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Linda, how are you doing?

Double Whammy's picture
Double Whammy
Posts: 2295
Joined: Jun 2010

It's been a week since you started on your new protocol and we haven't heard a peep from you. Please let us know how you are.

Suzanne

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I've had 2 Avastin infusions so far (I'm to get Avastin each Tuesday for 3 weeks and then I will get it every other week from then on); and I take a 50 mg Cytoxin (oral chemo) pill each day. Honestly, I can't even tell I'm in treatment; I feel that good. For instance, I took my grandkids to the BouncePlex on Sunday, a huge trampolene complex where you jump from trampolene to trampolene & even the WALLS are trampolenes you bounce off of. I didn't bounce LONG before my whole body was screaming at me to STOP, but I did DO it!

I have no idea if this chemo combo is working on my cancer, but I hope so since I feel better on this than any chemo I've tried. I'm going to the Dominican Republic with my son Eric Feb. 25th to 28th for some quality mother/son time.

It's wierd that I feel this good with 35% of my liver compromised by cancer mets. You'd think I'd be on death's door. & maybe I am, but it sure doesn't feel that way to me. I remain symptom-free, and even side-effect-free on Avastin/Cytoxin.

Thanks so much for asking about me. ((((Hugs))))

kumar
Posts: 93
Joined: Aug 2009

Hi Linda,

I am sending you postive wibes. You have not symptons for your recueence. That is great. even not bad bowel.

Pray for you.

Hope you will get magic stick.

EAT lots of turmeric.

Thanks kUmar

Kaleena's picture
Kaleena
Posts: 1122
Joined: Nov 2009

Linda:

Looking forward to hearing all about your trip to the Dominican Republic to see your son.

Kathy

Cindy Bear
Posts: 563
Joined: Jul 2009

That is great Linda.. I am so glad that you continue to feel well and are living large.. You just keep on bouncing!!! You are an inspiration to all of the ladies here.
Enjoy your wonderful vacation with son and let's hope this combination is a winning one.

Double Whammy's picture
Double Whammy
Posts: 2295
Joined: Jun 2010

Thanks for the update and am so happy it's going so well for you.
S

hopeful girl 1
Posts: 454
Joined: May 2010

It sounds like you are feeling great and that has got to mean something good!

I hope you have a wonderful trip with you son.

Cindy

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

First positive treatment news in AGES to report: my CA125 went down 200 points one week after my 1st infusion on Avastin!! It's still a horrifying 1275, but that is 200 points less than it was before I started Avastin. I had a CA125 drawn today before my 3rd Avastin infusion, and those results will tell me what 2 Avastins made happen, but I don't have those results yet. And I've been told that Avastin can cause crazy ups and downs in CA125. But my oncologist said he's very encouraged by this, so I've decided to be encouraged by it also! I believe in celebrating ANY good news, no matter how fleeting it may be!

They started me with Avastin once a week for the 1st 3 weeks to give me a big push, and after today I will get Avastin infusions every 2 weeks. I take a 50 mg. Cytoxin chemo pill each morning and will keep doing that. I continue to feel GREAT on this, almost like a chemo break. If this stuff works, I will stay on it as long as I can. I know Avastin is powerful stuff with the potential to do harm, and every week I have to pee in a cup and get my blood pressure taken twice to make sure I'm still strong enough to take this. But so far, so good, no effects showing at all yet.

So my passport is out, and I am flying to the Dominican Republic on Friday with my oldest son for some sunshine and relaxation and quality time. My chemo-onc even okayed "no more than 2" glasses of wine daily for this vacation, so LOOK OUT, WORLD! After abstaining for so long, I can't imagine how tipsy and wild 2 glasses of wine will make me! Better pack my dancing shoes!

mamasbabygirl's picture
mamasbabygirl
Posts: 29
Joined: Nov 2010

such good news linda! i am encouraged! have a wonderful. delightful time in the sun with your son! wine is gonna be fun.
travelling mercies,
malia

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Bon Voyage and have a drink on me~~

Such wonderful news and I'm pulling for you to see that CA 125 drop so fast the docs will never believe it was up that far...you go girl!

Jan

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Such wonderful news! Get your bags packed and be sure to pack your corkscrew!! I know you will have a simply marvelous time!!

Hugs and well wishes!

Karen

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

YIPPEE!
Have a great time Linda!
Barb

susafina
Posts: 134
Joined: May 2010

Linda You Go girl!!! Have a great trip and go for the gusto. Don/t let anything get in your way for having a good time! Can't wait to hear about trip!
SUE

HellieC
Posts: 439
Joined: Nov 2010

Hope you have a great holiday - I am so pleased you've had some good news prior to it - go celebrate, girl!
Kindest wishes
Helen

Ro10's picture
Ro10
Posts: 1419
Joined: Jan 2009

Hope you are enjoying your trip to the DM with your son. It is a well deserved vacation. Celebrate and have the best time ever. You are a ture inspiration. In peace and caring.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

party on Linda!!

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

You know, my short Dominican Republic vacation really showed me how important exercise is. It's been so freezing cold and windy and icy and miserable this winter that I wasn't getting outside and walking much. But over this little vacation, I felt better than I have in ages, almost 100% my old self! I'm not sure if it was the balmy sunshine or the tons of papaya and passion fruit and fresh picked bananas I ate, or the miles of beach walks I took with my son. But I feel so great!

I actually boarded the plane before my vacation with a stuffy nose, and it disappeared almost as soon as I disembarked into the sunshine. I had a hard time holding to that "2 glasses of wine daily" my oncologist okayed, and admit to a few coconuts filled with fruity tropical rum drinks. I also ate a few of the "no-no" foods for those with compromised immunity: suishi, honey, & is caviar okay?? 'cause I had that too! My digestion seemed to handle the exotic food and 5 course dinners just fine. Living large while I can; I strongly recommend it!

I have this week off of Avastin now that I've changef from weekly to every-other-week Avastin infusion, but continue to take my Cytoxin chemo pills daily. Still no side effects and no symptoms, so I'm curious to see what my CA125 is next Tuesday when I get labs again. Life is good!

Pat51
Posts: 111
Joined: Feb 2011

Linda,

I am so glad that you had a great vacation, it sounds like it was awesome!

Pat

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Linda, it sounds like you had a spectacular trip. I love you new picture although I am a tiny bit jealous! I think the caviar was probably just what you body needed! Sounds like a most exotic meal and drink plan....sipping from coconuts, etc.

Know you and your Son will always cherish the time together.

Am sure your CA 125 will be WAAAY down!!

Karen

Kaleena's picture
Kaleena
Posts: 1122
Joined: Nov 2009

Thanks for the update. Sounds like a wonderful time. Love the new pict! I'm getting spring fever!

Kathy

HellieC
Posts: 439
Joined: Nov 2010

Sitting in the dark, damp and gloom of an English Spring day (come on sun, show your face - the lambs have been born and need your warmth) I was transported to somewhere magical reading your posts.
I am so glad the holiday was so great - and I am sure that any gyn/onc would say that caviar was a diet "must have"!
I have my fingers crossed for you next Tuesday. In fact, I have everything that can be crossed, crossed, as I have the results of my post surgery/post chemo CT scan next Wednesday!
Kindest wishes
Helen

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