What do you all think?

fauxma
fauxma Member Posts: 3,577 Member
edited March 2014 in Breast Cancer #1
There seems to be an increase in recurrences, mets, losses, etc in the past couple of months and we also have had several sisters that we have not heard from in quite some time that were dealing with recurrences and mets also. I know that some of us have exchanged phone numbers, addresses and personal emails. It is one of the ways that someone just recently posted how MamaG was doing. I was wondering how everyone would feel about exchanging this type of information with a call it a BBB (best breast buddy). Then if someone has something going on that they are not comfortable saying themselves or is hospitalized or just needing a break we would have a way to stay in touch. I would be comfortable giving my information to a BBB and having someone else's information as well. Maybe some of you will feel that is too intrusive and that if fine. But I know that all of us have at one time or another given a shout out to a sister and we wonder what has happened with them. Some have announced they are leaving for one reason or another, but I am thinking of those that were have treatment issues or mets and then we hear nothing. I hate hearing bad news but I also hate not knowing. Some of us have family that would/will post if the need arose but some do not. My husband knows all of you because I talk to him about you but he wouldn't have the foggest notion how to get to this site or post to it or to open my email. But he would answer a phone call or a note if I were too ill to post and someone chose to inquire. I know we have so many gals, Chen, MamaG, Meena, Kari and others that are dealing with some tough times and I would be so concerned if any of them or any of you stopped posting without saying you were leaving. I have a very active imagination and sometimes it goes to a dark place. I care so much for all of you and the past few months have been so hard for all of us.
Anyway, this is just a thought. How do you all feel about this?
Stef
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Comments

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    Count me in .. I'm on board! Great and
    wonderful idea ...



    Vicki Sam
  • lizzie17
    lizzie17 Member Posts: 548
    me, too
    great idea...............but just to say in my case, my long-time friend doesn't know any of you. I talk about all of my BC, and encounters, but he just doesn't always listen. :(
    It does hurt my feelings--just venting.

    But I will teach my daughters how to sign in and comment if need be. They are adults now.
  • aysemari
    aysemari Member Posts: 1,596 Member
    Brilliant idea Stef!
    I worry about all the people we never hear from anymore i.e JoJo, shortcake..

    Let's do it. So maybe we can forward all our information to you, including
    where we live and you can pair us up?

    Thanks for thinking of this.

    Hugs,
    Ayse
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    lizzie17 said:

    me, too
    great idea...............but just to say in my case, my long-time friend doesn't know any of you. I talk about all of my BC, and encounters, but he just doesn't always listen. :(
    It does hurt my feelings--just venting.

    But I will teach my daughters how to sign in and comment if need be. They are adults now.

    Love this idea. Count me in!

    Love this idea. Count me in!
  • linpsu
    linpsu Member Posts: 747
    Great idea
    I think this is a wonderful idea! I know there could be times when one of us might not be able to post on this site or on FB, and it would be good to have a sister to check up on us and keep the others posted.
    Thanks,
    Linda
  • florist
    florist Member Posts: 45
    count me in..

    count me in..
  • Marsha Mulvey
    Marsha Mulvey Member Posts: 597 Member
    florist said:

    count me in..

    count me in..

    I'm in
    No problem giving info to anyone on this board. Nice idea!
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    I'm in. Not sure how to
    I'm in. Not sure how to pick a BBB or how to pair folks, but I leave that to the experts here. I'll be glad to help however I can.
  • chenheart
    chenheart Member Posts: 5,159
    I love this idea! I have
    I love this idea! I have taught Siobhan how to get to this site, but I would also love for one of the Kindred Spirits to have "permission" to speak for me if the need arises.

    A few of the sisters here have my email address~ and my phone number as well. Perhaps I will just ask one of them if she would be willing to speak for me, and me for her...

    Great idea, Stef!

    Hugs,
    Chen♥
  • pinkflutterby
    pinkflutterby Member Posts: 615 Member
    chenheart said:

    I love this idea! I have
    I love this idea! I have taught Siobhan how to get to this site, but I would also love for one of the Kindred Spirits to have "permission" to speak for me if the need arises.

    A few of the sisters here have my email address~ and my phone number as well. Perhaps I will just ask one of them if she would be willing to speak for me, and me for her...

    Great idea, Stef!

    Hugs,
    Chen♥

    well Ms Smarty!!
    I think its a wonderful idea!!!! I'm IN like Flynn lol

    ♥ Libby
  • sea60
    sea60 Member Posts: 2,613

    well Ms Smarty!!
    I think its a wonderful idea!!!! I'm IN like Flynn lol

    ♥ Libby

    Count me in!
    This is a really great idea!

    Thanks for think of it.
  • natly15
    natly15 Member Posts: 1,941
    Absolutely wonderful idea.
    Absolutely wonderful idea. I've often wondered how we could keep tabs on each other. When someone disappears I cant help but wonder. Shortscake is the first to come to mind. Count me in.
  • RE
    RE Member Posts: 4,591 Member
    :-D
    Add me to the list, good idea by the way!

    (¯`•.•´¯) (¯`•.•´¯)
    *`•.¸(¯`•.•´¯)¸.•´ ♥
    ☆ º ♥ `•.¸.•´ ♥ º ☆.¸¸.•´¯`♥RE
  • aisling8
    aisling8 Member Posts: 1,627 Member
    RE said:

    :-D
    Add me to the list, good idea by the way!

    (¯`•.•´¯) (¯`•.•´¯)
    *`•.¸(¯`•.•´¯)¸.•´ ♥
    ☆ º ♥ `•.¸.•´ ♥ º ☆.¸¸.•´¯`♥RE

    I think
    you've got a good idea!! I'm in.

    xoxo
    Victoria
  • taleena
    taleena Member Posts: 1,612 Member
    Wow.. what a great idea...
    Wow.. what a great idea...

    Hugs,

    ~T
  • fauxma
    fauxma Member Posts: 3,577 Member
    natly15 said:

    Absolutely wonderful idea.
    Absolutely wonderful idea. I've often wondered how we could keep tabs on each other. When someone disappears I cant help but wonder. Shortscake is the first to come to mind. Count me in.

    I think that Chen has an
    I think that Chen has an excellent idea. We can each pm to someone we are comfortable with on the board and ask them about sharing information. If your first pick is taken then we can try someone else. I would be willing to take and give my information to a couple of people. That way there is back up. If someone can't find someone to pair with, they can post here and let us know and someone will certainly volunteer because that's how we are. I think that might be a better way than one person taking all the information and pairing people up. We each might have some preferences in who we connect with. Does that sound doable? I have several different people in mind that I would like to ask to pair with me. Let's give this a few more days and if someone has a better idea, please jump in. Otherwise we can start a new discussion called BBB and post that we are open to someone sending us a PM to be there buddy. Also we can post if we have a buddy.
    It was not hearing from Shortcake and some of the others that got me thinking about this.
    Hope it works for everyone who wants to be a BBB.
    Stef
  • natly15
    natly15 Member Posts: 1,941
    taleena said:

    Wow.. what a great idea...
    Wow.. what a great idea...

    Hugs,

    ~T

    I'm in contact with Sunrae,
    I'm in contact with Sunrae, Marlene_K, and Blazy Tracy. Sunrae as we all know is having a heck of a time, but Marlene and Blazy are doing well getting on with their lives.
  • New Flower
    New Flower Member Posts: 4,294
    natly15 said:

    I'm in contact with Sunrae,
    I'm in contact with Sunrae, Marlene_K, and Blazy Tracy. Sunrae as we all know is having a heck of a time, but Marlene and Blazy are doing well getting on with their lives.

    I like this idea.
    let's do it
  • cindycflynn
    cindycflynn Member Posts: 1,132 Member
    I like it!
    Count me in!
  • fauxma
    fauxma Member Posts: 3,577 Member
    natly15 said:

    I'm in contact with Sunrae,
    I'm in contact with Sunrae, Marlene_K, and Blazy Tracy. Sunrae as we all know is having a heck of a time, but Marlene and Blazy are doing well getting on with their lives.

    Natly,
    See that is great

    Natly,
    See that is great that you are in contact with them. It's so good to know that they and you have someone to share information. I knew that Sunrae was having some difficulties and I think that Marlene posted not too long back but Blazy tracy is one of those that I wasn't sure what was up. I like to assume that when someone is off of here for a time that they are just out living life large and I know some are on facebook but sometimes we just lose touch and then my worry mode kicks in. See I rarely worry about myself but I can be a marathon worrier about others. I sent a PM out to someone I hope will be my BBB and I feel much better knowing that if I should stop posting for whatever reason someone has the opportunity to contact me and that I can do the same for them. It's also someone you can let know if you need to take a break but don't want to post yourself. Or just moving on or well you get the picture. I am open to being a BBB for any of you. Teena was my secret Santa person (that I gave to) and if you want Teena I would be happy to be your BBB. I have your address so would just need a phone number and home email. PM me if you are interested If you have someone else in mind or don't care to share the info I understand.
    Stef