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carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

I just wonder if I should stop trying to post or if nobody is meant to read my postings--I have had several disappear and I lack the motivation to re-post. Could it be a problem with AOL?

thanks,

Carolen

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

don't know if I've missed any others, but this one came through just fine.
(((HUGS))) Maria

jloe's picture
jloe
Posts: 175
Joined: Sep 2010

Welcome!

Cafewoman53's picture
Cafewoman53
Posts: 735
Joined: Jul 2010

It happens to me occasionally too , it is aggravating when you write a post and then have it just disappear on you. Sometimes I repost and other times I don't. I don't have aol so I don't know if that is the cause. Keep posting, the more the merrier !
Colleen

pattysoo's picture
pattysoo
Posts: 173
Joined: Oct 2010

I have seen several of your posts the past couple of days...so I'm not sure how many you're missing. I find this site to be horribly slow sometimes, and I just give up waiting for it to come up. But I sure like the useful information and kind support that's here. I also post on the Alliance board and like its format better.

srwruns's picture
srwruns
Posts: 343
Joined: Oct 2010

Hi, I've seen your posts, at least the ones that were replys to other's posts. Did you start some posts? I did scan the list and didn't see you listed as the original poster except on this one...are those the ones that are missing? Hope things are going well for you.

Christine B.'s picture
Christine B.
Posts: 137
Joined: Sep 2010

Carolen, I replied to your post to Kate "Thank you for the experience...." I expressed that I am very interested in your experience/experiences as a naturopath and in particular with the IV Vit C. My brother passed away Sept. two years ago from colon cancer, he had only begun going for these treatments at the Whittaker Wellness Center in Newport Beach, CA that I had found for him. The previous four years battle with the disease was too much for him by then. Now that I am in the OVCA battle, Stage IV Sept. 10th, I am reading everything I can get my hands on about fighting cancer through nutrition because from what I learned while researching for my brother, it's a battle that has to be fought from all directions.
Thank you for you posts, and welcome.
Christine

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

Christine: do a google search on IV ascorbic acid. I have tolerated it very well. There is one clinical trial that showed some benefit in reversing or preventing drug resistance (prostate cancer case).
I think there is a synergistic benefit when used with chemo. I tried the ascorbic acid IVs prior to using chemo but it wasn't adequate. But that's when I also had a C. diff infection.

I think it is important to know you are already a survivor. Having your thoughts under control takes discipline and is critically important. I had to avoid all the people who worried about me because they made me worry. Worry is a waste of your imagination!

Best wishes to you.

Carolen

I lost several postings...maybe it was my phone's fault.

poopergirl14052's picture
poopergirl14052
Posts: 1159
Joined: Nov 2010

does this hurt going in your veins. I had iv magnesium and it hurt like the dickens but i was able to finish the bag. Mag lvel was a little off. I know potassium burns also. Thanks for your posts...val

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

Val

Regarding your question about the ascorbic acid IV therapy: I have a port so it doesn't burn at all and I think it is pH adjusted to be well-tolerated in general. I used to work as a chelation nurse (EDTA & magnesium) and I would give patients a warm towel to put over their arm to reduce the discomfort from the infusion.

I have used 12.5 to 75 grams of ascorbic acid and the only side effect I've notice is being thirsty. I read somewhere that there may be a worsening of ascites from IV ascorbic acid but this has never been my experience. I don't know if that information is based on research or just because there is extra sodium with the ascorbic acid (it is in the form of sodium ascorbate).

Do a google search on "autoschizis" to find out how the ascorbic acid destroys cancer cells...it is fascinating! It slices up the cell membrane so that the inner contents of the malignant cells spill out while doing nothing to the healthy cells.

Often doctors will say "stop taking over the counter herbs and supplements" because they are not informed about the possible nutrient-drug interactions so it is better to be safe than sorry. I can understand that--oncologists can't be experts in everything out there.

There is still an attitude that antioxidents (like ascorbic acid) should not be used with chemo because it will diminish the effect of chemo but new research has shown this NOT to be the case at all. There is some evidence that taking the IV ascorbic acid and other antioxidents before chemo can help reduce the toxicity of the chemo.

Some natural treatments that I avoid is the use of grapefruit because of the "naringin" in grapefruit and the effect narigin has on keeping drugs in circulation longer. And I avoid St. John's Wort because it increases the liver's efficiency in removing drugs. I might consider using St. John's Wort (it is like herbal Prozac without the negative effects of Prozac) 4 days AFTER chemo to bring up the low serotonin (the neurotransmitter associated with depression) level caused by the chemo. It takes about 3 weeks for St. John's Wort to take effect and by then, it would be time for another chemo so I am not using it at this time. There are ways of measuring neurotransmitter levels (the lab is NeuroScience) so I would not take St. John's Wort unless I confirmed that I needed it.

Licorice will raise blood pressure by retaining sodium and losing potassium so watch out for that one even though it is useful for helping adrenals and energy level in general. That one should be used only under supervision of a knowlegable health care provider or herbalist.

best wishes,

Carolen

zinaida's picture
zinaida
Posts: 220
Joined: Oct 2007

I have problem like this also and I am with ATT. I not have power to re-post, because I spend so much time with my Russian-English dictionary, make sure to spell best as I can and so people can understand me. First I thought it is disappear on me because it is take me so long before i can post. Thanks Carolen to bring it up. now I know it is not my fault and I feel better. (((HUGS)), Zina. :)

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

Zina

Hahahaha! I totally sympathize with you on not having the energy to repost. Sometimes I think I need to write something just to get it out of my system but that no one else is going to benefit from reading it so it just disappears.

People had said to me "Are you keeping a journal?" but I said "I don't want to remember some of the bad times." But then I get replies like "Other people need to know that you survived the bad times and it could inspire them." So I think, "Ugh! Now I have to write a book."

Then I read Lance Armstrong's book "It's not about the bike..." and I said to my alternative doctor, "Lance Armstrong had a HORRIBLE time with chemo, that's not my experience." (My bad experiences were having an undiagnosed intestinal infection and my first oncologist accuse me of being drug seeking because I kept complaining of the horrible pain I was having. Then he refused to take care of me because I didn't jump on the chemo train right away.)

Anyway, the alternative doctor said to me, "That's exactly WHY you should write a book because you are NOT having a horrible time with chemo!" True, true, true...

By the way, Zina, you are doing a great job with your second language. Maybe this discussion board is helping you to become more fluent? I hope so.

best wishes,

Carolen

zinaida's picture
zinaida
Posts: 220
Joined: Oct 2007

Thanks Carolen! For sure, the more I wright, the better I spell. But some times when I read my posts and see all the mistakes I make, I feel embarrassed (in russian I make no mistakes). And about posts of my teal sisters I read forsure benefit me in many ways. It inspires me.(((HUGS))), Zina

culka's picture
culka
Posts: 158
Joined: Oct 2009

I said to my girls on uterine board that they should use their imagination. And if I'm feeling excitement and trying to say something fast....even I can't understand.

Anyway, Carolen how many infusion of vit C will you take?
You know I'm cheap, all what I spent was $1500 for alternatives ($500 Green star juicer, $500 Vitamix and rest for herbs, what my acupuncturist/husband mixed for me). And during my BBQ/radiation treatment I was taking 12g of C orally and never had diarrhea.

vj1's picture
vj1
Posts: 151
Joined: Jun 2010

Carolen:
Enjoy reading your posts and am interested in alternative suggestions. Currently I take turmeric. Read a lot of info on the Good benefits. Can the vitamin C be taken orally or only by iv to be of value. Had Chemo in 2009 with no bad reactions, still doing well with energy, etc. Keep posting and I will look for your answers.

Thanks!

Verna

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

I am certainly no expert on ascorbic acid (AA) therapy or even alternative therapy for ovarian cancer--I only know what I am doing and how I am doing--one day at a time. I have a doctor deciding how many AA IVs I will take and I am still doing first-line treatment so I expect it will be a while before I stop the AA IVs. Or maybe I will continue them on a less frequent basis until my money or my life runs out.

My son is a PhD biochemist (considerably more skilled at searching the Internet than I am) and he found some published research done using AA on people with various types of cancer who were considered "incurables" (they were not even offered chemotherapy). I will relate what I can remember to the best of my ability as I cannot locate the information to repost:

The patients were started off on IV AA 10 grams/day for a week then followed up with up to 10 grams/day orally (I am sorry that I cannot recall the exact details). The study had mixed results. Some people died as expected. Many people did amazingly well and outlived their prognosis then declined quickly and died. A handful of people improved and were still alive after more than 3 years. The researchers commented on the ability of the people with cancer to tolerate much larger doses of oral AA than people without cancer.

The usual way of dosing ascorbic acid is "to bowel tolerance" which means taking 1 gram of AA every hour until you have diarrhea. Then you back down the dose to a total of 1 gram less than the amount that caused the diarrhea. Is this what you did to get to the 12 gram dose?

I had an ascorbic acid blood level done immediately after receiving a 50 gram IV infusion of AA. The results were below normal. The doctor's explanation was that the AA was consumed by the malignant cells and converted to hydrogen peroxide.

I don't know if anyone who has/had palpable tumors has/had pain in the tumors after chemo but that's how it went for me. My understanding is that the tumors become inflamed before they die off. I had a LOT of tumors (including one behind my vagina) so I was always paying attention to where my discomfort was after chemo.

The tumors also inflamed and hurt after the ascorbic acid IV treatments. Should I wait for double blind, multi-center trials to convince me that there is some benefit in using AA therapy? Could there be some benefit in using ascorbic acid orally to bowel tolerance? So many questions, so hard to wait for answers.

take care,

Carolen

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

I started copying the comment just before I post the comment.

When the comment disappears, I just paste it off the clipboard into a new comment and post it again.

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