Feb 10, 2011 - 1:54 am
I have appreciated reading all of your posts since Oct. I've started a new thread because I've asked some of you questions before and then I can go back and find the original post (I'll get the hang of this). I have a question that hopefully someone can answer. My husband had a branchial cleft cyst removed in neck that was sent to three pathologists, all said metastatic squamous cell carcinoma. Ears nose throat Doctor said we needed to do a radical neck dissection. We refused. Did a PET scan nothing showed (I mentioned this earlier in a post). Had all but 7 teeth pulled to get ready for radiation. Had a second ENT Doctor opinion who last week put my husband under and did a search with several biopsies done. He can find no cancer. Next week we have a 3rd appt. with Oncologist to discuss radiation (he insisted on second ENT doc). He is from India and difficult to understand. We live in a small town, not many options. He is an hour and a half away. Have any of you heard of, "since we don't know where it is, we'll have to radiate all of the neck and not just one spot." They made it sound like it'd be better to have found a spot on the base of the tongue, that way they would radiate that one spot. So do we insist on radiation pinpointed on just the spot where his cyst was? The ENT Doc said it was possible that that was where the cancer originated from. We've had tests and PET and CT's since Oct not to mention the surgery and we want to do something already! Like my husband said, if I had three weeks to live I'd be dead already! I tell him about all of you and he really appreciates it (he's leery of the computer). We've learned so much from all of you, Pegs and fluoride trays, 4 songs during radiation, things we've never heard of before. Thanks for any experience on our situation.