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FIRST DENTAL VISIT SINCE COMPLETING TREATMENT

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

I had my first dental exam since completing treatment on Oct. 20. All seems to look real good. I have 1-2 sensitive spots on my gums, but teeth look good and strong.

Curious to know if you have had dental issues, how far out past your treatment date did they occur. My dentist says from his experience he sees damage pretty soon after radiation stops???

BEST

Mike

SASH's picture
SASH
Posts: 284
Joined: Apr 2006

Mine were good for a year or two, then downhill. Before treatment, never had a cavity. They did remove 8 molars and 4 wisdom teeth preventatively before treatment. Only 1 wisdom tooth had a little decay and was impacted. Over the past few years I have had many cavities and 3 more have come out. An additional 2 are almost gone and the dentist wants to do root canals and crowns to try and keep them. I'm at the point just let me keep them until there is nothing left of them and then we will take them out.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I had my three wisdom teeth (4th was never there ?? lol) and then the molars next to them pulled before rads. Only one of the wisdom teeth had issues and it was cracked. The rest were fine but had to go. I was pretty good from May till October then by the next appt it was really bad. They went down hill fast. I have been working on getting about every tooth filled. We are waiting to see if I am going to have to have root canals. (I am going broke now with 20 fillings. Root canal is going to wipe me out) Tooth 19 is very bad. He told me I won't be taking it to my grave. I don't have insurance for HBO treatments and the thought of having that tooth pulled without HBO treatments gets me into a sickening panic. My mouth is just so extremely dry. :(

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

So far similar to you...had three exams so far (six months apart).

A few fillings (not unusual for me), and a crown from an old deteriorated set of fillings, (also not unusual for me)...

John

ratface's picture
ratface
Posts: 1254
Joined: Aug 2009

I am currently having a problem with my #19 also. I've needed two root canals and one crown since treatment, appx 18 months ago. #19 has to be extracted because the root canal on it has failed and it keeps abcessing. The plan is to gently lift it out over a 4-6 week period using a spring/wire contraption. I've had two fittings for the contraption and schedule for installation next week. I'm a regular there.

CrimsonRacing's picture
CrimsonRacing
Posts: 17
Joined: Feb 2011

I had all my teeth remove prior to Rad and Chemo because of the research I did,I knew it was not gonna be a good thing in the long run.Because of the way I treated my teeth as a young man they were not in the best of shape....Right now,I am waiting to get the swallowing thing to improve so I can have the final adjustment to my dentures and begin wearing them again.

Richard

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

I guess now I want to drill down a little further.

Did all of you have good or bad teeth / dental issues before treatment??

Me, I had great teeth with twice annually visits to the dentist sinch childhood.

Mike

miccmill's picture
miccmill
Posts: 248
Joined: May 2010

Glenn had bad teeth plus gingivitis so they were all removed (28 extractions).

He's 6.5 months post radiation and is in his 2nd week with dentures. They did not clear him for dentures until he was 6 months out of treatment.

Big adjustment but he looks great.

He's been busy test driving them at Dennys everyday last week and this week.

Lisa

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

Sorry, I know...don't mean to be one of those, LOL...

My teeth weren't great, I've always had a lot of fillings since childhood. In that being done, it seems they only last ten years or so before the start deteriorating and have to be drilled more, with larger fillings. Eventually that has started leading to one root canal and and two crowns. One crown before treatment, the other after....

JG

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

Funny, last night I was at a drinks night with a bunch of Dentists visiting on a convention. I pinned a couple and asked about Oncologal Dentistry. Of course they sucked air through their teeth and shook their heads sadly and started to tell me about the problems: Xerostomia, teeth erosion, jaw damage, etc.

I then told then I was a survivor. They were a little embarrassed that they had made the situation seem very grave but then one of them pulled out a tube of GC Mousse from his pocket and said "This is the stuff you need". He also had some lozenges from the same company and said that you can only get these products through your Dentist in Australia.

The stuff is made in Japan which is where I am this week and you can buy this stuff at the drug store or local 7/11. I will be loading up. I have been using it for over year and it's great. Apply at night. Protect yr teeth from erosion due to lack of saliva. So far my teething are doing great.

Here is a good link which tells you all about it.

http://www.gcindiadental.com/images/documents/tooth_mousse_portfolio.pdf

Regds
Scam

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

One root canal and two Crowns since treatment ended, with two more Crowns in the near-future. Main issue, though, is the erosion- have lost the tops off all my teeth, and top two front teeth had chips and a vertical crack in each before they were rebuilt. Thing that is kinda scary about it all- my teeth are getting so short that if I ever do have to get them pulled- will definitely take surgery, as there's getting to be very little to actually be able to take hold of to pull them. Times I look at them and wished I had them all pulled before treatment began.

kcass

Jimbo55's picture
Jimbo55
Posts: 572
Joined: Jun 2010

Hi Scam, I've located a source for the GC tooth mousse in Bangkok and will give it a try. Do you use it in conjunction with the flouride trays or in place of them? Cheers

Jimbo

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

I don't use fluoride trays at all. I floss frequesntly, use a sonic toothbrush and Pro-namel toothpaste and then the GC Mousse at night. Hope this helps Mate.

Scam

MarineE5
Posts: 762
Joined: Dec 2005

Mike,

I was on the border of having all my teeth removed or trying to keep what I had. The cancer Dentist stated that I would need to do the flouride trays daily for the rest of my life or wear dentures in the future.

I chose to keep my remaining teeth and he was happy I decided to do so. I do use the trays daily, and have recently been using the PreviDent 5000 gel when I brush that has the flouride in it. I have put the trays away for now, but I can fall back on them if I feel the Flouride gel isn't doing it's job as good as the Flouride in the trays. Either way, I maintain a daily routine.

To answer your question, I am 6 years out of treatment and I had 2 teeth capped, but that was due to me trying to eat some hard candy once and my teeth cracked. I had 1 tiny cavity filled and it was so small, that I didn't need any novocaine to numb the area.

My Best to You and Everyone Here

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

I also use the Prevadent tooth paste and a Phillips Sonicare brush. I think upgrading to this brush has really helped me. My docs have not considered flouride trays for me. At least not yet. I now will visit my Dentist every 90 days VS every 6 Mos.

Best of luck

Mike

buzz99's picture
buzz99
Posts: 404
Joined: Sep 2010

Reading these posts inspires me to nag Buzz about his fluoride trays. He has skipped several applications due to mouth soreness but magic mw befoe using them helps. He had sub-average teeth prior to treatment. When can a cleaning be tolerated. He is almost 5 weeks post treatment.

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Hey Mike,

I never had a cavity in my life. Now I brush and floss 5 times a day, but still think my teeth are getting bad. I have the fouride trays but only use them a couple times a week as the stuff I use burns the heck out of my mouth. I'll need to check out the info Scam posted here. Have my 2nd dentist appointment next week since tx ended. I now get nervous going to dentist just like I do when I go get scoped just due to the stories I hear about all the teeth issues everyone has. Plus it seems I'm at that point (10 months out) where dental problems start up.

Hang in there Bro'!

Greg

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

I was very nervous yesterday before the cleaning. Actually I only had 2 very small spots where my gum or tooth right at the gum line was senitive. My dentist told me from his experience, he usually sees damage from radiation fairly quickly. He said upon exam, my teeth looked great. I then also reminded him of our little nuclear gift that keeps on giving.

On the flipside, how the hell are ya??

Mike

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Nothin' to complain about......but I still do. Actually doing pretty well. Energy level is high and probably keeping busier than before c. Work is still an issue with me as I'm averaging well over 55 hours a week. Just not into the corporate politics and everything that goes with it. I guess I'll learn to like my job again or will find something less stressful. If that's the worst of my issues, I got it lucky.

I have a few phsyical issues - super cold, only at certain times of the day (thyroid??) and thought I'd try accupuncture to try and help with saliva. Will probably start a new thread on those and get everyone's opinion.

Waiting for that warm weather to hit!

Greg

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

Did you find plain old time or exercise to be more of a factor in increased energy levels.

I made it to the gym twice this week and it really wore me out. The night of my second day at the gym, I fell asleep watching tv at 7:45.

Good to hear you are feeling better all the time.

Yes, the cold weather stops me dead in my tracks.

Mike

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Kinda the age old question. I think as time got further along I had a little more energy and with that energy I would try and exercise more which gave me more energy so I was able to work out a litte more which............Oh you get the picture. Time for sure helped, but working out and increasing it little by little helped as well. Wasn't a powerlifter like you, but did do heavy weights prior. I'm up to what I'd call medium weights 3 days a week now along with walking 4-6 miles a pop twice a week (bad knee, can't run) and even throwing in TaiChi once a week.

But I am in bed by 9 pm every nite now versus staying up to 11 or 12 before.

Greg

MarineE5
Posts: 762
Joined: Dec 2005

Buzz,

Hold off a bit on getting Buzz to the Dentist to have his teeth cleaned. Something I just learned from a VA Dentist. He recommended that no matter where I go to have my teeth cleaned, plac removed, to not allow the person cleaning my teeth to use the gritty paste that they use to whitten our teeth. He said that the rotating brush with the gritty paste actually removes any enamel we still have on our teeth.

Yes, Buzz needs to use the Flouride trays daily, and I know at times there can be some discomfort. When I ran into that problem, I used my finger to rub some Flouride around my teeth until my gums calmed down. My gums would act up when ever I ate something a bit harder then what I would normally eat. If I tried eating a salad with croutons, the next day or so, my gums were sore, so I don't do that anymore.

My Best to Both of You and Everyone Here

sabriene
Posts: 27
Joined: Aug 2006

Hi Mike:

Mike at the onset this was a tough decision in my situation. I had kept my teeth in excellent shape prior to the disease. Rad. doctor wanted all teeth removed prior to treatment apparently due to the severe treatment down the road. Tell you the truth that item wasn't what I had in mind. Dentist sent me to the oral surgeon for dentist felt there could be a healing time problem. Oral surgeon agree take to long for mouth to heal and he needs to start treatment now. Make a long story short I was like many others approximately a year after treatment the crowns started coming loose, then an expensive bridge, and to follow were some root canals then quite a few new crowns on what teeth I have left. Yes the nice part of it all I still have enough teeth to chew and thankful for that part. However, it has all been very costly out of pocket expense for me. I am kind of glad on one hand it worked out this way for me for recently I learned some with dentures have a difficult time keeping them in with eating. We hope in your situation it hasn't effected your sal. glands like mind. My last treatment was June 06 and today still cannot do well eating much of any meat which I use to really enjoy. However, one can live w/out it very well for I seem to have adjusted. Like I tell people yes we seem to be able to kill the bad cells and keep us alive but it sure does take a toe on ones quality of life.

Mike, my suggestion is just to watch them very closely for one sure doesn't want to let one get infected for then that can result in very serious problems. If you recall I believe that may what happen to Bobby Hamilton the Nascar driver.

We all wish you the best and do watch the teeth.

Roger

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

Thanks for the reply. I have dental visits every 90 days going forward. I guess I will have to adress the issues in the future if they happen. Kind of sounds like they will happen eventually.

I too have no saliva, and have only been out of treatment since Oct. 20th. I do not know if it is too soon to tell if my saliva glands are shot for good, or more time will be needed to see if they do produce saliva again.

Best!!

Mike

Ed_PortOrange's picture
Ed_PortOrange
Posts: 110
Joined: Jun 2010

I had my second post treatment visit with the Cancer dentist at Shands Cancer Ctr. here in Florida yesterday. We also met prior to the start of rads and chemo and the joint decision was to leave my teeth as is, even though my molars had several amalgam fillings and I had a partial plate on top. From day 1 she has emphasized the use of floride trays on a daily basis. I have followed those guidelines for the past eleven months and she felt that is the key to reduced problems in the future. That along with regular visits to my own dentist for periodic cleanings.

I currently use Prevident 1.1% sodium floride which is prescribed but she said that the over the counter product Gelcam also works. The down side of the otc is that some people feel it stains their teeth.

Keep a smile through it all,

Ed

susan0803's picture
susan0803
Posts: 90
Joined: Aug 2010

Teeth:
Has anyone tried Trident Extra Care with Recaldent? My husband found on wikipedia that Recaldent is the same ingredient that is in the GC Mousse that Scam recommends - a casein derived ingredient.

http://en.wikipedia.org/wiki/Recaldent

Joe ordered the GC Mousse and it came direct from Australia. He hasn't started using it but he is going to, and also going to start using Trident Extra Care Gum during the day.

Does anyone know more about Recaldent?

Saliva:
Joe has some saliva after rads (luckily), and I think is able get a little more saliva by chewing Biotene Gum (and the other Biotene products everyone here mentions). He also sucks on sugar free lemon drops. One of his oncologists said this would help increase saliva production.

Has anyone had luck increasing saliva with other methods?

One last question:
Does anyone know if there are tests Joe can do now (he is only a few months post treatment) to determine how much saliva he lost and how much jaw/bone damage he had from the rads? Or could it be 2+ years down the road that his teeth start having more issues?

Let me know if I should post this as a separate discussion thread - I saw other posts today on flouride. Personally, can see both sids of the flouride argument.

Thanks!
Suzanne

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