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One Good thing

Lori-S's picture
Lori-S
Posts: 1286
Joined: Sep 2010

I have to say that having only received 1/4 of my oxy dose yesterday ... that there is a BIG difference in how I feel. If they take the oxy away ... just the 5fu and folonic acid will be a walk in the park. I can actually drink room temp and even a little cooler. I can get things out of the fridge without dropping them from the bee stings in the fingers. I have just a little bit of numbness in fingers and toes but compared to what I usually have it's nothing. And I hardly feel like I had chemo at all 'cept I'm resting a bit. I can easily do chemo without oxy. sheesh ... I knew it was a mean old monster but, now I really know it.

Lovekitties's picture
Lovekitties
Posts: 2900
Joined: Jan 2010

Sorry you weren't able to get the full treatment, but glad that you are feeling better than expected.

Rest is good.

Hope son is doing ok too.

Hugs,

Marie who loves kitties

coloCan
Posts: 1842
Joined: Oct 2009

of a difference in its impact on you....My onc just totally removed it from the FOLFOX, tho I had asked if she coud reduce it somewhat instead but I had been so terrified after what happened after that fourth (of eight) dose that no oxi was done for the remaining sessions......Nothing to it that way but I've ever since wondered if without the oxi how effective was just the FOLF....

damama24
Posts: 175
Joined: Nov 2009

Lori I'm glad you are feeling better. Last year when I started on Folfox I was bound and determined to complete all 12 rounds with the oxi. Unfortunately I only made it six rounds. No bad reactions or anything like you have had to deal with but neuropathy so bad I could no longer stand or walk and that was after reducing the oxi for both round 5 and 6. I continued on the rest of the combo and couldn't believe how much better I felt. I thought now this I can do. But, such was not to be,the cancer continued to progress without the oxi and onc switched me to Iriontecan and Vectibix(am K-ras wild type). I have been on this combo for 10 almost 11 months now and seem to be doing ok. It has been much easier to handle than the Folfox was. I hope your next round is easier and things will go smoothly for you from here on out.
Deb

AnneCan
Posts: 3693
Joined: Oct 2009

I am really happy this was a better experience.

Kathleen808's picture
Kathleen808
Posts: 2283
Joined: Jan 2009

Lori,
Aren't you incredible to find the good. So glad that you are feeling OK. Praying the chemo is kicking butt.

Aloha,
kathleen

hopeforcure49's picture
hopeforcure49
Posts: 111
Joined: Jan 2011

I'm sorry you had to start chemo all over. that Oxiplat can be a little booger. glad you are feeling well and that you where able to recieve your chemo.. Hope next time you'll be able to recieve the whole dose and do well. Good luck and Blessings from Lourdes.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear lori,

thought this maybe interesting ....

http://www.ncbi.nlm.nih.gov/pubmed/15217938

http://jco.ascopubs.org/content/26/7/1188.full.pdf

my cal/mag levels are on all the upper blood test limits. i wonder if its the reason for my good run.

another example of the help received on this board.

at least enjoy two weeks off like me. i am wrecked today, neededmy nap this arvo.

pete

Lori-S's picture
Lori-S
Posts: 1286
Joined: Sep 2010

Thanks for asking about Anthony. He is actually doing better today. After 2 days of suctioning the fluid out of his chest, we are seeing his lung start to reinflate ... something we couldn't get it to do before. This is very very good news. We are hoping to have him home for Superbowl Sunday if he keeps progressing. We are hoping to remove his chest tubes today or tomorrow. He will have to remain in the hospital for 24 hrs observation after removal. We are just so happy to see his lung starting to respond after all this time. It's just short of a miracle. Thank you all for your wishes and prayers. I know it all helps so much. Love ya all!

AnneCan
Posts: 3693
Joined: Oct 2009

This is awesome, I am glad his lungs are responding.

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

Hi Lori,

I'm glad to hear you're enjoying a break from the oxi monster a bit. I'm looking forward to hearing more positive news about your son- so sorry he's back in the hospital.

Take care!
Lisa

Sundanceh's picture
Sundanceh
Posts: 4266
Joined: Jun 2009

You've had so much going on in your life these days - hope the storms will eventually calm for you. You've had a rough time with the Oxy, it is mean stuff. I've found both the Folfox and Folfiri to be far more than we bargained for when we "signed up."

Lower dosages may be a help to you as you move forward and if you ever have to move off it, you'll join the ranks of the many of us, who had to do so...there is always Folfiri.

Hope your son gets better as soon as he can - he's going through alot himself and it just cannot be easy for either of you.

I look to better days for you both.

-Craig

okthen's picture
okthen
Posts: 232
Joined: Jun 2010

Hey Lori!
I too noticed Jack breezing through chemo when the oxi was eliminated. Until yesterday...he went out to shovel snow and had to come back in fretty quick because of how much his hands hurt...we talked again abpout the chemo staying in his system for a while amd hired somone to do the drivewayI didn't think he should be shoveling snow when he was still connected,,,but sometimes you gotta let him find out hisself..

Sending you and your son prayers for health
Chriss

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