Jan 23, 2011 - 7:12 pm
my 64 year old widowed mom was diagnosed on 9/22/10 with two GBM's IV. resecting was not an option... so we went to Duke and got involved with a clinical trial.
We use to live 3 hours apart. It would take months for her to plan a trip to DE where I live to see my three kids. she worked 40hrs as a medical office manager, visited my 101 year old grandmother weekly and worked at the hardware store she still owns. Before she was diagnosed, she was a pessimist person. . now she is beyond pessisimsim..
Since starting treatment, we all have really not accepted the seriousness of this type of cancer... which is making some huge emotional waves here in my house. I am trying to "save face" as my new roll as caregiver. . but i think i am getting more and more angry.
I have to remind myself that my mom had her own life before it came crashing to a halt (she hasn't worked since sept. and it looks like she will be retireing this fall) She also know has 5 additional roomates. ( including my 6 year old and 4 year old) My house is plenty big, she has her own grond floor "suite" which helped out before she regained her mobility.
Can i say that she is pissing me off? Can I say that? She has a way of commenting on the condition of my house, my kids, and pretty much anything else that is pissing her off. I have been very good about "redirecting" her comments, or restating them in a positive way. We have a long road ahead of us. . she will complete chemo treatmet next month, begin radiation for 6 additional weeks, and then we are looking at another year of chemo.
She has a house to sell, a business to sell. She wants to be independent and have her own place.. Is that a good idea?
My dad passed away suddenly. . so this is all new to me. Any information, advice is more than appreciated. I really don't even know what to expect with GBM's. . as far as long term.. I obviously have no idea of what this journey will be like for me, my famiy or my mom.