EC---pathology results have not come back yet. I could go one with our story...but-

I am determined to make a difference in the future of EC.

WHO IS IN?

If you want YOUR State to declare April 2011 EC Awareness Month, let me know.. I have done most of the leg work already---send me a csn email & I can give you more information.

Your help can get Esophageal Cancer the kind of awareness we really need to raise overall awareness, increase early detection, and build the support for more and better RESEARCH to cure this devastating disease....
Kim

K_ann1015's picture
K_ann1015
Posts: 555
Joined: Aug 2009

Love hearing from you William & Loretta!
I know---that first "news" of esophageal cancer...downright frightening. My dad still can't SAY or spell "E S O P H A G E A L". I just found out he has to stay in the hospital a little longer as air is leaking through the healing lung. Dr said this was expected as he had scar tissue from an old surgery. I have so many different prayers for him & my mom right now.

Anyway---it is not too late to try to get your state to declare April 2011 EC Awareness Month.

My state, KY did it last year---and right now they said that it should go through this year, but they are working on their March proclamations right now. ECAN has told me that they will send news releases if we want to actually publicize these proclamations. I admit, I did not publicize it last year--did not really know how. I will send you a private email--I hope I have the right one.

thanks again for continuing to share your survivor story to all newbies.
Kim

GerryS's picture
GerryS
Posts: 240
Joined: Aug 2010

for your good work. We need this awareness.

Gerry

Tina Blondek's picture
Tina Blondek
Posts: 1561
Joined: Nov 2009

Dearest Kim and your dad. So nice to see you posting again! Miss you. I tried to do this last year, but never heard a thing back. Maybe with William and I both being from Virginia will help. I will try again this year as well. Praying for you mom and dad. Hugs to all. Send me the info I need again, please :)
Tina in Va

K_ann1015's picture
K_ann1015
Posts: 555
Joined: Aug 2009

Tina-My news with my dad has been really good and sometimes I feel guilty posting it over & over. But now he is in the hospital recovering from a second surgery and has had a minor complication. He is getting very bored & is still awaiting a definite pathology report. Honestly, I think he would forgo the report if he could just go home.

I made an error---i kept thinking that William was in PA as that is where he had surgery!---So, you & him do not need to pursue EC Awareness Month in VA---IT HAS ALREADY BEEN PROCLAIMED!

ECAN has offered to send press releases & PSAs that we can share with local TV & radio stations in each state that is proclaimed during April 2011. I am glad because Mindy (from ECAN has a background as a TV anchor---I work in healthcare & this is not my strength. With all the EC community working together we can make a difference. The pancreatic cancer group has gotten very active & now people are listening---hopefully--this may be us (EC patients & families) next year!
Kim

Tina Blondek's picture
Tina Blondek
Posts: 1561
Joined: Nov 2009

Dear Kim
Woo hoo!!!! Thank you for updating me on Virginia!!! Which month are we? Thank you my dear friend. It is because of you that this has happened. Praying for you and your dad. He sounds so much like my dad. :)
Stubborn and bored. Just get me outta here! Love you Kim.
Tina in Va

K_ann1015's picture
K_ann1015
Posts: 555
Joined: Aug 2009

you're very welcome!

dad's---just can't sit still! He keeps asking my mom--"what's our next project in the barn?"--he is always fixing things... He works at the local Church Thrift shop as a volunteer and "fixes" donations worth fixing. I am about ready to mail him something to fix---even if I have to break it myself! It's only been 6 days in the hospital...

love ya Tina in VA! (glad you clarified awhile ago)---I was getting confused with all our Tina's
Kim

Bobs1wife's picture
Bobs1wife
Posts: 153
Joined: Sep 2010

I would love to know how to do this. Please help me with how to go about it. We are from Nebraska and I will sure give it a good try! Thank you, Linda

K_ann1015's picture
K_ann1015
Posts: 555
Joined: Aug 2009

Linda, I sent a private message.
Go EC Month for Nebraska!!!!
kim

llamp0922
Posts: 40
Joined: Jul 2010

I would like to have Massachusetts declare EC awareness month. Can you pass along the information?

Thank you!
Lisa

llamp0922
Posts: 40
Joined: Jul 2010

I would like to have Massachusetts declare EC awareness month. Can you pass along the information?

Thank you!
Lisa

K_ann1015's picture
K_ann1015
Posts: 555
Joined: Aug 2009

Hi everyone---
If you want info about-Send me a private message with your email. This system doesn't allow me to send attachments---so I need to send to a regular email account. thanks so much---I will keep you all updated.

thanks for all the interest!
kim

Donna70's picture
Donna70
Posts: 920
Joined: Aug 2009

Hi Kim,
I have been under the weather these past 2 wks but am better now. I just sent my request to Governor O'Malley about EC Awareness month. He declared it last year and I was given the impression it had been done before. I was sent a giant proclamation in the mail declaring it. I also just wrote to a local TV station and am trying to get them to do a story on EC for the month of April. I already wrote to Dr. Oz for April too. So lets hope they get something done. I am not a typical case so I just hope they interview my drs and let them tell the people out there that there is an increase in this type of cancer and unfortunately it is among much younger people. A friend told me that a local talk radio show had someone on yesterday giving much information about it but she did not give current statistics or what we know now as a much higher survival rate for even Stage III people. take care,
Donna70

bluedog
Posts: 2
Joined: Apr 2011

My husband was recently diagnosed, please email me @ dnchtt@yahoo.com

Thanks much

bluedog
Posts: 2
Joined: Apr 2011

My husband was recently diagnosed, please email me @ dnchtt@yahoo.com

Thanks much

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