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treatment change

nancy591's picture
nancy591
Posts: 1059
Joined: Sep 2009

Spoke with the oncologist. My treatment will now be changed to Taxol/Avastin. Believe it or not this time around I am upset about losing my hair. I go next week for my first Taxol infusion. Since it is almost 2years since I've last had Taxol I am hoping it will work well for me again.

kikz's picture
kikz
Posts: 1275
Joined: Jun 2010

with your treatment. I cried when my hair started falling out but quickly made the decision to buzz it off. After that I was okay with it. I don't know how I would react a second time. It is normal to mourn the loss of our hair. What is that saying, "A woman's hair is her crowning glory." You are a beautiful woman and your hair is only a small part of you.

Karen

jloe's picture
jloe
Posts: 175
Joined: Sep 2010

I was a little upset the second time but I realized it was because it was an inconvenience more than anything. Good luck!
Joni

clamryn's picture
clamryn
Posts: 508
Joined: Jun 2010

Joni, I had noticed on a previous comment that you had trouble with your blood pressure on the Avastin. I was wondering how high your blood pressure got if you don't mind me asking. I have been going through the same. I get kind of worried about it. They did start me on b/p meds but it is still high at times.

Linda

jloe's picture
jloe
Posts: 175
Joined: Sep 2010

Linda,
I was on bp meds before the Avastin and I was 120/80 with the meds. However, after the 4th Avastin treatment it was at 150/90 and continued even after they increased my medication. After the 5th treatment, bp did not lower and the protein was elevated in the urine. He stopped the treatment before #6.

clamryn's picture
clamryn
Posts: 508
Joined: Jun 2010

Joni,
Thanks so much. My b/p was 154/100 at the doctor's office before starting the Avastin. They went ahead and gave me my first treatment. They did up the b/p medicine and it has been all over the place. One day the bottom number will be 102 and then the next time it might be 78. It is making me nervous.
My next treatment is scheduled for week after next, Feb. 15. I will go to the lab next Tuesday to check everything else out.

((((Thank you))))
Linda

jloe's picture
jloe
Posts: 175
Joined: Sep 2010

Linda,
Mine was all over the place too. But, when the protiene was elevated in the urine after the 5th treatment, he sent me for the CT/PET scan and stopped the Avastin. This does not mean I'll never be able to have Avastin again, Not sure how all that works. I start Topotecan next Thursday (3 on 1 off) for 3 months and the another CT/PET. I hope the Avastin works with/for you. Joni

clamryn's picture
clamryn
Posts: 508
Joined: Jun 2010

Nancy, I think this might be cocktail for you. Don't even think about the hair. I know that I felt that way too but you are beautiful inside and out. Just get well!

(((Hugs)))
Linda

antcat
Posts: 272
Joined: Jan 2011

Hi Nancy, I can honestly say I would feel the same way. When you were on Taxol the first time did you have any side effects, like neuropathy or anything else. Did it work for you.

I hope all goes well for you next week.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I am very vain and I've lost all of my hair now 3 different times to taxol. And yet I would LOVE to be able to take taxol again, as twice taxol was able to get me into remission and NED. Alas, taxol no longer works its magic for me.

But, think of it, Nancy: this is the shot you've been looking for that could get you into a decent remission and give you the chemo break you need so badly. Even I am not so vain that I would not trade my hair for that!! Taxol knocks back cancer for a larger percentage of women than any other chemo. Combine with Avastin and it sure looks like a winner to me!

You are kinda shaking my faith in the chemo protocol I am currently fighting to get next: Avastin/Cytoxin. Didn't work for you? We are both papillary serous, so I think the same things may just work for the 2 of us. (Who knows? It's such a crap shoot!) My oncologist may be thinking Avastin/Gemzar for me next anyway; I'll know more Tuesday when I get the results of today's CT/PET.

Losing all your hair still sucks; I can't argue that one. But treat yourself to a gorgeous NEW wig; and get another one every month you are on taxol, every one different. That's what I did and it made it all so much more bearable to always have a new look. And it's WINTER! Wigs & hats in winter are GREAT! (I was bald in summer once & I promise you WINTER is the time to be bald for the vain!) (((((Nancy))))

srwruns's picture
srwruns
Posts: 343
Joined: Oct 2010

Hoping this is the winning cocktail for you! Sorry about the hair. It does look like you have very nice hair. Clinking my carbo/taxol cocktail glass with your new cocktail! Susan

anicca's picture
anicca
Posts: 324
Joined: Dec 2010

I totally get it about the hair. When I was told I would lose mine, I hardly even blinked. Now that it has come back (still very, very short,) I'm so happy with it, and especially with having eyelashes again, that I know I would be upset to lose it all over again. Getting my wigs was fun, but wearing a wig all the time is not, especially in warm weather, and hats also get to be a bit much after a while. I hope this is a winning combination for you and you will have your hair back along with your health.

leesag's picture
leesag
Posts: 624
Joined: Jan 2010

Nancy,

I've been lurking a lot lately but I wanted to let you know that you and your family remain in my prayers. On the plus side, with such a long break between taxol-tinis, it should prove to be very effective! God Bless and keep you!
Hugs!
Leesa

Cindy Bear
Posts: 563
Joined: Jul 2009

Hi Nancy. So glad you have a new plan in place and are going full speed ahead. I am sorry about the hair, can only imagine how disappointing that is. But like other posters have said, taxol may just be the ticket for you and You are beautiful, hair or no hair. Hugs and prayers,
Cindy

eward
Posts: 210
Joined: Feb 2010

I am wishing you all the best. I know from your posts that you have been strong and feeling good. Your strength will help you deal with the Taxol. You are ready for this.

Hissy_Fitz's picture
Hissy_Fitz
Posts: 1869
Joined: Sep 2009

If it didn't steal our hair, it would be perfect.

I hope this cocktail is the winning one.

Carlene

lenjam's picture
lenjam
Posts: 51
Joined: Aug 2010

Wishing you great success that this is the ONE!

lenjam's picture
lenjam
Posts: 51
Joined: Aug 2010

Wishing you great success that this is the ONE!

vj1's picture
vj1
Posts: 151
Joined: Jun 2010

Nancy,
here's the best of the best in prayers and thoughts for a successful treatment. Don't worry about the hair, wigs can be fun!

Verma

kayandok
Posts: 1223
Joined: Jun 2008

Nancy, I'm sitting here in the chemo room as the taxol drips into my veins. It has always worked for me. Will you get the dense dose?
Loosing your hair is bummer, and having something specific to cry for is sometimes cathartic.
Hugs,
K(⌒-⌒; )

Lisa13Q's picture
Lisa13Q
Posts: 683
Joined: Jul 2009

They are pulling out the big guns....you are beautiful with or without hair....

upsofloating's picture
upsofloating
Posts: 473
Joined: Dec 2009

This should be a good one for you Nancy - getting the big guns together! But I hear you about the hair, I took the first go round in stride but a second is tougher -- but the results will make it all worthwhile. I've got you in my thoughts and prayers.
Annie

VictoriaSF
Posts: 165
Joined: Dec 2010

Wishing you great success! Hope and it will help!

Blessings
Victoria

nancygt
Posts: 86
Joined: Jan 2010

Like many of the other posts, I believe this will be a powerful combo for you and hope you get the greatest results. Your hair is lovely and I know it is frustating. I just started Cisplatin/Adriamycin and while other anticipated side effects were not too bad, hair fell out promptly two weeks after first treatment, I got my head shaved yesterday and it feels so much better. I like Linda P's suggestion about a new wig every other month as my treatment is scheduled for 6 months. I have a short salt and pepper that is age appropriate and I think fairly attractive. But maybe I will indulge in a couple of more outrageous choices this time around -especially until the weather gets hot and all I can tolerate in Fla. are ball caps.
Good luck and we will await progress with great interest.

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

The hair thing could be sooooo worth it, but that part is not fun. I'm so excited to see what the power of taxol can do after two years... go get, girl!
(((HUGS)))) Maria

Chemo_Princess's picture
Chemo_Princess
Posts: 105
Joined: Aug 2009

Nancy--You are in my thoughts and prayers. The taxol/avastin combo will kick the cancers butt :)
I would be upset about losing my hair again too. Wigs are fun though. Treat yourself to a funky new wig in a new color!
Blessings,
Natalie

Christine B.'s picture
Christine B.
Posts: 137
Joined: Sep 2010

I think I already told you that I appreciated your postings of hope when I was first diagnosed. Thank you for that, here's to the the Taxol/Avastin doing its work for you! Christine

Disneynutt's picture
Disneynutt
Posts: 135
Joined: Aug 2009

I'm sorry you are going to lose your hair Nancy but it is nothing in the grand scheme of things. I wish you well on your new treatment. Sounds like a good, delicious combo to me. :-)

By the way, I can't figure out how to respond to a private message. It disappeared after my initial reading. Sorry.

Best,
Kate

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