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Hip Pain

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

I have been seeing a lot of post lately about hip and thigh pain. Has anyone noticed any pain in their hip joints especially when they walk any distance,say 1/4 of a mile. I have noticed it,but if I stop and stand in one spot for a minute or so I am fine. It just comes back after I walk for another 1/4 mile. Other than that I I have no pain or discomfort in the hips. Maybe its arthritis starting to set in. John(FNHL-1-4A-5/10)

yesyes2
Posts: 461
Joined: Jul 2009

Hey John maybe your just getting old!! Just kidding. Your talking to someone who in 2006 had a double hip replacement. I will never forget the level of pain I experienced before the surgery and upon waking from surgery no pain at all. Unbelievable as until the operation I lived with pain at a level of 7 to 8 for one year. Check with your doctor, hip xrays would be in order. You could be experiencing a problem from the steroids.
Leslie

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Leslie.
It can't be getting old!!!! My right hip is just as old as my left hip and it don't hurt. You are right though,I am 62 and these golden years are a big joke and the jokes on us.LOL It came about all at once. Its like a deep pain.X-ray made be in order pretty soon if it doesn't get better. John(FNHL-1-4A-5/10)

miss maggie
Posts: 929
Joined: Mar 2010

Hi Leslie,

Hopefully you read my reply to John. In Sept 2009, my small bowel perforated. I had an operation to resect, and was in the hospital for 3 weeks. A nightmare. As you can read, my pet scan was pretty bad concerning my right hip. I have no idea if evenually I will have to have a hip replacement. I have no desire to do so. I am so scared to be in the hospital. I also have a low tolerence for pain. Is it very painful to have a hip replacement? What about PT after? Is that painful also?

Thanks Love Maggie DX 09/09 extranodal marginal zone b cell NHL remission Jan 2011

allmost60's picture
allmost60
Posts: 3163
Joined: Jul 2010

Hi John,
I have thigh pain most of the time. My hips only hurt when I sit for long lengths of time and then go to stand up from the chair. They feel stiff/numb but if I walk around for a few minutes they seem to loosen up. I have to go downstairs to the laundry room and I knowtice after about 5 to 10 ten minutes of standing folding clothes out of the dryer that my thighs will tighten up and sometimes quiver in the muscles. I asked my doctor about it at my last appointment and he said it was caused from the cyclophosphimide and vincristine combination of our chemo. So..I guess it's something we will just have to deal with.
Sue..(FNHL-2-3A-6/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Sue,
Yea, if I keep walking,which isn't far my upper thigh start to ache. I am sure it could be from the chemo. It would not surprise me. Makes me wonder if it will reverse itself. With my luck I already know the answer to that. JohnFNHL-1-4A-5/10)

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

My left hip was hurting but mine started in the left butt cheek. Turned out to be insufficiency fracture from where my rads weakened the bone. Can't imagine chemo did it any good either. Just hurt to do everything, walk, cough, move, you know....just when you need it lol. Mine got better after about 4 months or so

Hope you feel better soon John

miss maggie
Posts: 929
Joined: Mar 2010

Hi John,

I too, suffer from hip pain and upper thigh pain. I have been having problems with my right knee, but never my right hip and right thigh. It seems this problem started almost right after my bone marrow biopsy. On my last visit to the doctor, I asked the nurse, and she said no. I should of asked the oncologist. The pet scan I had in the end of Dec 2010 stated the following: "There is mild patchy FDG around the right hip where there is severe fibrocystic changes in the femoral head and posterior column of the acetabulum likely due to degenerative changes."

I used to walk miles. I no longer can walk more than 4 blocks before suffering pain and tiredness. Even though I hate pills, if I have something special to do, I will take 2 tablets of Aleve. It really helps. I only take this medicine once a week.

Do you think this condition might of started after our bone biopsy?

Love Maggie DX 09/09 etranodal marginal zone b cell NHL remission Jan 2011

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Maggie,
Thinking back I think thats when I first started to notice it.BTW: It was my left hip that I had the BMB. Left hip is where I have the pain. John(FNHL-1-4A-5/10)

miss maggie
Posts: 929
Joined: Mar 2010

Dear John,

I will definitely ask the oncologist in May 2011 if problems might of started after BMB. So long to wait for info. If you find out sooner than me, please post your response. I wonder if our injury from the BMB is reversible over time??

Love Maggie DX 09/09 extranodal marginal zone b cell NHL remission Jan 2011

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Maggie,
I was wondering the same thing. Theres always the possibility of it becoming chronic too.The bone was invaded as we know. I have heard once a bone is broken or even cracked the chances for arthritis in that bone increases several times over time. My oldest son broke his arm when he was just a little fellow. He is now 31 and has aches in that bone in the cold weather. John(FNHL-1-4A-5/10)

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

I have hip and thigh pain also. The Dr.moved my leg in all kinds of positions and it felt better for about 4 weeks. Everytime I go shopping for 5 hours it kills:) I know the solution for that:) He said to have an ex ray but haven't yet. The hot shower , and my trusty heating pad help. I haven't been to the gym since Sept . But I will ,I will make it back next week. Hopefully I will be able to walk when I leave there. Love to all

miss maggie
Posts: 929
Joined: Mar 2010

Hi Joanie,

Yes, Yes. A hot shower and heating pad does help.

Love Maggie

allmost60's picture
allmost60
Posts: 3163
Joined: Jul 2010

I don't know about the rest of you, but my experience with the BMB was absolutely awful! My doctor I had at that time didn't give me anything except a surface numbing agent Lydicane(SP) and once the tool she was using to extract the marrow went into the bone and she started screwing it around, tugging and pulling...I literally thought I was going to pass out from the pain and noise! Then, when she pulled the tool out she didn't have enough marrow and had to go in again a little higher up on my hip. Some of you may remember me telling that awful story back in late July. Anyways...I would almost bet you thats why my left leg, thigh and hip gives me so much trouble now, but I seriously doubt I could EVER get my clinic/new doctor to admit they did anything wrong. I've made it CRYSTAL clear with my new doctor that under no circumstances will I EVER have another BMB done unless I'm put completely under...no way NO how!!! Every time my left hip aches or feels weak, I think of that day having the BMB! Really Pi$$es me off. Theres no reason we should EVER have to experience an ordeal like that with all of the different kinds of pain medications available for use.
Love...Sue (FNHL-2-3A-6/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Sue,
I remember it well. I think I was telling you just about the same experience for me. I did not know what to expect either. I got the lydocaine as well. I never saw the biopsy needle and no idea what it looked like. I remember the twisting and turning and some crunching. When he took the needle out he pulled and yanked every which way but loose. It actually scared me more than hurt. I kept thinking what if this thing breaks off in my hip. After he was done I had a bandage placed on the area and told to lie still. I stared to feel very weak and think I may have even passed out. I remember people talking to me,but not what they were saying. My blood pressure dropped to 66/38. That is very dangerous. Gradually it started to come back up to 110/70. I did not realize how thick the biopsy needle was. It was done in my left hip and guess what,thats where my pain is today. HMMMMM!!! John(FNHL-1-4A-5/10)

allmost60's picture
allmost60
Posts: 3163
Joined: Jul 2010

I hear ya John...well, it's not "rocket science" to me when I relate the hip,leg,thigh pain to the BMB. Never had the problem BEFORE the BMB...so if it looks like a duck and quacks like a duck...ya know? Oh well, the damage is done...now all we can do is hope it's a temporay thing and not permanent. Me and Steve were just having this conversation last night when I was complaining about my left hip acheing while sitting watching a movie on the t.v. I had to get up and stretch my leg two or three times during the movie to get some relief...sooo irritating! Sue (FNHL-2-3A-6/100

miss maggie
Posts: 929
Joined: Mar 2010

And to anyone due to have a BMB,

After reading all the responses, I am quite sure the pain in my hip and upper thigh is due to the bone marrow biopsy.

A few months back someone posted information about medication they received for their BMB. At that time I had no idea what was in store for me in the future. Perhaps another BMB, or a spinal tap???? I added this info to my files on my computer. Here it is:

MAKE sure with bone marrow biopsies you have Vercet given - you have no memory or pain -

Since I was DX in Sept 09, I have found out so many acquaintances that I run across from day to day have their own stories. Some made it quite clear, under no circumstances would they have a procedure that is quite painful without being put under, or at least receiving strong medication. I found out this info after I had my BMB.

Love Maggie DX 09/09

extranodal marginal zone B cell NHL remission Jan 2011

yesyes2
Posts: 461
Joined: Jul 2009

Hi Maggie,

Just a note on Versed. I had versed and local numbing when I had my BMB and not only remember everything from it but also remember the PAIN! It was awful as the doctor who did the BMB, not my usual onc but his partner, refused to give me enough versed to knock me out. So be way careful as just because you get this drug doesn't mean it will be given correctly. I had versed with my abdominal biopsy and remember everything but didn't feel a thing. Never stopped talking during the entire procedure.

My first occurance I refused a BMB as treatment and outcome would be the same. On my recurrance I wanted to know. My big mistake. Never again without being put under.

Leslie

yesyes2
Posts: 461
Joined: Jul 2009

HI All,

I think you guys may just be on to something. Don't think the bmb did anything good for my left hip. Your so right Sue and John, it does give me more problems than before the procedure. Bet if we asked our doctors they would say that there is no connection.

Love my peeps,
Leslie

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Leslie,
You know they would never take the blame. A lot of times I keep quiet about things that I know goes on behind closed doors because I don't know how other people feel about things. It certainly appears everyone on here are probably thinking the same way as me in a lot of things that go on in the world. We can talk about it,but as we all know nothing gets done about it anymore.There is definitely a connection with the pain in our hips and the BMB. If they would admit it then there would be a lot of paperwork involved and then the insurance companies would have to get involved. Its so much easier to just say its all in our heads and let us suffer. Hey,it all comes down to the money that can be saved. It took over 50 years before they would admit asbestoes is harmful to the lungs. They even still say or at least some that cigarettes do not help cause cancer. It all depends on which side of the fence you are on. John(FNHL-1-4A-5/10)

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

I had Versed a number of years ago for something altogether unrelated but do recall waking up a few times during the procedure and talking and being aware etc. In this case it was OK because not an immense amount of pain was involved. However for both of my BMB's they used Propofol and zip,zero,nada. It,in my opinion was miraculous. I felt nothing nor remember anything and the recovery time was less then an hour. I believe this was also used with both of my biopsies with the same result. So putting Michael Jackson aside,it is safe and effective when used by an anest
hesiologist. Mary
PS: This is called light sedation and is not General anesthesia.

COBRA666's picture
COBRA666
Posts: 2418
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I believe the versed is used when we have our port put in too. John

yesyes2
Posts: 461
Joined: Jul 2009

Yes, you are so right Mary. I had a combination of Propofol and Versed for my port and was in and out and talking and watching the monitor during the procedure. You used the magic word though, Anesthesiologist. Most bmb are done in either the oncs office or as in my case out patient oncology, or cancer center, with only a chemo nurse and the onc present. And because of that the patients suffer.
Leslie

miss maggie
Posts: 929
Joined: Mar 2010

Hi Mary,

What great news, Propofol. I had Propofol when I had my colonscopy in June 2010. You are right, it is light sedation, not general anesthesia. Actually I was asleep for the whole procedure. It certainly felt like general anesthesia. Since I am more famaliar with Propofol, I will absolutely request it instead of Versed. In the event things change for me in the future. You would think the doctor would offer stronger sedation???

Love Maggie DX 09/09 extranodal marginal zone B cell NHL remission Jan 2011

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Maggie,
I had the versed and propofol when I had my colonoscopy too. It knocked me out very quick and I do not remember a thing. Even after I woke up things were a blur. Never woke up during the proceedure and I had 2 of them. John (FNHL-1-4A-5/10)

miss maggie
Posts: 929
Joined: Mar 2010

Dear Leslie,

Even though you received Versed, what a surprise to hear the pain you had during your BMB. Great info to find out, that sometimes not enough Versed is given. Is there anyway you can find out the dosage that was given to you for your abdominal biopsy? This info sounds easy enough to get from your chart. Another question, is Versed given throughout a procedure, or just one injection?

Still learning after one year on this board. Thanks Leslie

Love Maggie

yesyes2
Posts: 461
Joined: Jul 2009

Hi Maggie,

Yes I do know what dosage was given as before the procedure I asked. Turns out it was lower than I had had for other procedures. And yes they can give more at any time. The onc started out with one and than gave me a second injection during the bmb.

Propothel is great, just keep in mind that if there is not a gas passer present they will not give it to you.

Just hope that both you and I never have to do the bmb again. That goes for all of us here, once is more than enough without the proper pain relief.

Leslie

miss maggie
Posts: 929
Joined: Mar 2010

Good morning Leslie,

From your mouth to God' ears. "Never, never have to have a BMB again. If so, I am more prepared now.

Leslie, is this what I think it is? LOL You say "if there is a gas passer present". What is a gas passer??????

Love Maggie

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Maggie,
You beat me to it. I have been here with my tongue in check. Just waiting to jump on this one. If you are getting the colonoscopy,I know who the #1 gas passer is :). I just could not resist this Leslie. LOL LOL. John

yesyes2
Posts: 461
Joined: Jul 2009

Hey Maggie & John,

Nothing dirty or inappropriate. A gas passer is an Anesthesialogist. I believe the expression dates back to when doctors used gas to put patients out. I actually had gas when I had my son back in the olden days when moms were put out to give birth.

Leslie

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Shame on you and your dirty mind!!! Yea,thats what it is... an anesthesialogist. My goodness.WHEW LOL. John

britta
Posts: 107
Joined: Apr 2010

Somedays, the only time I laugh is on this site. You guys crack me up!

Darlene

allmost60's picture
allmost60
Posts: 3163
Joined: Jul 2010

Me too Darlene...I knew John was just sitting at home waiting for the right moment to cut loose....with his comment that is..haha!..Love Sue

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

You guys are too funny. I had never heard the term gas passer either but I think I know a few. Haha, good one Sue. Mary

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Wow I almost needed a Depends after reading that was the definition of a gas passer. Too funny. Not that I have any Depends at home that is. Cough. lol.

John, you are a nut. lol.

Blessings,
Bluerose

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Bluerose,
I think we all need a break once in a while and get all the laughs we can. Its all in fun,because what we are dealing with certainly is no fun. We can all be serious are heck when we have too. Whenever a little laugh can be slipped in there is probably a welcomed sight. We have all been through a lot with the treatments,the waiting and watching the tiredness and anything else you can think of. A little humor may help us all get thru this. We will get thru it all one way or the other. Thank You for your comment. John(FNHL-1-4A-5/10) REMISSION-Oct.15,2010

miss maggie
Posts: 929
Joined: Mar 2010

Hello Leslie, John, Sue, and Darlene,

To you Leslie. Actually I was hoping it was dirty and inappropriate

Yes, yes, I agree a good laugh and smile on my face this morning. Thanks for the definition of "gas passer". You had to know I would ask, as so many others have asked.

Love Maggie DX 09/09 extranodal marginal zone b cell NHL remission Jan 2011

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Yes sir guys and gals I hardly contain myself just a waitin' for somebody to ask what a gas passer was. I would check ever few hours and say,"Dang nobody asked yet".Then all of a sudden there it was...What is a gas passer? It made my day!!! You'd never believe some of the quips I was gonna use. Seriously though its all in fun and everybody needs a good laugh once in a while. If not for this site I would not have the good information that I have gotten over the past few months and I thank EVERYONE on here for that. John(fnhl-1-4a-5/10)

yesyes2
Posts: 461
Joined: Jul 2009

You guys certainly brightened my morning with a good laugh. Think I may have a smile on my face for the next few hours.

Oh, and John, glad I could be of assistance. You are too funny.

Love,
Leslie

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Leslie,
I can't remember if it was you or who,but I have been reading about certain vitamins on here for the hip pain. I have been taking the Vitamin D3 and iron since reading it on here . It hasn't been that long,but I can actually feel a difference. I can walk a bit farther without my left hip hurting. It does start to hurt after a while but I can walk maybe 50 yards farther before having to stop and rest ny hip. I have only been taking it for maybe a week so I do not expect any miracles. I am not usually a vitamin and mineral person,but something is helping. I also notice a little more energy,maybe from the iron. Again nothing to write home about but there is a little difference. John(FNHL-1-4A-5/10)

miss maggie
Posts: 929
Joined: Mar 2010

Hi John,

I am so glad you have been able to walk a bit further since starting Vitamin D3. Also the iron supplement. When I found out I was low on iron, I was so surprised. I never felt tired or weak.

You say you were never a vitamin or mineral person. Neither was I. My doctor did tell me to add vitamin D3, and iron. I just added a multi vitamin with minerals, 100 mg vitamin B6, and 1200 mg fish oil daily. Many Years ago I developed Carpal Tunnel in my wrist. No idea right or left wrist? The pain was horrible. I did wear the wrist band which did help, but not completely. Anyway, a friend mentioned to me about taking Vitamin B6. I started taking 100mg B6 in the morning, and 100mg B6 in the evening. The vitamin reduced the swelling, and I never had to have surgery. To this day the Carpal Tunnel never returned.

I am not a doctor. I do the best I can. My oncologist is aware of the vitamins I am taking, and she is not concerned.

Glad you are feeling better. Maggie DX 09/09 extranodal marginal zone B cell NHL remission Jan 2011

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