Feb 01, 2011 - 7:54 pm
Hello, all - My husband was diagnosed with a very large primary liver cancer lesion in May of 2010. He started a clinical trial at CPMC in San Francisco in July and has been taking sorafenib (Nexavar) and either erlotinib (also a pill form of chemotherapy) or a placebo. He has tolerated the side effects very well, but the fatigue can be powerful, as many of you know. How have all of you whose loved ones have this type of cancer made the decision to go out on leave from your jobs? My husband is retired, and I have family medical leave time I've used a day or half-day at a time to be there at his appointments and CT scans. Like you all, we don't really have any idea how much time he might have left, and I can see using up my leave time (which is granted a year at a time) and then having him get sicker and not having any time left. We are grateful to God that he isn't sicker at this point (his liver is functioning normally, somehow), and thus far he's just pushed through the fatigue each day. Any thoughts on this particular decision (about taking family leave) would be welcomed -- thank you!