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1st day

pokrydi's picture
pokrydi
Posts: 99
Joined: Feb 2011

1st day on the network here and have to say the support i see between everyone is awsome!! I'm a triple neg breast cancer had a lumpectomy 1/14/11 and scheduled 2/8 for more margin to come out plus a port for 8 sessions of chemo plus 6 1/2 wks of radiation. Scared but ready to get this going

LadyParvati's picture
LadyParvati
Posts: 328
Joined: Oct 2009

I am now a one-year survivor, having finished my treatments this past June. Had my lumpectomy last Nov. 6 (strange how I haven't forgotten that date!), chemo Jan through April of 2010, and rads May-June. It's scary at the beginning, but you CAN do it--just keep marking the days off the calendar and telling yourself that this time next year, you'll be dancing with NED! (NED = No Existing Disease)

As you've seen, there are lots of wonderful, supportive folks here. I failed to reach out to this group when I got down, and realized later that it would have helped so much had I pushed myself to do so. If you can, I suggest that you take a lesson from my experience and DO reach out to this support group when you find yourself feeling down--it will truly help. Everyone here can truly relate to what you'll be going through in ways that your family and local friends (non-survivors) may not be able to at all, no matter how hard they may try.

IMHO, the port is definitely the way to go--it really made receiving chemo so easy, and when I had to have a blood transfusion, that was easy as well.

Be kind to yourself and rest when you need to rest.

Hang in there! You can do this--reach into your inner strength--I called it my inner dragon--and forge ahead!

Sandy

JoAnn4818's picture
JoAnn4818
Posts: 81
Joined: Jan 2011

Hi, I'm a triple negative too. I couldn't get clear margins after 2 lumpectomy tries so I had a mastectomy and immediate reconstruction. All margins are clear and I've started chemotherapy. I agree with you - I'll be glad to get through this. I love the port. They always take a blood sample before they do the chemo and use the port for both. I wish you the best. This group has been wonderful giving me tips on how to handle chemo symptoms.

JoAnn

missrenee's picture
missrenee
Posts: 2137
Joined: Apr 2010

I am not triple neg., but I did have to have a re-excision of my lumpectomy to get clean margins. I did 6 rounds of TAC chemo and 33 rads. You can definitely do this too. This board is wonderful and helped me in so many ways. Glad you found it. Check in with us often.

Hugs, Renee

EllenaMaria
Posts: 69
Joined: Jan 2011

I remember after my 4th chemo I knew I could make it through but the dread of what to come was gnawing at me. One week of crap, one week of feeling a bit better, third week of feeling good only to have to start it all over again. It was so mental for me. Eventually the days all blended together and next thing I knew I was done.

Glad you were able to do a port. My only recommendation is that if your entry scar heals up really well and it is time to take the little buggar out, you may consider another scar. Mine healed near invisible but they reopened it for removal. That was July 2010 and it itches horribly, stings, burns sometimes. I don't know if they would have been able to do it but I wish I had thought to ask.

See, we are already talking about what to do when this is all over.

I would like to say you will be fine but I know some have a hard time, lets be honest. I so wish you smooth sailing through all your stuff.

cahjah75's picture
cahjah75
Posts: 2623
Joined: Jun 2010

to this site. There are a few women here who are triple neg. I was ER/PR+ and HER2-. I had bilateral mastectomy in June 2010, then 6 rounds of Taxotere/Cytoxan. I had my port removed in Jan and am now half way through rads. It's all doable. You're right about the support here! A lot of useful info too. Wishing you the best on your 2/8 surgery.
{{hugs}} Char

pokrydi's picture
pokrydi
Posts: 99
Joined: Feb 2011

thanks everyone for the positive comments it's nice to hear stories from everyone just reassures me that I am on the road to recovery =:)

disneyfan2008
Posts: 5285
Joined: Oct 2010

Welcome...

disneyfan2008
Posts: 5285
Joined: Oct 2010

Welcome...

sea60's picture
sea60
Posts: 2601
Joined: May 2010

Sad (that you had to join under these circumstances) but glad you're here. Just post with anything and everything you need.

Warm hugs,

Sylvia

CR1954's picture
CR1954
Posts: 1392
Joined: Jul 2008

Just a great big welcome and to let you know that wherever your cancer journey takes you now, we are here to encourage and help where we can!

Hugs,
CR

ladyg's picture
ladyg
Posts: 1577
Joined: Apr 2010

I am glad you found us but sorry you needed to. You will find a lot of useful information, tons of support and ears for listening if you just need to talk or vent. Just remember you can do this!

Hugs,
Georgia

baker819
Posts: 4
Joined: Jan 2011

I joined a few days ago (Jan 28) just before starting CMF yesterday. Had a mastectomy on 12/16 for ER PR positive carcinoma. The cancer was completely removed, but am doing chemo to make nothing shows up elsewhere. Will have 8 treatments, 3 weeks apart. Today I feel pretty good -- no nausea (thanks to Emend), but am kind of dizzy. I can handle the dizziness much better than nausea. So good to find this group!

pinkkari09's picture
pinkkari09
Posts: 878
Joined: Sep 2009

Welcome!Welcome!Welcome! of course none of us ever wanted to have to join this board but thank God it's here cuz we sure do lean on one another. I'm also triple negative. I was diagnosed August 2009 and I'm still in treatment so if you have any questions for me, feel free to PM me and I will help in any way I can. The chemo is very do-able, make sure you take your nausea meds and drink lots of water. The radiation is also very do-able. Of course your going to be scared, it's a scary thing to have to deal with but keep up your great attitude and you will get through this. We all react differently so if your having trouble, post, I'm sure many have had the same experiences and will have great advice for you.
Mountains of Love,
~Kari

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

I'm triple neg inflammatory BC. So I had chemo first (6 rounds TAC) and then mastectomy. I'll start rads in two weeks.

It's a lot to deal with, but take a deep breath, take it one step at a time, and drink lots of water! And check in often, we like to know how you're doing.

Hugs,

Linda

Dee's picture
Dee
Posts: 40
Joined: Jan 2011

Hi pokrydi and welcome

Im new too but can say in the few days I have been here here I have learnt so so so much more than 6 weeks of trying to find info and support on my own!

Dee

beetle25's picture
beetle25
Posts: 150
Joined: Sep 2010

Welcome pokrydi glad you found us but sorry that you have to be here. I am also triple negative diagnosed in Feb.2010. I had chemo first, then surgery, followed by rads, it is all very doable. Please come anytime you have questions and let us know how your are doing and if there is anything we can do to help. As stated before besure to drink plenty of fluids, stay hydrated and eat small meals a lot throughout the day.

Beetle

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