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ANYONE WITH UPSC NOT HAVE A RECURRENCE????

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

sisters,

just began wondering if anyone here who has upsc--whatever stage-- has not had a recurrence. would be great to hear from those of you who have not. i know other uterine cancers recur as well, unfortunately, but specifically asking about those with upsc.

thanx,
maggie

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

(((Maggie))). If you have the inclination & time to read through that long long OLDEST post on this Discussion Board that I started back when I was first diagnosed, you'll see some encouraging posts from ladies with UPSC that popped in to let us know that they'd had UPSC and had never recurred & it'd been 5 years; one was 8 years: I think someone even posted on that thread that was 10 years out from their initial treatment protocol and had not yet recurred. I know that Peggy who posted all the time then was 2 1/2 years from her diagnosis of UPSC with no recurrence qnd that was 2008 and I know that she is still cancer-free. Marge and Deanna both were diagnosed about the same time as I was with UPSC and they have npot recurred in the 26 months since we started in this journey together. I think a couple of ladies who refised treatment have also escaped recurrence for a couple of years so far so good.

It's a crap shoot; the luck of the draw. I hope some ladies post here with their success stories to offset all of us 'recurrence' ladies that I'm sure are super-scary to the newly diagnosed.

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

i appreciate your post with names and numbers of women with upsc with no recurrences. that is good news-- that it is possible, it does get discouraging to read so many posts of late of upsc recurrences, that i can lose sight of those that actually manage to remain cancer-free. too true re: luck of the draw. at this point, i'd be glad enough to have remissions post chemo that last as long as the one i've had--over a year. waiting to hear about the assay results, so that when i do have chemo again, i'll at least not have a hit-or-miss chemo, but one that presumably will be effective for awhile. i haven't read the thread you started from the beginning, but have perused it from time to time. don't know if i have the will to go through it from beginning to end, but i may at some point. i'm still on hormone therapy and will be for another month, first tamoxifin, then i think they'll add megace the second month. never know what could work.......

in the meantime, i hope you're still feeling good, and that you'll soon be kicked back into remission for a good long time. wish we also knew of women who've had recurrences, and then were ned for years on end. would love to hear from those women......

hugs and sisterhood,
maggie

bots's picture
bots
Posts: 53
Joined: Sep 2009

Hi Maggie,

I had a CT scan and Pap smear last week as well as regular oncologist visit the week before. Everything seems to be clear. I had my surgery at the end of July 2009 and my last chemo in September 2009. With the new FIGO staging I am 1a but grade 3 upsc. I feel truly blessed that I have not had a recurrence, and feel so sad every time one of our sisters experiences one. It must be truly frightening.

By the way, when are we going to have that cup of coffee?

Lori

minniejan
Posts: 88
Joined: Dec 2010

I thank you for posting those with no recurrence. I am just starting my journey with UPSC and that really helped.

bots's picture
bots
Posts: 53
Joined: Sep 2009

Jan, I reread your earlier posts. I also have an elderly mother in a nursing home and three adult children who have their own problems. I finally had to decide that right now my health has to be the my main concern. I think it was Maggie who discussed how stress can negatively affect our journey with cancer. I found that once I started thinking of me, my mother and children were able to take care of many of their issues without my involvement. I don't know whether any of this applies to you, but this is the time for you to ask others for help. I will keep you in my thoughts as you travel this scary road.

Lori

minniejan
Posts: 88
Joined: Dec 2010

Hello, Thanks for the thoughts. I am slowly learning to let go and let others handle the problems with my mother. After all, we decided to place her in a nursing home to help our family, I have two sisters who live close by to the home and they can visit instead of me. Although the snow in the northeast has kind of put a damper on visits for a few dayys! I think the snow was sent to slow us all down and give us a breather! I have wonderful friends who have been amazing in these last few weeks as I recuperate from surgery. Jan

Whippet
Posts: 6
Joined: Jan 2011

Hi Minniejan
I read your posting about your recent diagnosis, and your situation was quite similar to mine. I was diagnosed with Stage 1c uterine cancer (papillary serous, clear cell, and endometrioid mixed on 1/03/11. I had no symptoms other than a little pressure and a little spotting. Early last year, I had gone to my internist for a check-up, and she found blood in my urine .She referred me to a urologist. I had a cystoscope and a CT scan with contrast. Nothing showed up. I went to my gyno for a check-up. Pap and pelvic exam were normal, but Dr. wanted to do a uterine biopsy or a d&c because I was 55 years old and still peri-menopausal. My periods were spacing farther and farther apart as they should. I thought a biopsy or a d&c were rather radical, so I agreed to a pelvic sonogram, which showed many fibroids and a very thick endometrial lining. About a week after the sonogram, I had an extremely heavy period and was frightened. I went back to the Dr immediately and consented to the d&c. I was diagnosed on 1/03 and had a modified radical hysterectomy via robotic laproscopic surgery on 1/12. I have no lymph node involvement, and my cancer was confined to the endometrial lining and some cells on the cervix, but I am still frightened because of what I have read about papillary serous cancer. My Dr.is recommending 6 cycles of carboplatin/taxol, followed by 5 vaginal rt treatments. I will be going for a 2nd opinion as to the post-surgery treatment protocol.

pjba11's picture
pjba11
Posts: 192
Joined: Nov 2008

So sorry to hear that you are having to endure more lows here Linda. Our prayers and strength are here for you. As you said it is a crap shoot... such a CRAP shoot. We have been in this together from the beginning and please please let me know if there is anything any of us can do to help you and your family.

Cecile Louise's picture
Cecile Louise
Posts: 135
Joined: Dec 2009

Hello, sisters - I'm still lurking here, reading posts and remembering you all in my prayers.
I was diagnosed with UPSC stage 1b (and endometrial), had surgery in Feb 08, finished standard carbo/taxol regiment in July of 08 and have been NED ever since.

Love to all,
Cecile

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

Hi Maggie- I've posted this here before, but am happy to repost my story. In August of 2007 at age 57, I was diagnosed with stage 3C UPSC. I had a total abdominal hysterectomy with bilateral salpingo-oophorectomy, pelvic and para-aortic lymph node dissection, omnectomy and pelvic washings. I had 39 lymph nodes removed and 7 were positive and so were the ovaries. I had three cycles of Carbo/Taxol . This was followed by aggressive radiation- paraaortic/pelvic adjuvant and one vaginal boost. I also had early stage breast cancer in 2005- I've assumed that the Tamoxifen I took for that gave me the uterine cancer. I have not had a recurrence of either cancer. Every day is a gift.
Barb

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Wonderful!! Can you share what you have been doing post medical treatment - e.g. lifestyle, work/diet/exercise regime, any alternative treatments. Is there anything that helped you, do you think? how are you monitored? Any suggestions for us? Mary Ann

barb55's picture
barb55
Posts: 91
Joined: Jan 2009

Mary Ann, I have been thinking long and hard about what I could offer that would be useful- I would give almost anything for that. I'm afraid I haven't got much to say that hasn't already been said- I'm really not sure how you will interpret this or how well I can articulate it, but I'm just going to start writing .... I think I had an "acceptance" of the disease. I didn't take it personally, I don't think I ever felt like I was battling it. Of course I was afraid and suffering, but I put my energy into listening to my body, letting others help me and kind of shutting out everything else till I became stronger. I was in a uniquely fortunate situation in that my children are grown and I had recently retired from teaching after 34 years so I could just focus on me and focus on the love people sent me. I also remember thinking that I would be the best patient any doctor ever had- I would will myself through this and I would be gentle with myself as well. I would breathe in and breathe out. Nothing more. Maybe all it was, was a great sense of denial. It certainly was a great deal of luck. I had excellent doctors, very aggressive surgery and treatment too, but so much luck.
As for my checkups- I am up to a 7 month wait. They consist of bloodwork (CA125 of course) and a short physical, (lots of tapping on my tummy) and an interview with the doctor. I had only one CAT scan the first year after my treatment ended- and I requested that because of stomach pain. I didn't get any other scans for the UPSC.

As for diet- I don't eat meat - I am very very conscious of eating unprocessed food. I really care about the quality of my food and where it comes from. But I don't deny myself sugar or chocolate or a glass of wine. I always feel better after exercise- walking and Pilates and I need to do way more of it. I meditate and practice visualizing- nothing very fancy. I think I laugh a lot more than most people. I start small project like knitting and tell myself that nothing can happen to me because this project has to get finished (maybe more self delusion?) and I think about the garden which will have to be planted this spring . I don't get much further ahead than that-. I take on jobs that don't have a long term commitment - I really really try to be in the moment- believe me, I am not always that successful. I feel good- not great. I'm still more fatigued than I want to be but it may be unrelated to the cancer. I end every day with the words, "Thank you." I hope this was helpful.

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

thanx for your comments. you do sound like you had an aggressive treatment, which apparently worked--may it ever be so. it' s so good to hear from women who've been ned for years. i agree, every day is a git.

sisterhood,
maggie

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I'm sure she won't mind if I share this with all of you as it was posted on another Discussion Board:

As I posted on one of the discussion boards:

I was diagnosed in 2000, long enough ago that I don't remember the diagnosis details, other than that they found it in one lymph node as well as the uterus.

Total hysterectomy (including ovaries), Whole Abdominal Radiation Therapy (WART), Megace for 2-3 years.

Still cancer-free! The side effects of WART are increasingly kicking my hindside, though.

And you found some hopeful research, that's wonderful. I'm like one of the folks who responded to your research posting: I had stopped looking at the research years ago because it was too depressing. But the results you found look very promising!

So now you know at least one person who has survived the diagnosis for 10 years.

If you know of any folks dealing with long-term gut radiation side effects, please let me know. I'll look around the site for digestive cancers, maybe run into some folks there.

shortmarge's picture
shortmarge
Posts: 295
Joined: Nov 2008

I was staged 2B with UPSC and Clear Cell. The biggest thing I have changed is my eating, but not much. Add more fruits and veggies, green tea everyday with raw ginger. Love my raw ginger! I have incorporated turmeric into my diet also.

Don't worry much about recurrance anymore, but every now and then when something feels odd in the body the old mind starts going... My husband and I remodeled our bathroom and my lungs started hurting. Was having a hard time breathing and of course I thought cancer instead of allergies to the dust. But the worry is getting better. Sometimes it feels that I never went through it all.

I will say, my last oncol appoint was in Nov. and I now only have to go every six months instead of every three. It's hard letting go of that security blanket, but I guess you just have to adjust the thinking process.

LINDA - I have no words to discribe how I feel for what you are going through. Know I am holding your hand and praying for you. You are my sister and my heart hurts for all you are going through. You are a strong and postive woman and have helped sooooo many women here. You are dearly loved by all.

MIND, BODY AND SOUL!!!

Hugs, Marge

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

My diagnosis was Stage 1a UPSC. I opted for 6 rounds of chemo with carboplatin/taxol and 5 rounds of vaginal brachytherapy, which I completed in November 2008. So far, my CA-125--a good marker for me--has been either 4 or 5, and my internal exams have been fine. Unlike Marge, I still worry about recurrence; but that may just be my personality. It seems that every time I have an excess of stress in my life, I worry about the cancer returning.

I have done a great deal to change my eating habits. I've completely given up sugar and meat. My major sources of protein are quinoa, lentils, spelt, and kasha. I eat fish and will occasionally have some chicken, but I live on stews that include a legume or high-protein grain combined with lots of fresh vegetables (e.g., zucchini, sweet potatoes, kale or spinach, carrots, turnips), tons of turmeric, garlic, caramelized onions, and fire-roasted tomatoes. I make big salads, too, full of all types of greens, tomatoes, avocados, and either walnuts or almonds.

My consumption of dairy products is low, but I still have about a cup of yogurt several times a week. Fruit is always in my fridge, and I eat an orange and a handful of berries each day. Breakfast is either oat bran or whole grain toast, and I stay away from eggs to help keep my cholesterol nice and low. My biggest problem was switching from fruit juice as my beverage of choice to plain or sparkling water. Red wine is still my friend, and I have a few glasses a week.

Although I am pretty sedentary when there's snow outside, in better weather I walk about 20 miles a week. This is actually lots of fun because I enjoy exploring new neighborhoods and vary my walking route each time.

I hold all of you close; you've helped me through some really dark times. For all of you going through a difficult time, I will be sending you the most positive thoughts.

Jill

deanna14
Posts: 734
Joined: Oct 2008

Hi Jan,
I was diagnosed with uterine cancer in July 2008, Stage I. When they did my hysterectomy on September 11, 2008, my diagnosis changed to Stage IIIC UPSC. I just had a PET scan last month that was negative for any reoccurance.

Linda,
I concur with everything Marge said. I think of you and pray for you often. You have made a huge impact on my life over the last couple of years!

God Bless,
Deanna

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Awesome that you are all NED!!! Party on ladies!!

Thanks Jill for your eating info - I will copy this and use to inspire me to get on that bandwagon. I was good for about 5 months last year but got sloppy late in year. Your diet and EXERCISE may be key things in your positive result. I have quit FT work which was a big stressor for me. There's no excuse for me to not eat healthier and exercise. I just started walking about an hour a day and more yoga. I know I can do this.

Thanks again. Mary Ann

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

so many wonderful things to minimize your stress and take care of your health. You inspired me when I first joined this board to do some creative visualization and meditation, both of which are challenging for me but ultimately very helpful. Your decision to quit FT work--and the stress that went along with it--is also IMHO a very positive move.

Changing my diet was easier than I expected it to be. I LOVE to eat and consider myself a major foodie, but now I try to figure out how to replace the less-healthy foods I was eating with healthier versions--for example, whole wheat pasta instead of cheese-filled, white flour manicotti; homemade lentil soup with spinach instead of cream of mushroom; oat bran with fruit and nuts rather than a goat cheese omelet. Also, once you cut out sugar, you no longer crave it. Really. I can watch friends eat ice cream and not be the least bit tempted. Stevia and Agave Nectar in small quantities I believe are ok.

And don't forget to add turmeric to almost everything...and try to chew a little piece of raw ginger every day, which I am not good about doing. With regard to the turmeric, I took Maggie's advice and have a piece of toast with a little bit of olive oil, turmeric, and ground black pepper. It's GOOD.

Exercise I have found to be key, and it has the added benefit of being good for my mind. I am a major worrier and the worst type of person to have had this diagnosis. Literature and my oncs tell me that at Stage 1a (USPC was a tiny portion of a polyp, which was the extent of my cancer) my prognosis is good, but I am doing EVERYTHING in my power to help make that true.

GOOD for you that you are walking so much and increasing your yoga. I've always been impressed with the ways in which you take care of yourself and respond to challenging times.

All my best wishes to you and all my board sisters,

Jill

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Thanks for your encouragement and kind words. I'm glad that you returned here to check on us - I missed you!!

I love your picture. You look like Jamie Lee Curtis in it - I love her!!

Continued blessings to you. And continue all the good things you are doing to keep that worry at bay - it truly is a useless waste of time and good karma.

I've got lentil soup on my agenda!! Mary Ann

deanna14
Posts: 734
Joined: Oct 2008

I was diagnosed with UPSC in Sept 2008, finished treatment in June 2009. I remain cancer free....

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Nice to hear from you. I'm so happy for you!!!!! How are they monitoring you now?

Whatever you are doing must be working for you. Did you return to FT work? any suggestions for us?

Love to you, Mary Ann

Double Whammy's picture
Double Whammy
Posts: 2318
Joined: Jun 2010

I have a friend who was Stage 2 - FIVE years ago. She had chemo and abdominal and internal rads. NED. Dancing the night away with him.

Another friend, Stage 1b (85% invasion, nodes negative). She's almost 2 years since dx and well over a year since end of treatment. Doing well.

Suzanne

Becky444's picture
Becky444
Posts: 29
Joined: Jul 2010

I was diagnosed 8/09 and finished treatment 1/18/10. On January 18 I will have been NED for 2 years! There isn't a day I am not grateful. I was diagnosed 3A but they tell me if I were diagnosed now I would be a stage 1. I had 6 rounds of carobo/taxol & 5 brachy therapies.

I could not have done this without a great doctor who performed the debulking hysterectomy plus the chemo & radiation. I have some neuropathy in my feet but I can deal with that. The meditation, exercise and watching what I eat (most of the time) have helped. I feel more in control that way...if there is any control. I don't eat red meat but do eat lots of veggies. It is Christmas & have splured with the sweets but that will be done in a couple days.

I thank you all for all the support you give to everyone who posts and those who don't post a lot like me. I wouldn't have made it this far without you!

May the Lord bless you all!

deanna14
Posts: 734
Joined: Oct 2008

How are things going with you? I'm subbing at a local school, usually 2-3 days a month.
I see the rad/onc every 6 months alternating with the gyn/onc every 6 months. So I am actually examined every 3 months. next scan in may... Making it 11 months from the last.
I don't do anything special, in fact, I have gained a lot of weight from not being as active. Stress is less due to not working. I really do believe Linda was correct, it's a crap shoot.
Love & Hugs

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Suzanne, I think it is very good to know of people in long remission - maybe even cure!!! Let's keeping changing those nasty stats.

Becky, I wish you continued health and happiness. I think you have nailed a great lifestyle for you - moderation, gratefulness, enjoying life!!

Deanna, nice to chat with you here. I had recurrence after one year (in supraclavicular lymph nodes) and completed treatment over a year ago. All well since. Will have PET in Jan. I strive for exercise and good diet - but admit not so good right now. One thing that I believe has helped me - and you mentioned it - lower stress!! I retired from FT work when treated for recurrence. Now I work only a few hours a week. I still enjoy my choral group - we practice weekly and that is like an oasis of happiness for me. We have an awesome conductor and several spectacular concerts this season!!!

May we all live long and prosper. Wishing all countless blessed Christmases and healthy new years!! Mary Ann

california_artist
Posts: 850
Joined: Jan 2009

Only changed my diet and lifestyle. All medical interference refused. So far, seems to be going well.

Cannot expect to not change any behaviors after having surgery to remove your cancerous tumor and not have your cancer return in my humble, yet highly researched opinion.

The box is the medical standard treatment guidelines. Think outside the box.

fanniemay
Posts: 52
Joined: Nov 2011

Thank you all. You are all giving me hope. Was diagnosed with 1A November 14th. Am scared to not take the treatment, even though I feel really good. Am scared of getting neuropathy. Have it a little on the heel of my left foot. Starting chemo carbo/taxil on Jan. 3rd. 4 all together(3 weeks apart) and then 3 internal radiation. Have been trying to stick to a healthy diet but fell off over Christmas(eating too many cookies). With the help of God and my awesome doctor, I know I will beat this thing. Blessings to everyone!

imackie48
Posts: 93
Joined: Nov 2011

I am the same situation as you dx Nov 8th, stage 1a, grade 3 UPSC, starting chemo jan 9th, I tell you I'm scared as heck. My tx plan adjuvant 4 months taxol? Did you get a port placement?
Please keep me posted on how your doing. My problem is I have Neurtopenia already for 7 yrs. I know that's the first thing that drops the WBC.
Tare care, Irene

fanniemay
Posts: 52
Joined: Nov 2011

I was waiting for someone to call me about the port, but no one ever did, so I'm thinking I'm getting the iv. I am also scared as heck. I am 61 and no one in my family has ever had any type of cancer. You say you are having 4 months of taxol. I am having 4 treatments 3 weeks apart of taxol/carbo which is the routine procedure I guess. I also have diabetes and am 50 pounds overweight. Which are risk factors. I am trying to eat healthy and excercise. If I feel well enough I will post Tuesday how the chemo went...I heard that its cumulative so side effects get worse with each treatment. I already have insomnia and find it hard to sleep. I hear that also is worse after chemo. I am glad your dr. recommends the treatment. I always tell others to find a doctor who recommends some treatment even if you are stage 1A. My first chemo is 8 hours. I didn't realize they were going to that long. Think positive. When did you have your surgery?
So happy that I have found someone else to talk to in my situation. Regards, Edith

imackie48
Posts: 93
Joined: Nov 2011

Edith, so nice to hear your input on your up coming treatments. I had my TAH, robotic , Nov 8th, then I had the port Dec 15th, the port is still uncomfortable. My doctors said I didn't need to start chemo until after the holidays, I was so happy to hear that. On wed I am going in for pre chemo teaching the dos and donts, I am going to go shopping for a wig too. I live in CT and don't know of anyone near that is in my situation so this board is so good to go to for support. My doc told me if I didn't have theUPSC cell I wouldn't need any further treatment. No one in my family has cancer either. I am trying to put some weight on, since I know I'll lose it during chemo. Please keep me posted on your progress. BTW,I'm 63 yrs, I have been drinking protein shakes everyday. Take care, Irene

imackie48
Posts: 93
Joined: Nov 2011

Edith, so nice to hear your input on your up coming treatments. I had my TAH, robotic , Nov 8th, then I had the port Dec 15th, the port is still uncomfortable. My doctors said I didn't need to start chemo until after the holidays, I was so happy to hear that. On we'd I am going in for pre chemo teaching the dos and donts, I am going to go shopping for a wig too. I live in CT and don't know of anyone near that is in my situation so this board is so good to go to for support. My doc told me if I didn't have theUPSC cell I wouldn't need any further treatment. No one in my family has cancer either. I am trying to put some weight on, since I know I'll lose it during chemo. Please keep me posted on your progress. BTW,I'm 63 yrs, I have been drinking protein shakes everyday. Take care, Irene

RoseyR
Posts: 464
Joined: Feb 2011

Can't believe I don't know (recall?) what stage you were at diagnosis. Can you remind us of that? So glad to hear it's been nearly four years and NED. FABULOUS, Claudia.

Love,
Rosey

debrajo's picture
debrajo
Posts: 784
Joined: Sep 2011

So far so good for me at 17 months. Will have a check-up Jan. 23. I really don;t think I can go through that again, mentaly.

Gracegoi's picture
Gracegoi
Posts: 59
Joined: Aug 2011

I had my 2.5 year celebration on Christmas, stage 1b UPSC old staging . Now would be Ia.

I had no treatment other than debulking surgey. I radically changed my diet imediately and have been drinking medicinal tea daily .

Grace

I Will Survive
Posts: 27
Joined: Aug 2011

California Artist wrote "Only changed my diet and lifestyle. All medical interference refused. So far, seems to be going well."

Didn't you have a hysterectomy? I think that is the ultimate medical interference!

Hannah

fanniemay
Posts: 52
Joined: Nov 2011

Congratulations on the 2.5 years cancer free. What is medicinal tea? Is that green tea?
Please keep us posted. Thanks, Edith

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

You said, "I was waiting for someone to call me about the port, but no one ever did, so I'm thinking I'm getting the iv. I am also scared as heck."

I sure understand the scared part - it probably will not be as bad as you imagined - that's how is worked out for me anyway.

One thing I learned is NOT TO WAIT for people to call me!! Everyone is busy and things get forgotten. If I want something, I go after it. The port is a good thing (it will save your veins from chemo damage!!) and it can be inserted anytime. Please followup about this. (Sorry if I'm coming across too bold).

Hugs, Mary Ann

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

FYI, many of us GAINED weight during chemo - we get lots of steroids. Just a thought as you try to gain weight before tx.

My best to you. Mary Ann

fanniemay
Posts: 52
Joined: Nov 2011

Irene,Thanks for the info on the port. I was hesitant to get it because someone I know, part of hers got lost in her body and they never found it. But I suppose that is not the norm. She was thin...I guess it holds better when you have more meat on your bones, which I have..LOL Hugs, Edith

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

A vascular surgeon put my port in. I have only had raves from all nurses about my port.

JoAnnDK
Posts: 276
Joined: Jun 2011

My port was "installed" by an interventional radiologist. I did not even know that there was such a medical specialty! I was under "conscious sedation". No pain afterward.

JoAnn

imackie48
Posts: 93
Joined: Nov 2011

I had my port installed by interventional, but I did have pain afterwards, the doc told me since I had very little skin to strech on my chest, made it hurt so much, and the doctor wouldn't give me any pain meds, told me to take Ibuprofen, I just suffered with it. still uncomfortable. Joann did you ever hear of the cream EMLA it's a lidocaine you put on just prior to chemo treatment, I haven't started mine yet but my friend told me about this cream I will ask the oncologist about it. Irene .

fanniemay
Posts: 52
Joined: Nov 2011

I have a friend whose daughter had a port and she said the nurses put that cream on prior to treatment....so I will be tomorrow

imackie48
Posts: 93
Joined: Nov 2011

good, that's just one less thing I need to worry about...Fanniemay, if you like you can send me a personal message on how your treatment goes. take care

imackie48
Posts: 93
Joined: Nov 2011

good, that's great one less thing I need to worry about...Fanniemay, if you like you can send me a personal message on how your treatment goes. take care

Gracegoi's picture
Gracegoi
Posts: 59
Joined: Aug 2011

Good luck tommorrow with the start of your treatment. It's nice a bunch of you first stagers are going through treatment at the same time . Support at the beggining is so important.
I read where you were afraid to not do the treatment. I was the opposite. I knew my odds were around 50% with out it. Yours will be better.

I was so grateful for Claudias support when I made my choice.

Fannie the difference between medicinal tea and herbal tea is, one is taken as a remedy for a condition. Many take herbal teas for enjoyment or as a non caffine hot drink.

I use herbs that target inflamation, angiogenisis, liver cleansing, and antioxidant.

And green tea is one of the ingredients.

Take care,

Grace

fanniemay
Posts: 52
Joined: Nov 2011

Thanks everyone for your positive thoughts and good wishes as I start my chemo tomorrow. I just got back from the grocery store and purchased all these products that are supposed to be good for cancer. Coffee, asparagus, broccoli,blueberrys, grean tea,mushrooms, spinach....any other suggestions? my son-in-law gave me a bottle of Mon A Vie..acai berry fruit drink from south america. Supposed to be great to help strengthen the immune system. Do you get your tea at a health food store Grace? If anyone wants to email me, here is my email...edithweil@loveavon.net I don't check this board everyday, but I do my email. Hugs to all, Edith

fanniemay
Posts: 52
Joined: Nov 2011

Hi,Was at the hospital for my chemo treatment from 8a.m. til 4:30p.m. I started having heart palpatations and a fast pulse so they stopped and gave me steroids which helped. If I blow up like a "blow fish" I won't be going very many places. Have some nausea...took a pill...seems to have helped. Wasn't bad at all today. Tomorrow I will have more energy than the energizer bunny. Thursday I won't feel too good. If I have any bad side effects I am supposed to call them. BLessings and Hugs, Edith

imackie48
Posts: 93
Joined: Nov 2011

I am so happy that your 1st tx was not that bad. My doc gave me steroids to take 12 hr and 6hrs before my 1st tx. Did they mention putting a port in?
I am going today for my pre tx teaching with the nurse. If you feel like emailing me just take talk since you and I are going thru this at the same time, maybe we can be supportive to each other. Jmack47@aol.com my address
Take care of yourself, drink plenty of fluids..... Irene

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