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Superthread Idea. Post Any Commentary For Superthread Here.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Okay. So I have had this idea for a while and I finally finished all the work on it. I had an idea for a superthread filled with tips in the form of links about the FAQ we always get, as well as things that we have found useful during treatment. Something all in one spot so to speak that we could give to newbies to have and read when they are overwhelmed. Instead of them using searches every where we provide helpful links pertaining to HNC and the various stages and things that we go thru.

*** I WOULD LIKE TO KEEP THE THREAD TO LINKS ONLY *** No commentary or extraneous stuff. Just links to things that you found helpful before, during and after treatment.

Obviously the compilation of links is sort of skewed by my experience. People who have gone through chemo could add things there. NPC and BOT survivors may have other things to add.

Hoping for an informative and inspirational thread.

Hal61's picture
Hal61
Posts: 656
Joined: Dec 2009

Thanks Sweet, excellent job, and I and all of us appreciate your effort. Such a good list! It's needed doing for a long time. How to refer it to people. I just searched the site using "superthread" and your "commentary" post comes up, not the links post itself. You and John are the brains behind this, so maybe you can think of some way the "Superthread" post itself can be renamed so that it comes up. I tried "superthread" and "HNC Superthread" and got the commentary post only. I'm sure there is a way, and you are obviously the smart one.

thanks, Hal

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Try it again. I think it wasn't coming up because I was working on it. I am going to save it on my favorites so I know where it is. I would think it should come up if you search Superthread. I will have to think. I have been working on it all day and truth be told I have a wicked headache and can't think. Lol. I did all this on my iPhone. :) Wasn't easy but was a labor of love. :)

Hal61's picture
Hal61
Posts: 656
Joined: Dec 2009

Hi Sweet, a search still brings up your commentary post. But, I think if you just make a link to your Superthread post that would do it, if you can do it. Don't go it if you have a headache, do it tomorrow.

best, Hal

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Hmmm. Why isn't that working. I don't understand why a search only pulls up the commentary thread. Maybe John will know. Do you mean post a link here for the Superthread? I can do that. You do realize that will drive me nuts all damn night, the OCD maniac that I am.

http://csn.cancer.org/node/211864

HEAD AND NECK CANCER SUPERTHREAD

Skiffin16's picture
Skiffin16
Posts: 8062
Joined: Sep 2009

On No...

I've created a LINKS monster...

Just teasing, awesome thread and great amount of work you did to get it looking and working good...

WTG Dawn...

BTW, I just searched using the "Search CSN content", only put in Superthread, and it came up for me, second down from this thread coming up...

John

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I came up for ms this morning.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Ratface, Roz, Hondo...and all. Thank you so much for the complients. I appreciate them. Yes, John did create a monster. I thought I would use my powers for good and not evil. Lol. ;-)

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

The above is supposed to say:

It came up for me this morning.

The above post is what happens when you try and type on your iPhone without reading glasses. Sheesh. Lol

susan0803's picture
susan0803
Posts: 90
Joined: Aug 2010

Hi Dawn,
I think that's a great idea. Is there a way we can name the link something specific to HNC FAQ/Tips?

I tried going to your link today:
http://csn.cancer.org/node/211864

and it said Page not found.

maybe I tried the wrong link?

Thanks much for working on this!
Suzanne

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Sweet,

Great idea! A friend of mine just finished treatments so I'll copy that and forward to him. Should be a great help. I told him about our site but haven't seen him on here, unless he's "lurking" out there (Matt, you out there??????).

Positive thoughts!

Greg

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Thanks Greg. Hope it can help your friend. if I ever helps one person it will be work the work.

Sue, I will consider renaming the thread, but I want it to be more than just FAQ. I will carefully consider your suggestion. The reason why that link doesn't work is a very long story. But it is still on the first page. Also if you type in 'superthread' in the search content it will always come up. Why are you thinking rename it? For search purposes? Just trying to figure out your thoughts to help me while I edit it and add and build it. Thank you. :)

susan0803's picture
susan0803
Posts: 90
Joined: Aug 2010

Hi SweetBlood,
Yes, my suggestion of renaming it was more for search purposes. I guess what I was thinking was how would a new member know how to find it? It could very possibly be that I am the one sometines not knowing where to go on this site, or what thread to follow or search for (more than likely :-) ). I really appreciate the work you are doing - and appreciate you thinking of my input! I seriously won't be insulted at all if you don't rename it. The idea is a super one - regardless!

let me try again getting to the link by searching for "superthread". I'll let you know if I have comments.

Thanks again!
Suzanne

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

That you did John, Great job Sweet

susan0803's picture
susan0803
Posts: 90
Joined: Aug 2010

Dawn,
I think I was trying to follow the wrong link that was just called "superthread". Now I see that the name is actually HNC Superthread.... FAQs.

So it was my bad! Told ya I don't navigate this board very well. (I think part of the problem is I just get on here when I can which is sporadic and while I'm doing 10 other things at the same time - not very productive on my part.

So please ignore and continue!

Thanks.
Suzanne

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

No suzzane, ur not going nuts. I put the FAQs bit on the end there for you, when u weren't looking. Lol

susan0803's picture
susan0803
Posts: 90
Joined: Aug 2010

Thanks Dawn!

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

Sweets,

Great thread and idea. Here is another - and one of many on the Acid Alkaline debate.

http://www.rense.com/1.mpicons/acidalka.htm

Scam

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Thank you Scambuster. I will read it and then add it to my notes the next time I do an update and post to the thread.

If anyone else wants me to add something, please feel free to add it here.

Hal61's picture
Hal61
Posts: 656
Joined: Dec 2009

Hi Sweet,

lymphnet.org

A site just given to me by my lymphedema therapist. I'm getting massage/treatment from her out of my medical onc's office. She's accredited in the specialty, and gave me this site for information and a partial listing of practitioners. According to my therapist, lymphedema that occurs some time after treatment or surgery may need treatment, and will not always clear itself up, as doctor's tell us. Her care is included in my insurance.

best, Hal

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