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Pleomorphic Spindle Cell Sarcoma

concerned_sister
Posts: 3
Joined: Jul 2010
Feb 06, 2011 - 10:54 pm

Hi - I am looking for anyone who has had / or does have pleomorphic spindle cell sarcoma. My 26yo brother was diagnosed with 9cm tumor to the thigh (running thru sciatic nerve) he had radio then surgery. It has metasized to his lungs, chemo at the moment.
Would like to hear other peoples stories. I have been told it is quite rare (around 100 people in the world). Thank you.

jmiller121
Posts: 3
 Joined: Feb 2011
Feb 07, 2011 - 7:57 pm
sarcoma

I had a 16 cm pleomorphic malignant fibrous histiocytoma in my left hip with metastasis to my lung after 4 months. I am having that small area removed soon. No chemo yet.
concerned_sister
Posts: 3
 Joined: Jul 2010
Feb 11, 2011 - 7:07 pm
Good luck with your

Good luck with your treatment, I truly hope it is successful.

My brothers is inoperable, and chemo isn't working. Another type, another two rounds - then see where we go.

ptompk2
Posts: 1
 Joined: Jun 2011
Jun 20, 2011 - 1:49 pm
Pleomorphic Spindle Cell Sarcoma

I had a large Pleomorphic Spindle Cell Sarcoma removed from my right rib cage over two years ago followed by two more surgeries and two week-long chemos. It appeared the cancer was finished for almost two years; however, my second anniversary showed a 5mm spot on my right lung. As the spot is too small to initially remove via surgery (doctors don't think it would be easily located if at all at th