Let me start over...

jo jo
jo jo Member Posts: 1,175
in Breast Cancer #1
My first post was so depressing that i didnt want to be such a bummer...even fighting depression i can still try and be happy soooo I want to start over...

HI EVERYONE...I HAVE MISSED YOU ...im happy to see so many familiar faces and new ones too! I do have some good news...i got my health insurance back and i have started going back to my doctors appointments and started physical therapy again YEAH!
Its a good thing to cuz over the past few months i have had all these weird side effects...you know me, if its weird, unusual or just plain unheard of ...i get it!! It turns out that im allergic to the tamoxifen and im experincing some rare side effects/ allergic reactions to it, one example...i have dark brown vein looking lines all up and down my legs...its so attractive i think i want to keep them...hehe! If nothing else i like seeing peoples faces when they see it...it grosses people out! So they ended up taking me off the tamoxifen to see what allergic symptoms are from it and which ones are not (to many to list) also cuz my doc thinks i may be in menopause and we all know you dont take tamoxifen if your in menapause, so for 6 weeks i cant take any pills so they can determine this. Which thats awesome NO PILLS FOR 6 WHOLE WEEKS! (for those who dont know...i am NOT a pill person).

I go to therapy so i can be tortured for this frozen shoulder...which my therapist says we have to thaw it out...hehe! I will be so happy to finally be able to use my arm again...its seems this has been going on forever!

Anyway i want to thank you girls for being so AWESOME! I dont like being a bummer cuz one thing we all know is life is short and we may not like the hand we were dealt with but we can still try and make the best of it.
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Comments

  • jphilpo
    jphilpo Member Posts: 177
    #2
    Hi
    Welcome back and I have missed your smiling face! I too have been struggling with "issues", and it is so nice to be able to come to a place where you are helped. I hope you feel better

    Jean
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #3
    Welcome back! It's really
    Welcome back! It's really nice to see your smile again! Glad to hear the insurance is back and that you're getting the help you need.

    Hugs,

    Linda
  • jessiesmom1
    jessiesmom1 Member Posts: 915 Member
    #4
    Your frozen shoulder
    This post is SO much more cheerful than the last one. I certainly know what it is like to feel depressed.

    Your mention of frozen shoulder struck me. I am glad to know that I am not the only one with that particular problem. Mine started with the axillary dissection and definitely did not improve any after the mastectomy. I went to PT for a while but the chemo made me too sick to go to PT. By the time chemo was over and I was feeling better my shoulder was really a mess. I wound up going to an orthopedist and the Mon. after Thanksgiving 2010 I had surgery. He said I had very dense adhesions in the shoulder joint which he removed along with a piece of the end of my clavicle (collarbone). I am now going to PT 3x/week. Twice a week I take an exercise class at the Y called Living Strong Living Well. It is specifically for cancer patients/survivors. I am determined to get my complete range of motion back. So far so good but it is neither easy nor fun.
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #5
    You are never a bummer and
    You are never a bummer and it is lovely to see your smiling face again! I am so sorry that you have been having troubles though. You are in my thoughts and prayers.
  • ms.sunshine
    ms.sunshine Member Posts: 707 Member
    #6
    Gabe N Abby Mom said:

    Welcome back! It's really
    Welcome back! It's really nice to see your smile again! Glad to hear the insurance is back and that you're getting the help you need.

    Hugs,

    Linda

    Welcome back friend
    I've missed your humor, and the ability to look at the good side of a crappy situation. And if there isn't one, well we'll just make one up. Haha, the mind is a terrible thing to waste.
    Take care
    Jennifer
  • pattimc
    pattimc Member Posts: 431
    #7
    Great to see you
    Hope things get better for you...I had frozen shoulder once, too. It thawed on it's own! Weird, I know...didn't do any PT or anything. It was very, very painful though!

    Hang tough sister!

    Patti
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #8
    pattimc said:

    Great to see you
    Hope things get better for you...I had frozen shoulder once, too. It thawed on it's own! Weird, I know...didn't do any PT or anything. It was very, very painful though!

    Hang tough sister!

    Patti

    Hi Jo Jo
    Nice to hear from you again. Keep checking in with us. Very happy to hear you have health insurance again.

    Suzanne
  • sparkle1
    sparkle1 Member Posts: 242
    #9
    Welcome back Jo Jo. I've
    Welcome back Jo Jo. I've missed seeing your smiling face. Sorry you are having these issues but glad you got your insurance back. You have a great attitude and it's contagious.
    Sparkle
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    #10
    sparkle1 said:

    Welcome back Jo Jo. I've
    Welcome back Jo Jo. I've missed seeing your smiling face. Sorry you are having these issues but glad you got your insurance back. You have a great attitude and it's contagious.
    Sparkle

    Good to hear from you Jo Jo.
    Good to hear from you Jo Jo. I have also missed your smiling face.
    Hugs,
    Wanda
  • Jean 0609
    Jean 0609 Member Posts: 2,462
    #11
    Hey girl!!!!!
    We missed you. Thanks for checking in. Don't feel bad for your first post. You know that's why we are here.

    xoxo,
    Jean
  • carkris
    carkris Member Posts: 4,553 Member
    #12
    Jean 0609 said:

    Hey girl!!!!!
    We missed you. Thanks for checking in. Don't feel bad for your first post. You know that's why we are here.

    xoxo,
    Jean

    yay you are back! missed
    yay you are back! missed you and glad you are getting back on an upward trend. It has been a tough year for you , not just cancer related!
  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    #13
    JoJo... it's always good to
    JoJo... it's always good to hear from you whether you are having some tough days or not. We are here for you no matter what.

    It's wonderful to hear your insurance is back! Great news.

    Tamoxifen might not of worked for you, but don't worry because the doctors will come up with something else. Those side effects you describe sound awful, but at least you know what was causing them.

    Enjoy your 6 week break from pills. I wish I could say the same. Hang in there. You are like a ray of sunshine on the board. I appreciate your upbeat nature, but I can understand if sometimes you feel a little blue. We all have days like that.

    Take care, God bless.
    BL
  • Marcia527
    Marcia527 Member Posts: 2,729
    #14
    I had to go to physical
    I had to go to physical therapy for frozen shoulder too and I know how painful it is. I almost passed out during one session. That's when I found out why they had smelling salts taped to the wall! It's necessary though because I never could have gotten it unfrozen by myself. Hard to believe mine was caused because I didn't move my arm after surgery. My sister's doc gave her exercises to do but mine didn't. hang in there.
  • pinkkari09
    pinkkari09 Member Posts: 877
    #15
    Hi Jo Jo its good to see
    Hi Jo Jo its good to see your beautiful smile!! I'm back after leaving for awhile, can't stay away from this place, it's a life saver!!
    Mountains of Love,
    ~Kari
  • Kat11
    Kat11 Member Posts: 1,931 Member
    #16
    Marcia527 said:

    I had to go to physical
    I had to go to physical therapy for frozen shoulder too and I know how painful it is. I almost passed out during one session. That's when I found out why they had smelling salts taped to the wall! It's necessary though because I never could have gotten it unfrozen by myself. Hard to believe mine was caused because I didn't move my arm after surgery. My sister's doc gave her exercises to do but mine didn't. hang in there.

    Welcome back, sorry for what
    Welcome back, sorry for what your going through.
  • missrenee
    missrenee Member Posts: 2,136 Member
    #17
    pinkkari09 said:

    Hi Jo Jo its good to see
    Hi Jo Jo its good to see your beautiful smile!! I'm back after leaving for awhile, can't stay away from this place, it's a life saver!!
    Mountains of Love,
    ~Kari

    Glad our JoJo is back!
    Kari is right--we can run, but we can't hide--not for long! We'll take you anyway we can--good days and bad. Just keep comin' back.

    Hugs, Renee
  • smalldoggroomer
    smalldoggroomer Member Posts: 1,184
    #18
    Hey JoJo, I'm so happy to
    Hey JoJo, I'm so happy to see you here again. So glad you are back and got your ins back. I was hoping your shoulder would be better now? please keep us posted we was all worried about you. Take care darlin Kay
  • sea60
    sea60 Member Posts: 2,613
    #19
    smalldoggroomer said:

    Hey JoJo, I'm so happy to
    Hey JoJo, I'm so happy to see you here again. So glad you are back and got your ins back. I was hoping your shoulder would be better now? please keep us posted we was all worried about you. Take care darlin Kay

    It's good to hear from you!
    Yuck! I don't like taking tamoxifen. The leg cramping is bad for me. And I still get really bad heart palpatations...I think it might be from that drug.

    So glad you're back...you're a strong gal!

    Hugs,

    Sylvia
  • fauxma
    fauxma Member Posts: 3,577 Member
    #20
    sea60 said:

    It's good to hear from you!
    Yuck! I don't like taking tamoxifen. The leg cramping is bad for me. And I still get really bad heart palpatations...I think it might be from that drug.

    So glad you're back...you're a strong gal!

    Hugs,

    Sylvia

    I am so happy to see you
    I am so happy to see you back on here. Sorry for all the issues but I know you will deal with them step by step and bit by bit. As far as the other post and depression, don't try to sugar coat the down feelings. They are real and it is not good to try and ignore them. Acknowledge them and then go from there. It may be you need some of that, I know you hate it, medicine but you might also be able to deal with it other ways. Talking it out can certainly help and we are here for you to do that. But the best thing is that you are here and we love that you are back.
    Stef
  • ladyg
    ladyg Member Posts: 1,577
    #21
    Glad to see you are back.
    I have had a lot of issue with my shoulder as well and that was before by BC. My PC said it was not quite frozen but pretty close. I started going to water aerobics and it helped a lot. When I had my surgery I couldn't go for a couple of weeks and it started getting worse. I did go back before my rads started and it was again helping. Then of course I couldn't go during rads and it got pretty bad. Since I finished rads and started the water aerobics it has gotten so much better. Maybe you could give that a try.

    Hugs,
    Georgia

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