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my mother's story

RizzeRod
Posts: 5
Joined: Nov 2010

hello, everyone i just want to start by saying God Bless all of you. here's my story: my mother was diagnosed with small cell lung cancer in mid Sept. 2010. she went to the hospital complaining of severe back pain. she was then told by the Dr's that it was sciatica not to worry go home and it'll be fine in a few days (ho hum). two days later the pain was still very intense, i told er to go back to the hospital. she was then told the same thing all over again. we however demanded a x-ray. low and behold they found a spot on it and she was told she had to stay to take a biopsy. as the days passed in the hospital were received the grim news that it was indeed lung cancer (small cell) they began treating her immediately. she was told from the very beginning that she was dying that she wouldnt live much longer. i was heartbroken and dumbfounded alike why would a hospital be so blunt without sitting the family down and explaining everything to us. almost everything i learned about cancer i did my own research. this hospital sucks. i feel they treat theyre patients as statistics and not as humans thats my most of their patients dont live long. Long story short my mother's cancer was staged as limited eventhough she had a tumor in lung and in her neck. she was treated with chemo and radiation. we were told after the 1st round that she's doing marvelous and is exceding the expectations. no tumors were found after the pet scan. she was slated to get brain radiation in march. but needed 1 more round of chemo 1st. we had a severe snow storm here in the northeast which delayed the chemo. then all of a sudden my mom started having severe pains in her leg close to the hip. we told the oncologist and they did a x-ray couldn't find anything, so the following day they did an MRI and it was detected that her cancer is no longer in her lung and neck but has appeared in the hip bone in between the joint. i'm heartbroken im im looking for some advice, well wishes and alot of prayers and alternatives. due to her insurance policy it has been very difficult to go to another facility. i honestly feel this hospital is slowly killing my mother more than the cancer. im a concerned and loving son, my mother is 52 years old and is too young for me to lose her.. p.s she was indeed a smoker. thank you for reading my long drawn out story. please pray for us, thank you all.

ddevil41
Posts: 11
Joined: Oct 2009

Hi riz, wow sorry bout your mom dude.I feel for you with the hospital thing, I went to a "cancer institute" where I was a 7000.00 a week number, not a patient and certainly not Gary. My care was so bad that I quit chemo before I was supposed to. Then ( after the trillionth commercial ) I called cancer treatment centers of america. Best move I ever made. They found a tumor that didn't show on a pet scan and removed the rest of my left lung. But with any luck I'm cured now. You Might look into them online. Anyway good luck and god bless, Gary

RizzeRod
Posts: 5
Joined: Nov 2010

Know the feeling thanks for sharing, we called the cancer treatment center of America. Unfortunately we cannot afford their services. I really wish there was a way. Because they "hospital my mother is being treated at" definitely got us feeling like their is no hope. I hope that you are indeed cured. God bless.

jasamarenumberone
Posts: 13
Joined: Feb 2011

Hi,

I find it interesting that you said that the doctors told your mom not to worry about her pains and told her to go home twice, and YOU GUYS were the ones that demanded the X ray that revealed the cancer. Do these doctors not know what they're doing?? Unbelievable.

Your story is a bit similar to my dad's. He has Small Cell as well, and I know exactly what you are going through. He was told about cancer July of last year, and the doctors weren't optimistic. I am 23 years years old, and my dad has way too much to live for. He needs to be there at my wedding, and see his grandchildren, etc.

This is a really tough road, since we are their kids and all we want is for our parents to live. They have done so much for us.

I am researching about this cancer, for some type of cure, and I'm praying that scientists will find it. People should be working hard on this every second of every day! This is such an unfair illness. God Bless you and you mom.

RizzeRod
Posts: 5
Joined: Nov 2010

Thank you so much for your well wishes and blessings. I want to extend my blessing to you and your dad as well. Were all one family in this fight. Ill do what ever it takes to see my mother get cured. I wish I studied harder in school and became a scientist. I myself was just thinking about things that seem like they should be experimented in labs. The Lysol theory. I was thinking maybe scientist should look into this seriously. If Lysol can kill germs effectively. Maybe it can kill cancer cells as well. Of course used in a much safer and medically responsible way. Oh well just thinking.

cleanfreak79
Posts: 2
Joined: Feb 2011

my thoughts and prayers are with you and your family. i competely understand you frusrtation and pain. my father was diagnosed with sclc in july of 2010, and we have the exact same ill feelings towards the hospital and cancer center hes dealt with throughought this cancer. my father, too, smoked, but due to an early detection of copd, hasnt lit a cig in nearly 15 years. he fell out of bed in early july, and after a week or so of pain, decided to go get it checked out. he had lung screenings every month due to the copd, so he figured it was a broken rib. neither my father, nor our huge family c,ould comprehend what came next. how could it be cancer, he had lung screenings every month, how could they not have seen it. or was it that bad that it spread that fast. now, six months later, and two different rounds of chemo, my fathers still with us. luckly, he was never terrible sick from the chemo, the only side effects he experienced were weight loss, and tiredness. then, a few weeks ago, my father fell again, this time on ice ( i dont need ur help to walk, he said, its my lungs that r bad, not my legs) another trip to the doctor lead us to now, waiting for the catscan to be scheduled to see if there is even a need for anymore chemo, or if, like dad puts it, it time. home hospice is regularly coming the their house, wills are being made, and i just want to scream. my dad my be 70, but im only 30, and i still need him around. before this last visit to the docs, dad was ready to fight forever, but after monday, when they told him the cscan MIGHT show they nothing else to do, hes already giving up. im researching anything that may help to give my dad some more years with us. the worst thing of this whole situtaion is on july 10th, my father finally retired after working eveyday of his life since he was 14 years old. two weeks of retitement, and then cancer. he gave me and my mom and 5 brothers and sisters eveything, and now we just want to give him more time... please let me know if u hear anything to help with sclc

RizzeRod
Posts: 5
Joined: Nov 2010

yeah i know the feeling. i wish there was a cure or atleast somethoing out there to prlong life. just thinking about my mother not being around is too much for me to fathom. stay strong and keep reading the discussion boards there are alot of great info on there. i read on someones post that there is a 14 year sclc survivor. stay strong.

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