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Daughter just diagnosed with Stage 3c melanoma

scaredmom
Posts: 2
Joined: Mar 2011

My daughter was just diagnosed with stage 3 melanoma with multiple lymph nodes involved. She is being given a chemo cocktail with 4 drugs including interferon. She is receiving 3 treatments a week every other week for three months. Does anyone have any stories of survival from this stage of Melanoma? Does this sound like the best course of treatment? I am so scared and desperate for some positive information.

proach1015
Posts: 1
Joined: Apr 2002

Hi, My prayers are with you. I am a SURVIVOR of 11 years of Stage III melanoma. I had no site of origin and 2 lymph nodes postive. I found mine as a lump under my arm and all lymph nodes were removed. I had a year of interferon- yes- not fun- hard but so worth it. I also was on a 6 year clinical trial.

You are on the right site. I am a full time volunteer with the American Cancer Society. Call 1 800 227 2354- and you can talk to a REAL person who can help you with lots of your questions. It is run by the ACS and it is open 24/7/365! It never closes.

I am here to listen if you need an ear. Pam

lovingwifedeb's picture
lovingwifedeb
Posts: 184
Joined: Aug 2010

If you would like more support please try here:
http://www.melanoma.org/community/mpip-melanoma-patients-information-page

You will most likely receive more replies at this site if you post your concerns here. If you can try to have more details with what your daughter's melanoma involvement and treatment is you will find the response will be quite detailed.

I am sorry this has happened to your daughter, I am glad she has you to help her through it.

Peace to you.

Deb
lovingwife to Bob, stage 4 melanoma

scaredmom
Posts: 2
Joined: Mar 2011

Deb,

My daughter had a positive mole removed from her thigh in Jan. 2011. Multiple node biopsies revealed that they were all positive for melanoma. She was diagnosed with stage 3c melanoma. Pet scan revealed no other masses found. She is being given interferon, chemo. and immunotherapy 3 times a week for one week then off for one then 3 more days a week etc. She will do this for 3 months, then take a month off and then start again. She has had 4 rounds of tretment so far. She has a pet scan and more blookdwork scheduled for this week and I am terrified of the results. She has lost a lot of weight and is very ill from the side effects of the drugs. Due to a heart condition cardiologists are telling us that she will not tolerate radiation of any sort. If you or anyone out there has any advice for us I would greatly appreciate any insight into this monstrous disease.

Iwearblackforme
Posts: 6
Joined: Apr 2011

I am a stage IIIB. I found a lump in my groin in Jan of 2011, 15 years after primary mole was removed from my left shin. I optedfor a cancer vaccine trial instead of he interferon chemo. I was told interferon only decrease the risk of recurrence about 10%. I am in a trial at Emory in Atlanta. So not sure where you are but it is a national study. I would check into any studies being done in your area. Mine is considered a cancer vaccine study for MAGE-A3 protein based tumors. I wish you the best and will say a prayer.

jessicarhodes's picture
jessicarhodes
Posts: 15
Joined: Mar 2011

MY daughter had a positive test from a mole on her neck in January 2006. SHE has been fighting for 5 yrs 4 months AND 4 days. It was a clarks level 4 melanoma. Best advice I have is to never miss a scan. Make sure she is getting the best medical treatment available. I would look up her dr. and see his success rate. Just to feel better. Never let your guard down be very dillegent. Melanoma is not curable but it is treatable.and she can have a long beautiful life. but she has to remember she will always have melanoma so work it in and make it a part of her life as not to forget. I wish you all the best and know exactly how you feel.

Zod66's picture
Zod66
Posts: 28
Joined: May 2008

Plenty of us survivors. Only a handful of options for treatment though and your daughters has me curious. If you've read some of our profiles & replies you'll see that those of us who chose Interferon typically had one of a couple of plans; 1) four weeks straight of high dose through an IV and then 6months three times a week of a lower dose through injection or 2) the one month high dose and 11months of the injections. I've not heard of someone stopping and starting like your daughter. Only persons I've known to add radiation to the treatments had tumors in deep areas of the body which it sounds like your daughter doesn't have.
Also curious about it being a cocktail. During the one month heavy dose infusions I was given a lot of fluids first through the IV then an anti-nausea drug and then the Interferon. The shots were not a cocktail it was 18u of pure Interferon.
Your daughter will probably not like eating much; food most likely does not taste or even smell like it should. I found cold foods to be best and I fell in love with Propel brand waters; hydration hydration hydration.
Just for clarity I would like to say that Interferon is a type of chemotherapy but is usually referred to as an Immunotherapy because our bodies produce many kinds of interferon.
If your daughter is not comfortable with what her doctor is telling her and assuming you have access to other oncologists go get another opinion. But keep in mind it will be just that, an opinion. Unfortunately there is no cure and hopefully her doctor is doing what is right for her.

thomasman
Posts: 20
Joined: May 2011

diagnosed stage 3c in may 2006. still kickin!i went through 3 1/2 years of surgeries and chemos ( did the interferon, but stopped due to recurrance, then IL-2 twice). seemed like i was on the road to ann arbor every other day. the only way i made it this far is by not letting it beat me, one day at a time, and God. i never really knew how powerless i was over things til i was diagnosed, but very glad i got a relationship with God.

jessicarhodes's picture
jessicarhodes
Posts: 15
Joined: Mar 2011

My daughter was diagnosed clarks level 4 melanoma January 2006. Her story is on here. I just had to tell you that her relationship with God has grown so much in the past couple of months. And it has been the key to her heart and understanding in all this. And the powerlessness is the hardest thing to get past. But accepting that will give you all the peace in areas of your life that its needed> KEEP Kicking it!!

jessicarhodes's picture
jessicarhodes
Posts: 15
Joined: Mar 2011

Well if any ones paying attention. you can tell I have no idea what im doing. Sorry Guys

jessicarhodes's picture
jessicarhodes
Posts: 15
Joined: Mar 2011

That comment was to you? I dont think I did it right.

boot2aboot
Posts: 2
Joined: Apr 2011

another 3c'r here...4.8 extracapsular tumor, 7 pos nodes...your daughter is on biochemotherapy-wicked but i think effective...can i ask where she is getting treatment? i will be starting this next week if pet scan tells docs i am still 3c...

menang
Posts: 35
Joined: May 2011

My husband had a 2.2mm ulcerated nodular melanoma with 3 positive nodes and is doing well after a month of high dose interferon and a year of maintenance shots. Keep the faith, educate yourself, and like fellow MPIPer Deb said, go to the melanoma patients information page. There are alot of survivors out there even at stage IV.

Best Wishes!

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